Pulse of Praise

When you parent a three year-old with Autism, God gives you a full-ride scholarship to the school of prayer, and I find the lessons I am learning expressed most astutely in the poem “Gratefulness” by George Herbert (1593-1633).

In “Gratefulness,” Herbert implores God to give him a grateful heart, and then goes on to compare himself to a beggar who works on God with the skill of a professional panhandler. God never satisfies this beggar. He always asks for more. He even says that if he doesn’t get his current request, then all of God’s previous generosity would be useless.

Despite this, Herbert considers that when God chose to save sinners he took our poverty into account. Heaven is like a beautiful estate (I picture Downton Abbey!) with beggars perpetually knocking at the door and filling the beautiful rooms with tears, and yet God gives gifts continually.

Remarkably though, God does not begrudge the beggars. In one of my favorite lines, Herbert says, “Nay thou hast made a sigh and groan / Thy joys.” God has the perfect heavenly melodies of the angelic choir to enjoy, but he has chosen to love “country-airs”–rough, folksy songs of poor country people. God regards our weak, sigh-filled prayers with as much love as the worship of heavenly beings.

So, Herbert cries out again and again, refusing to be quieted, until God grants him a thankful heart. Clarifying his request, he writes in the final stanza: “Not thankful, when it pleaseth me; / As if thy blessings had spare days: / But such a heart, whose pulse may be / Thy praise.”

Jude, because of his Autism, fills our home with sighs and groans as he attempts to communicate with the words he doesn’t possess. Admittedly, as parents, we don’t always enjoy those moments, especially knowing that a meltdown might lie just around the corner.

However, our prayers take on much of the same character for “we do not know what to pray for as we ought” (Rom 8:26 ESV). Yet, God has chosen to make our feeble noise his joys as he fills the heavenly throne room with the prayers of the saints like incense billowing forth before him (cf. Rev 5:8; 8:3-4).

With such a God as this, how can we be anything other than grateful? So, let us not be grateful only when the situation pleases us. Even in the midst of hidden disability, may our hearts beat to a pulse of praise!

(If you would like to read more from Herbert, I recommend A Year with George Herbert by Jim Scott Orrick.)

“Oh, get over it!”

Yes, I’m ashamed to admit I said this to my son (autism, 17) yesterday when trying to teach him how to make hot dogs so he won’t starve when hubby and I leave for 8 days in Hawaii this week. My brother, sister-in-law and nephew are coming up from FL to “do” DC and stay with Dan while we are gone –  bless them! – but he may elect to stay home while they are sight-seeing, and I don’t want my sister-in-law to have to prepare something in advance for his lunch.

 

Now that we have completed all phases of “How to make my own breakfast,” a co-worker asked me, “so, what’s next?” Got me to thinking. What IS next? Dan doesn’t learn any independent skills until we decide it’s time, so what IS next? Made a list: how to make his bed from the bare mattress; scrubbing & rinsing his dishes and flatware and putting them in the diswasher; how to make hot dogs and fries.

 

Since the fries were microwavable, I decided to teach him the microwave method of doing hot dogs too. When he took the hot dogs out of the microwave, they were hot and he erupted. And that’s when I said those Mean Mommy words. As if he could “get over” autism.

 

He’s so high functioning (though not Asperger’s) that sometimes I forget he has autism, and am not sensitive to his sensitivities. I only have one more year to get this right - to teach him parent him, coach him – and then he’ll be graduating and gone. Lord, I need You to teach the teacher, parent ME, coach ME, forgive me.  And to do hot dog training right today. Amen.

 

Danz mom ~ Peggy

For My Fathers

Cami’s been writing acrostic poetry lately. I thought I’d give it a try for Fathers’ Day.

I am blessed beyond measure in the father category. My dad and I have always been close. “Pop” is still one of my favorite people to talk to. My husband is an amazing father to our daughter. For both of these precious men, Yahweh, the One True God, is their example, the Daddy they try to imitate in their daddy-ing here on earth.

What do all these fathers have in common? Effective fathers are:

Faithful For Your faithful love is as high as the heavens; Your faithfulness reaches to the clouds. Psalm 57:10

Available —Do not fear, for I am with you; do not be afraid, for I am your God. I will strengthen you; I will help you; I will hold on to you with My righteous right hand. Isaiah 41:10

TrustworthyFor the word of the Lord is right, and all His work is trustworthy. Psalm 33:4

Honest Into Your hand I entrust my spirit; You redeem me, Lord, God of truth. Psalm 31:5

Earnest I am Yahweh, that is My name; I will not give My glory to another, or my praise to idols. Isaiah 42:8

ReliableYet I call this to mind, and therefore I have hope: Because of the Lord’s faithful love we do not perish, for His mercies never end. They are new every morning; great is Your faithfulness! Lamentations 3:21-23

Thank you, Pop, for loving me well.

