Living with JOY in the moment

My first child was born in 1988 and we have been dealing with hidden disabilities ever since. Lately I have been so tired and over extended that I feel like I have been hanging on by my finger tips. I am now 49 years old and dealing with Rheumatoid Arthritis and Fibromyalgia which makes me very tired. Lots of times I have cried out to the Lord for strength and energy. Recently I have found joy in outlets such as Christian concerts, reading and mentoring outlets through the internet. I realized that I was no longer finding as much joy in parenting which is very concerning to me (and probably the children as well). I have been examining how to change this dynamic. I decided that I will purpose to find JOY in the moment each and every day. I have set my alarm earlier to make cuddle time with each of the children a priority before breakfast. It really changed the tone of the morning and the children are enjoying it and so am I.

Nehemiah 8:10 says Nehemiah said, “Go and enjoy choice food and sweet drinks, and send some to those who have nothing prepared. This day is sacred to the Lord. Do not grieve, for the joy of the Lord is your strength.”

Thank you Lord for revealing this to me and help me always to find purpose and JOY in each moment. I want to find new ways to connect with my children every day and I believe that you are answering my prayer for strength because THE JOY OF THE LORD IS MY STRENGTH.

God bless each and every one of you this Christmas season and always.
Twyla

Now…for the rest of the story.

I loved Paul Harvey’s radio show, the way he would tell the first part of a story, then say, “now ... for the REST of the story….”  I love resolution, knowing how things turn out. It’s part of what drove me crazy earlier in my life, when so many plot lines were developing in my life, and no idea how/if they would resolve.  I LOVE MIDDLE AGE! (except for the going blind, going deaf, gaining weight.)  With 2/3 of my life behind me (theoretically), some things are making more sense. It’s not all better or all roses. As my kids would say, “Heck no.” But I can see some of God’s patterns. Some (and I do mean just some) of my faith is now sight … and I love the view.

For instance, I see now how marriage to my man has changed me in good and necessary ways. Not that I recommend looking for bi-polar men on lovematch.com or something! It’s just that Jesus has used it to produce good in me. Jesus was “green” before it was popular … recycling everything, wasting N-O-T-H-I-N-G.

I have an elderly relative, who is near and dear to my heart. She is slowly crossing the river Jordan, as old hymns tell it, and I am observing how hard it is to cling to Jesus when your mind slips. All the normal ways of getting fellowship and encouragement are reduced to a trickle. She can’t get to church,  can’t hear well, can’t read well because she can’t see well…isolation, depression are HUGE in our elderly population. She is no exception.

Blessed be the God and Father of our Lord Jesus Christ, the Father of sympathy (pity and mercy) and the God [Who is the Source] of every comfort (consolation and encouragement), Who comforts (consoles and encourages) us in every trouble (calamity and affliction), so that we may also be able to comfort (console and encourage) those who are in any kind of trouble or distress, with the comfort (consolation and encouragement) with which we ourselves are comforted (consoled and encouraged) by God. II Cor 1:3-4 (amplified)

This fall my husband and I are struck by how VERY similar his struggles mirror hers. He too knows what it is like to be low, VERY low, to have a mind that is unreliable, to struggle with attention span. Because of his suffering, he has been able to encourage this dear one, in a way I never saw coming.

But there is more to this story … as in, “Cast your bread upon the waters, for you will find it after many days.” Ecclesiastes 11:1

Back in his senior year in college, my husband had his first manic episode, followed by severe depression. No one knew of his yet-to-be-diagnosed-hidden-disability … but they did notice his erratic behavior, and it was not favorable to being in good standing at his school. A committee met to decide if he should be removed from honors standing – a move which would jeopardize his chances of going on to grad school. They extended grace.

Guess who was on that committee? My dear elderly relative!  (who was not elderly at the time, nor was I in the picture).

