Patience is a Virtue

“A person’s insight gives him patience, and his virtue is to overlook an offense. “ Proverbs 19:11

It is interesting how we gain new knowledge and insight as we progress through new stages and struggles in life.  While I have historically been a fairly patient person, I find that as I consider the temperament of my 14 year old son with Asperger Syndrome, I seem to gain newfound patience with him in some circumstances.

I have come to realize that there is no rushing Stephen to leave the house in the mornings. He has a certain order to the things he must do before he leaves. He rises early to shower. Then he goes into his bedroom to dress. After that he goes downstairs to get breakfast. On school days he must make his lunch also. After those things are done he has to go back upstairs to brush his teeth. All of these items require a certain amount of time and none of them can be “hurried”.

Eating is the same way. When Stephen gets his food he will not even attempt to eat it if he thinks it may be hot. Sometimes he will wait until other family members are almost finished eating before he begins. This can be frustrating to the rest of the family if we are trying to move everyone quickly along in order to leave the house.

One morning this week my husband fixed breakfast for the kids, but asked that each of them begin by eating fruit. Stephen chose apple and banana for his fruit. Then he began to cut the fruit into bite sized pieces to eat. He was slow and meticulous, but when he finished the pieces looked like they were ready for display—they were perfectly cut and almost all the same size! That simple act is a gentle reminder for me about how important order is to Stephen’s world and how he isn’t in a hurry about the mundane things of life. I can make accommodations to our schedule for allow Stephen the extra time he needs, but sometimes I need a reminder to take things a little slower, too.

As a side note: Now I know who I should enlist to help me next time I need to make a cut fruit salad! But, I will just have to remember to give him enough time.

 

 

 

Knowing and Respecting My Limits

If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him.
James 1:5

Sometime in my early twenties, I realized I had an unhealthy pattern of pushing, pushing, pushing and then crashing. When I say crash, I mean totally worn out and often sick, requiring days, if not a week to recover.

It was not easy to change this pattern, as it required self-awareness, discipline, boundaries and the Lord’s grace. However, I soon learned that the boundaries that worked while I was single were not adequate while married or as a mother of one and then two. For each stage I had to maintain boundaries that were not only in my best interest, but also in the best interest of my family. It has not always been easy for me to adjust since it requires some sort of sacrifice.

I was rethinking my limits this past week after being offered a speaking opportunity at our friend’s youth group. As exciting as this opportunity was, an opportunity to use my talents and gifts, I was also weary of taking it on in my current situation.

I am a wife, mother of a daughter (4) with a hidden disability (sensory processing disorder), son (16 months) and eight weeks pregnant with plenty of nausea and “all day” sickness.

After thinking it through, praying about it and discussing it with my husband, we decided that I should go for it. He agreed to help lighten my load with the kids and household duties so I could study.

It was an exciting and draining week all at the same time, as I did my best to prepare as much as possible, while balancing all of my responsibilities. I wasn’t able to spend as much time as I would have liked preparing, but it was the best I could do and the Lord honored it.

I have to say that the following two days have been lazy filled with lots of extra rest since I have been very tired. Thankfully, I had the foresight to know what I would need and the support to make it happen. I think we managed it well, no crash and burn, but have no plans of taking on any extra tasks in the near future. ☺

Those of us with a hidden disability, or caring for someone with one, need to know our limits and live within them for our own well-being as well as our family.

How are you doing with your boundaries? Do you know and respect your limits? If you need to, take time this week to assess how you are doing in this area and make any necessary adjustments.

Learning to live within my limits,

Lynn

Happy Birthday!!!

It has been Birthday season here at our house. And when I say Birthday season, I am SERIOUS!  If you have read my bio, you understand that my sweet G-man was one year and two weeks old when I brought home TWINS. So it’s that time of year. We have celebrated G-man with his own super special day loaded with every treat I can spoil him with. Then, in between, I have one GIANT mega blowout party. CHECK!  So all that is left for us is the twins’ actual birthday, when they can have their own super special day loaded with treats… and I’m DONE!  For a YEAR! 

Celebrating another year of a child with a hidden disability is not just ANY birthday… Don’t get me wrong, I LOVE LOVE LOVE  celebrating the anniversary of EACH of my kids’ birth. I LOVE birthdays in general. Mine, yours, ours…. but a birthday with my sweet G-man is like a small victory. A triumphant, “We’ve made it!”  A new year to start fresh. To do what we do best, better; And to improve upon the things we did not do so well with…  To celebrate the tiny victories of every day; And to put to rest the mental battles that we failed. 

So HAPPY BIRTHDAY to my wonderful kiddos! And what a sweet celebration we have had!