Thank you, Michael, for loving me and our girl well.

Thank You, Abba God, for loving us all well.

Humbled and blessed to be so loved,

Cassandra

Going Overboard

This post doesn’t have alot to do with my kiddo on the spectrum, but guess what – my whole life doesn’t revolve around that one piece!

In early May I was struck by the fact that my sweet little girl was turning four already! Time sure flies. We just brought her home from Russia, when we adopted her, three years ago. We have a small immediate family and every year our family birthday parties are even smaller because of half that small immediate family living out-of-state. I made a very quick decision this year to give Maella a birthday party with her preschool friends, at a local gymnastics center. It was a tough decision because I knew I’d go overboard. I love making it special for kids, they’re so appreciative and accepting and complimentary and they get so excited.

I said the decision was quick but I was tempted to not do it at all. It was the decision between go all out, or don’t do it. I had to choose if I’d split my time and efforts during the final couple weeks of school, when I was also going on field trips, attending class plays, helping out in classrooms, working on end-of-year projects, wrapping up IEP’s, planning ahead for summer schedules including in-home therapy, summer school and recreational programs, planning our family summer vacation, and more.

A week or so before I had to make that decision a family in our small community lost their little girl. She was hit by a car when she ran out into the road. It was a tragic accident, every parent’s nightmare. This certainly ran through my mind as I considered whether or not to spend efforts on doing the party.

I never seem to have enough time and I have to choose wisely what I’ll spend it doing. But I sure am glad I gave my little girl that birthday party. I did go overboard, and it’s ok. She had so much fun. It was wonderful seeing her open up with her friends, outside of the school walls. Before I can blink, she’s going to be another year older! My son’s enjoyed watching me prepare for it, and while I had out a barrage of craft supplies for her party they were all at the ready for the boys end-of-year projects!

Mom & Maella having fun in the foam block pit!

I hope you find something fun to go overboard on this summer! If you need ideas go to my favorite new website… pinterest. =) There’s so many ideas on there! Make some special summer treats, or an over the top fort outside, have a major water fight, a neighborhood kickball game WITH adults, and more!

Looking forward to going overboard on some things this summer, but also relaxing by the local pool for the better part… Kara

 

The End. (or Beginning…)

When my son was 3, he had a pair of loafers he did not like. “Can’t like it,” he declared determinedly.

He’s such an easy going guy, as a rule, it always feels a bit abrupt when he puts his foot down. But when he can’t like something, he can’t like it, and you aren’t going to change it.

Little did he know something was coming that he would “can’t like” 1000x more than those loafers. He had no clue, when we introduced ABC’s and 1,2,3’s (in those cute little picture books) how he would spend the next 16 of his now 22 years enduring environments so completely foreign to his God-given design (Man vs.Wild) such as sitting quietly in desks, studying books.

In addition, God had us on a strict “need to know” basis back then (which hasn’t changed, by the way) and apparently we did not need to know just how long or hard this educational journey would be. I can say (now) that was perfect wisdom. God knows there are things in our future we just don’t need to know, and if ever there was one, this was it. In fact, if our son’s bright little 5 yr old mind had peeked into his future and seen the relentless tiring restrictive academic career, he would’ve hit the road, taking himself as far away as his little 5 yr old legs could carry him. And perhaps I would not have been far behind ;) . Just sayin.

But it’s OVER!!! (I can hardly type the words for relief and delight!)

There was no end in sight, for so very long … SO very long … and now, wonder of all wonders, we are at The END, this very week, in 2012 A. D. (The Year of our Lord, Who does all things well, including helping him survive this). Our highly active ADD son has finished the race of school forever! (or as far as we can tell).

Unlike his mama, he has no sentimental feelings about leaving school. (He has feelings about school, alright, but none that fit in the “sentimental” category.) And he doesn’t need closure, like me. (The only closure he needs is for them to close the books on him and cut him free!)

In contrast, I want NBC, ABC, CBS, and CNN to announce it.

If you can relate to any part of this storyline, you know (without me telling you) he will NOT be walking any stage to get his degree – just mail it please, because the graduation ceremony would require more sitting (for a long time) more listening (to a long speech) while wearing more clothes (hot cap and gown). He did it once for high school, 4 years ago, and we were lucky to get pictures to prove it.

I will tell you this — God’s favor is on him, regardless of how misfit he was for desks and books. God will use what he had to learn to survive school. And I am convinced those lessons (that weren’t on any lesson plans) will aid him somehow, now that he’s free to follow his heart, his giftings.

May God confirm the work of his hands.

Well done, my ADD son!