She advocated for him, from her position of influence, she gave grace and compassion to a very confused soul, emotionally and mentally. It’d be years before he married into her family, something she could not have foreseen at the time.  Now, 30 years later, he is in a position to significantly support her, share in her suffering, and return compassion to her confused and depressed mind and emotions.

NOBODY can write a story like Jesus!

Give, and it will be given to you. They will pour into your lap a good measure—pressed down, shaken together, and running over. For by your standard of measure it will be measured to you in return.  Jesus in Luke 6:38.

My dear husband, who knows me well,  gave me this card last year:

It will be o.k. in the end.

If it’s not o.k., it’s not the end.

Love you,

Joan

In Praise of a Principal

“Peggy, I hate to disrupt your evening, but could you give me a call? Thanks. Sent from my iPhone.”

 

Oh, great. I received this message from Daniel’s principal, my boss, at 7:30 PM, but Jim and I were at a fundraising dinner and it was now 10:45 PM. What to do? Well, if I called and he answered, it wasn’t too late to call back, right? And if he didn’t answer, I would at least get credit for returning the call. I’d see him the next morning anyway. I left a message, and he called me back. This was not a good sign. Did I commit some heinous faux pas in my new position as the Attendance Secretary that couldn’t wait until tomorrow to address?

 

No. It was about our son (17, autism) and an incident on the afternoon bus. Fortunately I knew what our principal was talking about, because Daniel’s para had already briefed me. Seems Daniel got quite upset with her during his off-campus Television Production class because she was, gasp, insisting that he do some of the project work himself. He quite often plays the helpless card, and she called him on it: “Who’s the student here? You! Who’s doing all the work? Me!” And he got very angry. He’s big, and she’s not, to put it mildly. But she would not be bullied (I love you, C!), and by the time they got on the bus to come back to school, he was in full contrition mode, but expressing it inappropriately, to say the least.

 

Daniel said loudly and clearly on the bus, “I AM SO MAD AT MYSELF, I SHOULD JUST KILL MYSELF!” C. calmed him down, but the bus driver rightly reported this to the Transportation Supervisor, who reported it to our principal. Who called me.

 

This was actually very comforting.  The adults in my son’s life were taking any suicide verbiage very seriously. The chain of command was followed. And our principal (Daniel’s and mine) was compassionate and concerned with me on the phone. (It helps in every way that he has a special ed background.) He did not express shock and horror that my son would say such a thing on a bus full of kids. He did not emphasize my responsibility to get control of my son (as if I could) to make sure that never happened again.

 

We are fortunate that Daniel does not have a depressive personality, and that outbursts like this are completely out of character. I can’t imagine a greater pain than desperately loving and parenting a child haunted by the darkness of depression. But if we have such a child at our school, and they cry out, they will be heard and engaged.  We did have a very serious conversation with Daniel about what not to say when you’re mad at yourself, and that he owed C. and the bus driver an apology, and that no, he wasn’t in trouble with the princpal. We ended the conversation with the principal’s closing words:

 

“Tell Daniel we love him and care about him.”

 

Danz Mom ~ Peggy

Small Things

Children who develop typically often slide effortlessly from one developmental milestone to the next. Those of us who parent a child with special needs are aware of the extra time and commitment it takes to help our children grow and develop. Our labors on their behalf make the tiniest glimpse of progress even sweeter. Jonathan’s baby steps of progress are a cause for celebration at our house. I am slowly learning that victory will be realized not only in the final moment of success, but in countless miniscule accomplishments along the way.

Jonathan can finally write his name! We have labored on this for more than a year. Handwriting has challenged his fine motor skills and learning differences as well as his ability to focus. But he has persevered and so have we and now we are celebrating! These days, I find his name written everywhere. In chalk on our driveway. In marker on our deck. On every page he colors. I love it.

It would be easy for me to focus on the fact that his peers have been writing their names for quite some time now. I could become discouraged. I could minimize this accomplishment as a little thing. In this context, the following verse convicts me.

“Who despises the day of small things?” Zechariah 4:10.