Ecclesiastes 3: A Time for Everything
There is a time for everything, and a season for every activity under heaven:
a time to be born and a time to die, a time to plant and a time to uproot,
a time to kill and a time to heal, a time to tear down and a time to build,
a time to weep and a time to laugh, a time to mourn and a time to dance,
a time to scatter stones and a time to gather them, a time to embrace and a time to refrain,
a time to search and a time to give up, a time to keep and a time to throw away,
a time to tear and a time to mend, a time to be silent and a time to speak,
a time to love and a time to hate, a time for war and a time for peace.

“Close the Door!”



My son has a hard time remembering to close the door behind himself. I know many children have this issue… even a few husbands may.  =)  I recently said to our team of therapists… is there a program to help him with this? I was half-joking, half-serious.

Then the other night I had an epiphany. It didn’t really change the situation, but having an understanding behind why it happens sure helps! I was putting our three-year-old daughter to bed. Owen opened her door and came in to ask me a question. He does this often. I gave him an answer or told him to wait a few minutes and I would be there to help him. He walked out of the room. As usual, leaving the door open behind himself. I reminded him to close it and then the epiphany…

Normally we just think kids are forgetful or absentminded. But as I watched him walk away from her room I could see that once he turned and walked away, his mind was completely off of what he left and his mind was now on where he was headed. This may be very typical for all kids. Obviously there’s a point when children become more aware of other people’s perspectives and this awareness becomes natural.

In the meantime, my observation helps me better understand WHY this happens. It’s much easier to work on “fixing” something or developing a new skill when you start with the original skill deficit. It’s the same idea with weeds! Don’t treat just what emerges from the surface, that’s just the beginning. You have to go below the surface to make change.

My honeymoon verses

I rode horseback in Texas growing up and got my introduction to stinging nettle and sand spurs. If you’re wise, you will wear thick jeans when you ride, because God gave horses thick hides, not you. They gallop effortlessly through high weeds and thistles. You have thin-skinned bare legs that can get whipped and stung with every prickly thing out there, and Texas has more than its fair share of prickly things. Stinging nettle does just that, with little nettle hairs  so small it’s hard to see but you could swear your leg was on fire. I really am getting to a Biblical point here.…

For me, hidden disabilities came with stinging nettles. It stung just riding through it. It stung when I realized it would never go away. It stung as I learned it would be hard to trust. It stung when moods produced painful rash words (there is one who speaks rashly like the thrusts of a sword…Prov 12:18)….

On my honeymoon, thoroughly stung, I wept and opened my Bible, searching for comfort, for hope. I came on these verses in Isaiah 55…

For as the rain and the snow come down from heaven,
And do not return there without watering the earth
And making it bear and sprout, and furnishing seed to the sower and bread to the eater;
So will My word be which goes forth from My mouth; It will not return to Me empty, without accomplishing what I desire, and without succeeding in the matter for which I sent it.
For you will go out with joy and be led forth with peace…
Instead of the thorn bush the cypress will come up,
And instead of the nettle the myrtle will come up,
And it (the transformation of the desert) will be a memorial to the LORD.”

Transformation of the desert. I was in my personal desert…my present and future had no hope, no color. Just nettles. Corrie ten Boom commented on how the prison cells during WWII starved a prisoner in their lack of color. It was all gray. No relief. Even a piece of colored thread helped her soul survive. I craved the green of cypress, the blue of myrtle.

It’s no secret around here, as a housekeeper, I am not very successful. Just ask. As a gardener, I’m randomly successful, which means some plants survive, but a jillion have not. As I wife I have not been consistently successful either. But this verse tells me God succeeds. Always. No matter what He tries. And He promised me He would succeed in turning my desert into a garden…and that transformation – of desert to garden – would be the memorial to Him.

You know how when you drive past a house that’s getting new landscaping done, and the business sticks its sign in the yard so you know who to call? I want my life to bloom in such a way that anyone who drives past it wants to call Jesus.

Starting to bloom,

Joan

You never know…

… how the smallest thing can change the trajectory of someone’s life.

I thanked the art teacher at Daniel’s high school for putting 2 alumni magazines in my mailbox (I work there) that had articles in them for their respective post-high school Life Skills programs (http://magazine.wcu.edu/2011/03/moving-on-up/; http://www.uncg.edu/ure/alumni_magazineT2/2011_spring/feature_beyondacademics.htm). Daniel hasn’t even taken a class with her. I said, “Maria, because you put those magazines in my mailbox, and because I read them, and because BOTH articles mentioned one website (http://www.thinkcollege.net/), we looked up the website and are fairly certain we will be selecting Daniel’s future program from one of the schools on the site. YOU started us down a path that is going to affect my family, and Daniel personally, for the rest of his LIFE.”