Make us glad according to the days You have afflicted us, and the years we have seen evil. Let Your work appear to Your servants and Your majesty to their children. Let the favor of the Lord our God be upon us; and confirm for us the work of our hands;

Yes, confirm the work of our hands.

Psalm 90:15-17

Celebrating The End!

Joan

White Fang

Just call her Killer.

Matt and I have been accused of loving chaos. We must. It’s the only explanation I can muster for why we thought that chewed shoes, urine-saturated carpet, and incessant barking were missing elements in our already crowded lives. I bet if I’d have polled other parents of Aspies (especially those with other animals), or even parents with other kids – we’d have been told to flee the prospect of getting a puppy. Maybe it was baby fever. Two of our friends had just had babies. In fact, the night we picked our Texas Heeler, Zelda, out of the litter, we had just left the maternity ward at the hospital. I remember raising her sweet face to mine in the car ride home and cooing to Matt, “We have a baby!”

Never, EVER trust a woman with heaving hormones. She will prove to be convincing. And your ultimate undoing.

I love Zelda, but now my house is a war zone. The problem of Noah and Zelda keeps growing as they do. (You can read about its origins in “The Flow Down”.) They scrap and tussle, and one of them always ends up crying. We are animal lovers. We have two dogs, a fish, a guinea pig, and a horse to prove it. But Noah’s flailing, his screaming that “She’s killing me!” and his pathetic sobbing are just about to fry the last sane hair on my head. All I want to do is get the pork chops in the oven. Instead, I’m having to try my puppy for attempted manslaughter. FIFTY TIMES A DAY.

Here’s what it looks like.

“Kids, go outside and play with the dogs.”

Two minutes later, I pull back the sheer curtain to watch Noah lift Zelda off the ground by her jowls. She is growling the playful growl of puppyhood. He lets her down, and she leaps up at him, wagging her tail. I am silently thanking God she is a gentle soul, and running for the door to yell at Noah to be gentle (for the 459th time that day), but before I can make it, I watch him crouch to her level and extend his arm, which Zelda naturally bites. He pushes it in her mouth – back to the heaviest of her teeth – but when I pull open the door, Noah falls to the grass, looks up at me and starts his heartbreaking wail that “She’s biting me!!”

For the first few months, I thought we’d chosen the wrong dog, that she was naturally aggressive toward people. Then I observed her with my other children, and other than her increasing size (which is a threat to the smaller children only because she loves to jump up and kiss them, and in so doing, drops them to the floor), she is the most affectionate dog I’ve met. So why was the biting still an issue with Noah?

It wasn’t until today that I figured it out – why his stimming, his flapping and facial tics have slowed immensely in the past few weeks. Zelda’s heavy teeth are providing him the pressure his brain is looking for. There isn’t a need to flap when your arms are already “grounded” by your dog’s jaws. He has the bruises to show for it. (In that vein, I’d like to personally thank Noah’s teacher and the staff at his Christian school. Were Noah a student anywhere else, I’d probably have had social services on my doorstep already. Noah arms make it look like he’s been boxing with a rattlesnake).

So, what to do about my son, and the dog that obliges him with her teeth? Well, that’s where I am now. I guess today’s victory is simply in having located Noah’s lock. Now I have to find the key.

In the meantime, I’m going to troll eBay for a padded suit.

- Sarah

GOD HAS A PLAN!

It can be a challenge to raise children in general but hidden disabilities really kicks that up a notch or two. In some ways I love that God has chosen me to rise to that challenge although other days I must admit that I think God has more faith in me than I think I deserve.

I know that God has a plan for me and my family and it is a great plan. He knows my children’s gifts and their challenges and He will perfect in them His will if they will submit to Him.

It is my job as a mom to model real Christianity to them. To love them and teach them about God’s love and how His love is perfect and will meet their needs. It is hard to teach children to be grateful and thank God for all things in a world that is full of discontent, ingratitude and complaint. I can’t make them love the Lord with all of their hearts but I can model what that looks like and pray that it is so attractive that they will seek that for their own lives.

Deuteronomy 6:5-9 says:  “Love the Lord your God with all your heart and with all your soul and with all your strength. These commandments that I give you today are to be upon your hearts. Impress them on your children. Talk about them when you sit at home and when you walk along the road, when you lie down and when you get up. Tie them as symbols on your hands and bind them on your foreheads. Write them on the door frames of your houses and on your gates.”

Oh Lord, may I follow your instructions and teach my children all that you have taught me. I pray above all else that my children will learn that you love them and you want what is best for them, which is their eternal good not their present happiness and that when they submit to you and accept this they will experience true joy.