I ponder this question and realize the Bible is replete with examples of God delighting to take something with the appearance of smallness and do something enormous with it.

Like choosing one man with a speech impediment to speak on behalf of a nation of men.

Like using a young boy with one small stone to slay a giant.

Like stretching a small lunch of bread and fish for one to satisfy the hunger of thousands.

We serve a God of infinitely immense proportions. When we hand Him something insignificant, He often transforms it into something extraordinary. When He is in something, there is no such thing as nondescript. The baby steps of faith we take today do not go unnoticed by our Father. He is the One Who gives us grace to persevere in the tedious. He is with us in the midst of special needs. We can move forward with confidence in the knowledge that small things are of great use to Him. Nothing is ever wasted in God’s economy.

Embracing the small things,

~Rebekah

A Christmas Reminder

Now in the sixth month the angel Gabriel was sent from God to a city in Galilee called Nazareth, to a virgin engaged to a man whose name was Joseph, of the descendants of David; and the virgin’s name was Mary. And coming in, he said to her, “Greetings, favored one! The Lord is with you.” But she was very perplexed at this statement, and kept pondering what kind of salutation this was. The angel said to her, “Do not be afraid, Mary; for you have found favor with God. And behold, you will conceive in your womb and bear a son, and you shall name Him Jesus. He will be great and will be called the Son of the Most High; and the Lord God will give Him the throne of His father David; and He will reign over the house of Jacob forever, and His kingdom will have no end.” Mary said to the angel, “How can this be, since I am a virgin?” The angel answered and said to her, “The Holy Spirit will come upon you, and the power of the Most High will overshadow you; and for that reason the holy Child shall be called the Son of God. And behold, even your relative Elizabeth has also conceived a son in her old age; and she who was called barren is now in her sixth month. For nothing will be impossible with God.” And Mary said, “Behold, the bondslave of the Lord; may it be done to me according to your word.” And the angel departed from her. Luke 1:26-38

It blows my mind to imagine how Mary must have felt when that angel came to visit her, disrupted all of her plans, and turned her world on end. A young girl with her life ahead of her and suddenly everything she thought she knew changed. The perfect plan to get married and begin a life with her new husband suddenly was shot full of holes. Now there were so many more questions than answers. How could Mary even confide in anyone, because who would believe such a preposterous story of angels and immaculate conception? If anyone was ever a candidate for depression and anxiety, it was Mary!

But, God, in His infinite wisdom, knew what He was doing. He had already prepared Mary’s heart for this moment and her response was, “Behold, the bondslave of the Lord; may it be done to me according to your word.” Wow! What trust, what peace, what complete dependence on God!

As I ponder the events that make up the Christmas story, as I think of all of the people God used and continues to use in bringing His plan to pass, I am convicted by the obedience and trust of this teenage girl who gave it all over to God. In moments when I’m tempted to feel sorry for myself or overwhelmed by my circumstances, I need to remember the beauty and simplicity of the Christmas story. May I be able to say, “Behold, the bondslave of the Lord; may it be done to me according to Your Word.”

~Louise

 

 

Preparing My Heart

For to us a child is born, to us a son is given….he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace.  Isaiah 9:6

Recently, the truth of “let every heart prepare Him room” from “Joy to the World” penetrated my heart, soul and spirit.

I love Christmas and celebrating the birth of our Savior, but not necessarily everything that comes with it.  Those of us caring for loved ones who are not neuro-typical are often overwhelmed by daily life and sometimes Christmas just feels like adding MORE to my already stretched life.

I don’t think it is uncommon for Christians, affected by a hidden disability or not, to be extra stressed during this season. It is ironic though, while we are celebrating the arrival of the Prince of Peace.

I struggle each Christmas with worry and anxiety over our finances and buying presents for friends, family, teachers and members of my daughter’s therapeutic team.  Every year the list of whom I wish to express my gratitude grows and my finances remain the same at best.  So I try to be creative and find meaningful, less expensive or even homemade gifts, but that tends to only increase my stress!