But she threw the ball back in my court: “Well, that daisy chain started with YOU. I put the magazines in your mailbox because I overheard you talking to Frank in the Faculty Lounge about your Spring Break plans to visit Horizons School with Daniel. And when I got home, one of those magazines was waiting for me in the mailbox. And the next day, I got the other one! So I figured, hmmm, I think I’m supposed to do something about this….” Who even reads magazines the very day they show up in your mailbox?

But you and I know this is such a God thing! Can’t you just see Him orchestrating this, our Beloved Conductor, on His heavenly dais, cuing each note of this Interlude with His baton? If He is proactive at the “Maria,-put-these-magazines-in-Peggy’s-mailbox” level of Daniel’s future, “whom shall I fear?” Let the music continue, with me in harmony with the Great Symphonist, and not adding discord with my recurring eighth-notes of fear and unbelief. Hallelujah!

All That Glitter!

I don’t know if this post is about my daughter’s hidden disabilities or her artistic process. Maybe it’s about both.

Maybe it’s about how I’m not like her. At all.

I crave order and symmetry and linear storytelling. She spreads out and leaves a trail and assails me with questions and details.

This evening, as my husband and I were trying to wrap up our end-of-the-day family time, Cami brought her silk autumn leaves into our room. She wanted us to see her leaf explosion.

So she made them explode…all over our bed.

Cami's Leaf Explosion

I want to enjoy her creativity. Sometimes, it hits that I-just-need-everything-to-be-neat-and-tidy place in me.

A few mornings ago, the first thing she said to me was “Mom. You have to come downstairs right now. The Plastic Bag Fairy came to our house last night and left us a display. Come on–you have to see it before Roscoe moves.” (Roscoe is our dog.)

At first, I refused. I said, “If you want me to come downstairs to see how you’ve spread plastic bags all over the living room and all over Roscoe, no. I don’t want to see that.”

“I didn’t spread them all over the living room,” she said.

I came downstairs to see this:

The Plastic Bag Fairy's Display

She was correct: she didn’t spread the plastic bags all over the living room. They were contained to the couch.

It made me mad. I’m not sure why.

Maybe I’m jealous that I can’t be that messy.

It’s happened before, this explosion of creativity that makes me angry.

One rainy day, Cami and I both had cabin fever and were getting in each other’s space more frequently than normal. I gathered different art supplies and arranged them on the work table downstairs, thinking, “She’ll have fun making a collage.” My friend Betsy even gave her an art “assignment”: everything green (thinking, like I was, that Cami would be cutting pictures of green things out of magazines and gluing them on paper. That’s a collage, right?).

Cami didn’t make a collage.

She made a fairy glen.

She spread silk flowers and foam stickers all around the room. She adorned her stuffed animals with cloth roses and sparkly ribbons. She transformed our brown basement into a magical space, complete with everything fairies need in their glens.

The crowning glory of her creation? Gold glitter sprinkled everywhere.

By the next day, the glitter had migrated to the front steps. Outside. That evening, I could see the scalloped lines on the facing of each cement step where the rain had washed glitter from the welcome mat down toward the front sidewalk. It made me giggle then.

A few days later, I was in the basement, thinking I would tidy up before we hosted a play date the next day. I was assailed by such a paradoxical emotional dichotomy that I gave up and went to bed.

You see, the glitter was overwhelming.

Glitter on the tables, glitter in the carpet, glitter on the bookshelves, glitter on the television.

I honestly didn’t know how to feel. With a simultaneous “Awww!” (as in “How precious! Look what she made!”) and “Aaarrrggghhhh!!” (as in “#$%&*!! I’ll never get rid of the glitter!!”), I was impressed with her attention to detail and furious with her meticulousness. There was a moment when I was overcome with sleepiness, my limbs seeming to weigh a thousand pounds each.

The underpinning of my emotional state? Grief. Grief that I can’t turn a room into whatever my imagination can think up. Grief that the “real” world is going to crush Cami’s whimsy. Grief that I have to help her negotiate that crushing without losing herself or sacrificing her gifts. I knew the whole experience was the next step in my own transformation. Jesus is redeeming the little girl inside of me and renaming the false labels I’ve worn for years (“too serious”; “no fun”; “party pooper”).

I just didn’t expect it to sparkle so much.

What about you? As you parent, how is God redeeming the child in you?

A Summer to Remember

It is almost time for school in our county to be out for the summer. Summer can be a difficult time for our family because, although they would never readily admit it, my children thrive on the schedule that the school year provides. Having a mom who is neither a planner nor a schedule maker can cause the summer to be a train-wreck of inactivity and frustration. So, with a little thought ahead of time, can we create a family plan that will satisfy the children’s need to know what to expect and save me from the incessant, “what are we going to do today?”