~ Twyla

The Gift of Procrastination

I have to confess that I am a procrastinator. If it can be put off until tomorrow, it will be. Deadlines were created for people like me. If something needs to be done, then give me a hard, firm deadline. Don’t ask me to do something if you aren’t going to tell me when you need it. I’m convinced there have been times we’ve had company over just so the house would get cleaned. My best work is done by a ticking clock. It is not something of which I am proud, but something that I recognize and accept in my life. I work around it. But I want more for my children.

I know this is one of the main reasons homeschooling didn’t work out for us. It is also the reason that I cannot be solely responsible for their summer reading and homework assignments. When I am overseeing them, there is badgering and reminding, but not much progress. When dad is in charge, there is a plan and a calendar. There is a system and progress. I am not writing this to make you think I feel sorry for myself, but to help you understand that as it is not my gift. And, it may not be your particular gift to organize and oversee everything either, and if it isn’t, that is okay. You are who God created you to be. If those are not your gifts, find someone who can help you or your child make those plans and provide the accountability needed to see the plan through.

By the end of the summer (which around here will be August 1), Stephen needs to have four books read and a packet of German done. If it were left to me, he would be cramming it all in the last few days of his summer break. But, I’m going to call in the one in our house who is gifted with planning and organization and have him help Stephen develop a plan for the summer that will culminate in Stephen being finished with the work and ready to begin school right where he should be—prepared. And me, not stressed about it.

~ Louise

On Strength and Weakness

There is a popular song on the radio now with an upbeat chorus that repeats, “what doesn’t kill you makes you stronger….”  It’s a catchy melody, and I find myself humming this tune at odd times.  I’ve even taken to obnoxiously singing these words to my kids when they begin to complain about things I’ve asked them to do.

 

“What doesn’t kill you makes you stronger.”  This is such a common cliche.  But the more I’ve been thinking about it, I’m not sure it’s true.

 

When I first started experiencing trials, in my late twenties, I DID feel that trials made me stronger.  As a young adult, these trials were some of my first life experiences, and I learned from them.  I learned about faith, about God, and I learned about the need for support in my community.  These early trials taught me about my own tendencies in responding to difficulties.  In learning about myself, I learned about God.  I DID grow stronger.

But I am no longer in my twenties.  As a seasoned wife and mother in her forties, I feel far more fragile than I did when I was twenty.  I no longer experience trials in the same way that I did when I was younger.  The trials in my life no longer serve to make me stronger.  They’ve left me feeling weak, beaten down, occasionally defeated … but they have always left me more dependent.  My trials make me dependent on others … doctors, kind friends and neighbors, therapists, caregivers … most importantly, my trials also make me more dependent on God.  They do not make ME stronger.  They make me stronger IN HIM.

“When I am weak then He is strong.”

2 Cor 12:9

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.

 

Lord, I pray that the trials of hidden disabilities and all that we experience bring us closer to you.  I pray that we become more dependent, and even more thankful for our trials, as they are a way that You help us to fall at your feet and bring you glory.  May we grow stronger, not in ourselves, but in You.

 

~Nancy

A Promise of Home

My family just did something crazy.

We took our dog, one audio book, lots of good music, and snacks and drove through seven states, traveling 2, 581 miles in 14 days’ time. We visited long-time close family friends with kids with hidden disabilities who are brilliant young adults now. We visited with two cousins, five uncles, four aunts, four grandparents, and two great-grandparents from both sides of our family. We went to the beach and to the mountains. All in the span of two weeks.

A Rainbow on I-40 in Tennessee on the Way Home

It was a good trip, loving on people we only see every once in awhile, letting them love on us. The last time we saw most of these folks, Cami was three years younger and many inches shorter. When you see someone day after day, you don’t realize how much they change and how quickly. I watched our extended family expect to see little-girl Cami—who couldn’t control her emotions or express her frustration in a socially-appropriate manner, who couldn’t read or write, who couldn’t successfully navigate the space around her. Yet on this trip, our family met young-lady Cami—tall, slim, poised and polite, writing and illustrating her own novel, coping with constant noise and hullabaloo more successfully than her mom.

Our Family in Destin, Florida

Several family members remarked how well we’ve done raising Cami and schooling her. Those comments flabbergast me because we struggle so much. It doesn’t feel like we’re succeeding at anything.

It’s all God’s grace:

His mercy expressed through His promises to us in His word.
His provision for us through encouragement and counsel from other parents who walk ahead of us on this same road.
His purpose for us as we shout encouragement and counsel to those families behind us on this road.
The privilege to watch Him craft an amazing young woman out of someone who used to be a confused, frightened, frustrated little girl.

If we have any success,

it’s all Jesus,

transforming three messy broken individuals

into a life-filled place,

into a home.

 

Our Family, Blue Ridge Parkway in Virginia

It’s a blessing to be one of His Chosen Families.

Cassandra