A few years ago, while in the process of finding a new church following a move, we started the tradition of making an advent wreath.  We found advent readings online to read each Sunday and used the advent Daily Bread for daily readings.  We printed out coloring pages for my daughter to color while we read and made a children’s nativity set available for play. It was the first year that I felt I had truly prepared my heart to more fully celebrate the birth of Jesus.  My husband and I both agreed it was such a meaningful Christmas and pledged to continue the tradition.

We were a few days late making our advent wreath, readings and coloring pages this year and I was already in full worry mode.  But that first night we gathered around the table to light the candle and pray, “Come, Lord Jesus, fill our hearts with hope,” I felt the stress and worry melt away.

Of course the battle to remain focused on Jesus continues as the calendar is full with special Christmas events and extra items on my to-do-list, but I can honestly say that as we take time to focus on the true meaning of this sacred season, I experience the peace and joy that we as followers of Christ are meant to experience in the midst of our busy lives.  It takes some work and intentional planning, but it is such a blessing.

May you and your family find practical ways to “prepare Him room” this Christmas season so that you are filled with the peace and joy that comes from knowing and being in the presence of the Prince of Peace Himself.

In His peace,

~Lynn

 

Are Alcoholic Ancestors Still Stirring Your Pot?

While reviewing an edition of Scientific American as a teenager, I was startled to come across my surname.  There it was: “Hubble,” as in renowned astronomer “Edwin P. Hubble.” Now popularized by the Hubble Space Telescope named in his honor, Edwin P. was then mostly unknown outside scientific circles.

What if this brilliant scientist were a relative? I ran to ask my Dad if he knew.

“He sure is!” replied Dad.

As it turned out, we shared a multiple-great grandfather a couple of centuries ago, and Edwin was a distant cousin of my grandfather, Billy. Like Edwin, my Great-Grandfather Billy had some fame, but for dramatically different reasons.  Expert in maneuvering 1800′s logging wagons in North Carolina, Billy was renowned for spectacular DWI crashes of his horse-drawn cargo. “The family alcoholic,” said my teetotaling father, deeply averse to the destructive potential of liquor. In fact, what Billy brewed downline was a whole batch of teetotalers, several of whom were Baptist ministers.

So you would think, perhaps, that alcohol’s crippling impact was nipped with Billy, if his kids and grandkids steered clear of the stuff.  Yes, and no. Yes, the flow of alcohol was stymied. But research shows multi-generation emotional, psychological and relationship risks in addiction-wounded families.

What is known of male descendants of alcoholics is that they tend to be internalizing emotion-stuffers, learning in an alcohol-soaked family system to survive treacherous personalities by hiding emotionally, and sometimes physically. Thus my dear father was in many ways unknown and unknowable, as the wall around his heart made his truest thoughts and feelings inaccessible not only to others, but I think to himself. Those with such family histories can understand their own emotion and relationship wiring better if they scrutinize ripple effects of even one alcoholic (or other type addict) in the family tree.

The alcoholic himself or herself is often moody, even raging, under-responsible, often marginally employed, and toxic to others emotionally, physically or both.

All of which is personality distorting and risky for others in the family – even if they never touch a drop of alcohol. Under-responsibility in one family member shoves over-responsibility onto others. The spouse is commonly stuck with an overgrown
child at controls of the family power grid. The spouse may walk on eggshells, never knowing when some small event (or no event) will prove explosive. She (or he) may live in constant financial distress, traumatized and socially isolated. She may slide into her own dark world of depression, resentment, rage, anxiety and fear – all of which can give her children a second  radioactive parent.

Kids marinated in such toxic emotions and relationships are compelled not only to parent themselves but often to parent their parents. What kids from warm-hearted, stable families absorb by osmosis (emotional calibration, judicious decision making,
reciprocal relationships, building and sustaining mutually caring bonds, effective communication and conflict resolution) remain elusive to kids with a legacy of family alcoholism.