We have already begun creating the master calendar. First on the calendar go family vacations, camps or events that are on set dates. Next comes the filler. Many communities provide free or very low cost entertainment or events for kids during the summer. Sometimes you can find out about these opportunities through the newspaper. Many times other parents in your community are your best source of information about these types of events. Depending on where you live, there may be more, fewer or different options available to you and your family. The key is to do a little investigating to find out what is offered in your area through churches, community centers, the local library, and the schools.

Two activities my kids have enjoyed over the years are nationwide.

Movies: If you like movies, Regal cinemas offer G and PG rated movies on certain mornings during the summer. This year they are charging one dollar admission per person. You can check www.regmovies.com/summermovieexpress for participating theaters and schedules in your area.

Bowling: In an effort to introduce the sport of bowling to a new generation, bowling centers across the country are joining together to offer free bowling to kids during the summer. After signing up for the program kids receive coupons entitling them to two free games of bowling each day throughout the summer. Check www.kidsbowlfree.com to see if there is a participating center in your area.

If your budget will allow it and you live close enough to make it feasible, consider getting a membership to a zoo, museum or science center, water park, amusement park or swimming pool (somewhere your family enjoys going) and plan on making a few visits there during the summer. I find that with a membership I do not push my kids or myself to spend hours at the venue if for some reason we are not having a good experience.

There are also activities you can plan to take place at home. Schedule a family game night. Put together a puzzle as a family. Let the kids plan a night to host a restaurant for their parents, grandparents &/or sibilings. Make cookies together. Set up a ‘tent’ inside the house for a day. Play in the sprinkler. Brainstorm with your kids what they would like to do together and as much as is possible, put it on your calendar.

 

Playing in the sprinkler last summer

What makes for a good summer will vary for each family, but for us planned activities and routines help keep all of us happier. When planning your summer schedule, keep in mind the particular needs/concerns of your family and then have fun making this a summer to remember—in a good way.

 

Tourette Awareness

May 15-June 15th is Tourette Syndrome Awareness month. A diagnosis of Tourettes is made usually before the age of 18, when a child exhibits at least one motor tic and one verbal tic, for a period of at least one year. There are many comorbidities that are often present with TS, most commonly ADD/ADHD or OCD.

Our diagnosis was made at the age of 5, but in retrospect our son’s tics started as early as age 3. Like many tics and new onset TS, G-man’s first tics were mistaken for respiratory symptoms that mimicked asthma or even a cardiac defect. Many children are first misdiagnosed with either asthma or vision disturbances. The behavioral component (ours is OCD with strong anxiety), has been ever-present; I’ve said since he was born that he was “wired differently” or, unfortunately, “difficult” (I’m being frankly honest). Certainly after the twins came along and I had a “neurotypical” reference point, it was CLEAR that something was, in fact, different.

Different, difficult, “wired differently”…. Whatever. My son is PRECIOUS, and now I have the education and resources I need to parent him in the best manner possible. All the puzzle pieces fit nicely, and it all makes sense!

Please visit the Tourette Syndrome Association website for more information about this wildly misunderstood diagnosis.

Spring in the Air

I love Spring. Every year I think this. The winter seems long and dark and cold. And then Spring comes with its light and fresh air and flowers.

I know many people feel this way. But it is especially true in a home with bipolar disorder.

Well Spring is here in our home. This last month has been sweet. And hopeful. My son has been getting up with a can-do attitude. He has taken on his school work with diligence. He has been more cheerful around home.

But the real test came this week when he had his front tooth break and we headed off to the dentist.

I have to tell you that I was dreading the day. I really thought it would be one of those difficult days when I was apologizing for his curtness. But it never came.

He received awful news at the dentist – she informed him that the pain wasn’t just the broken tooth but an abscess in his mouth. And she was concerned about a shadow she saw on the xrays and sent us off immediately to the Endodontist who confirmed the inevitable — root canal. Not one, or two, but THREE.

Oh my, it is coming now. The anticipated eruption of frustration and anger.

But … nothing….

I have never been so happy with nothing in my entire life.

He was as charming and delightful as you could have hoped any teenage boy could be. In very difficult circumstances. He told the nurses at the dentist’s office, with a broken smile, that they were really nice ladies but he sure would prefer not to see them so much…. And he teased the Endodontist about the crazy dentist (Steve Martin character) in Little Shop of Horrors.

I left the endodontist with him and praised God and him. I praised God that the tooth broke so we could find out about the bigger problem, hidden beneath the surface. And I praised him that he was responding so incredibly well under difficult circumstances.

It ended up being such a good day. I never would have thought it could be when it started. God was so present and gracious with us. The memory will linger. And for very different reasons than I would have thought.

Hopeful,

Hannah