Why does it matter if you or I know this about our ancestries, or about the ancestries of others?  It explains a lot, doesn’t it? My Dad’s good heart, generous spirit, kindness, integrity and faithfulness in this context become major triumphs over forces that could have produced a raging, destructive, reactionary personality. His solitary ways and detachment seem more due to survival habits than a heart chilly to others, and such understanding deepened my love, admiration and compassion for him.

Before Dad “went Home” at the age of 76, we explored some of this history together. He was thrilled to learn from my research that his Grandfather Billy, at the end of his life “went to his grave happily, having come to know the Savior,” as a contemporaneous letter reported. Dad was also truly shocked to learn that two-thirds of a century earlier, his own internalizing, emotion-stuffing father had said to Dad’s sister: “If only the rest of you were like Ralph!” Mere months before he left this world, Dad learned that his unexpressive father had particular affection and admiration for him, a reality he had not intuited from his dad’s detached personality.

How I wish such warmth and care had been infused into my cherished father’s heart from childhood! But it wasn’t too late to soothe and nurture this septuagenarian heart with paternal affection for which every heart yearns.

And it’s not too late for me, and for you, to nurture hearts in our own families with expressions of affection, commitment and respect. Research shows that warm families inoculate parents and children, alike, from life trauma, and energize them for journeys ahead. Family warmth that is frequent, specific and has some intensity predicts stronger social relationships, marriages, employment patterns and emotional stability.

This health, social and economic insurance requires no act of Congress and no diversion of tax dollars.  With a little initiative, and as the Psalmist put it – a few “words well spoken” – life energy can be powerfully infused into treasured hearts, including our own.

LD Boomerang

“A brother offended is harder to be won than a strong city, and contentions are like the bars of a citadel.” Prov 18:19

The last couple of days have been painful. The cry-in-the-bathroom-where-no-one-can hear-you-kind of pain….but it’s not been all pain. In fact, I’ve just had one of the most amazing indirect boomerang kind of blessings – a direct result of one of my children’s learning disabilities.  If I can make it even slightly coherent, I want to share it because Jesus is so intricately amazing! In fact, Jesus is such a relief to think  about … He never misunderstands, is never impatient, never assumes the worst, never blames. He does not get distracted, and He does not discourage.

First, the backstory. I’ve hurt this year as a long term friend broke ties because of misunderstandings. And ministry was involved. (Yeah, this not the blessing part.) I’ve mourned, asked forgiveness, gotten counsel, spoken truth, sought restoration, asked the Lord for healing … but from what I can tell, the relationship is dead until Jesus resurrects it.

Complicated relationships are not new to me … hidden disabilities are spelled c-o-m-p-l-i-c-a-t-e-d.  But even with all “that” experience I’ve been beyond confused. What were my choices? Did I miss what Jesus wanted from me? What were NOT my issues? My Christian friendships are usually a steady arena for me. My brain was TIRED of it.

In a completely UNrelated event, one of our college kids came home for fall break (a misnomer for LD kids) totally snowed under with reading. I offered to skim a few skinny texts with thick words on ethics. How hard could it be to highlight the main points, and be a study partner?? Besides, Life is a constant study on ethics. Now granted, I’ve not made that offer to one of my college kids before … and I have to say, some 40 hrs of intense read-re-read-every-word-and-sentence-later, bogged down in “secondary causes and essential beings”  I wondered what possessed me to jump in the deep end.

BUT (and here’s the stunning part) in those two weekends of study and dialogue, the Lord systematically, logically, clearly, framed the whole confusing year of my hurting relationship, dividing into decision trees the critical junctions we had faced, helping me clarify my core values (personally and in ministry), pointing out my inconsistencies, while reinforcing my good choices.

And I just have to say,  I did NOT see that coming! After all the soul searching, prayer, counsel, Scripture, God decides to clear things up through my young adult’s learning disability. I am stunned. Clarified, but stunned.

Why do you say, “my way is hidden from the Lord, and the justice due me escapes the notice of my God”?… The Everlasting God, the Lord, the Creator … does not become weary or tired. HIS understanding is inscrutable [mysterious]. He gives strength to the weary [mentally, emotionally], and to him [or her] who lacks might He increases power.  Is 40: 27 – 29 (emphasis added)

Clarified and amazed,

~ Joan

 

Christmas Memories

Earlier this week Sarah did a wonderful post about making Christmas work around her home.  I had to smile because it brought back so many memories for me of what worked for us when our boys were younger.

One of the things that worked beautifully was that they had their own small tree that they got to decorate as they wanted.  We did construction paper linked chains, used candy canes and their own special ornaments.  Often their tree was so delightful and cheerful that I had to smile and think IT should be the “family” tree.

This picture is one of my favorite memories of that time. One of the things I learned early on was that the challenge was to manage, not control. I had to find creative ways to make things work and this was one I discovered that made everyone involved happy.

We have continued this tradition even as the boys have gotten older. Each year we give them an ornament that is a memory of that year in some way. That way when they leave home they will go with Christmas ornament memories of special things from their childhood.

One of the other traditions we borrowed from my sister, whose kids are a bit older than ours, is a birthday cake for Jesus. When they were little, and we were trying to make sure Jesus stayed the focus of Christmas, we baked a special cake for His birthday and celebrated and sang to Him on Christmas day.

What have YOU done in your home to make things work and be special in the Christmas season? I would love to hear from you.

Merry Christmas friends,

~ Shannon

Boy, Whispering

The title of this post is a bit incongruous. Ours is not a quiet family. My husband was raised by a family of hollerers. I was raised by a family of hollering thespians (including a trial lawyer and a talk-show host, who make their living by – yes, that’s right – TALKING). My father once joked his voice “could fill a cathedral.” I have been known to look at my husband and remind him, “Honey, you see me standing 18 inches away from you, right?” We’ve heard the neighbor’s dog barking three houses down when Grace utters one of her shrieks. Not a one of us knows how to keep our trap shut, or the volume down.

This includes Noah, who as an Aspie not only possesses little vocal volume control, but talks constantly. And by this I mean, ALL THE TIME. I have to laugh even as I write this. How like God to make certain that even my son’s particular disability fits so well into the construct of our immediate and extended family.

However, there are rare moments when Noah is conspicuously quiet. These are the moments that unnerve me most. His silence usually means his anxiety is sky rocketing, so I have learned to be on the lookout for the moments in which he doesn’t yammer, or yell, but whispers.

This morning we hit the floor running, as we always do. Kids to get to school, phone calls to take, appointments to schedule. It was the humming machinery of a busy family, that quickly became clogged with the frustrations that my husband and I expressed by yelling. Yelling that I hate, that makes me feel like a substandard facsimile of a mother. And yet when I’m pressed for time, or defied by the kids, or angry about something, it’s my default. I know all children despise it, but for Noah in particular, it causes his gut to churn with angst.

When we finally left the house for school, I stuffed him into the car and turned on some Christmas music. A feeble attempt to salvage the morning. Noah said quietly, “Phew. That was tetlectic.”

“What? What does that mean?”

“I made up my own language. It means crazy and loud.”

So there HAD been a reason he’d eaten his pop tart in total silence.

“You’re right, Noah, it was tetlectic. I’m so sorry about that. The day shouldn’t have started that way.”

“That’s okay mom. It’s just hard to handle when you first wake up.”

The truth is that it’s hard to handle at all. I wonder how much of what Noah says I haven’t truly heard because of my furious pace or my frustrated yelling. When he is quiet he is so much easier to manage. But it is often then that he’s suffering twice as much. His lowered voice, his averted eyes, his flapping hands – they scream to me that he is anxious and that he wants me to listen.

“The quiet words of the wise are more to be heeded than the shouts of a ruler of fools.” (Ecclesiastes 9:17). My son is wise beyond his years. I hear the Lord in him – even when he’s quiet.

- Sarah