Finding God in the Deafening Drama

storm rage calms childSometimes I feel like I live in a war zone. I hope saying that is not offensive to those who really have loved ones living there. I mean no offense.

But sometimes the level of emotional volume in our home is just overwhelming. It is loud. It is hair trigger. There is no letting go of the little things. My goodness… there ARE no little things. Every issue is a mountain. Sometimes I wish for a few mole hills.

Sometimes I long for a “normal” family – whatever that means. You know the kind.  The ones who sit quietly in a restaurant, napkins in their laps, having polite conversation. Or how about the ones who cheer for each other at various sports events? What about those who attend band concerts or ballet or drama?

No, our drama is way louder and more, well, more dramatic.

And it is emotionally exhausting.

I find myself sometimes wishing time away and I know that is not a wise response. I try to tell myself that I will miss these days. But will I? Will I miss the drama and the loudness and the hair trigger?

Somehow I don’t think so.

It affects the entire family dynamic.  And I don’t know how to change that.

Then an hour passes and a boy/man embraces and apologizes.

How can we come to the place of catching it BEFORE the drama?  Is that ever going to be possible?

I find myself needing a vacation. And when does that ever happen? I want family time… but what I WANT family time to be… what I WISH family time was.  Not what it is.  Because what it is is exhausting and draining.

I am not sure of the answers. I tell myself to find rest in the Lord. What would HE do in the midst of the drama? Certainly He is here too.  But sometimes I find it hard to hear His still, small voice.

I know it must be there but it can get lost in the deafening noise.

And then this morning when I awoke in the quiet, I heard this in my heart:

1 God is our refuge and strength, A very present help in trouble.
2 Therefore we will not fear, though the earth should change And though the mountains slip into the heart of the sea;
3 Though its waters roar and foam, Though the mountains quake at its swelling pride. Selah.

4 There is a river whose streams make glad the city of God, The holy dwelling places of the Most High.
5 God is in the midst of her, she will not be moved; God will help her when morning dawns.
6 The nations made an uproar, the kingdoms tottered; He raised His voice, the earth melted.
7 The Lord of hosts is with us; The God of Jacob is our stronghold. Selah.

8 Come, behold the works of the Lord, Who has wrought desolations in the earth.
9 He makes wars to cease to the end of the earth; He breaks the bow and cuts the spear in two;
He burns the chariots with fire.
10 “Cease striving and know that I am God; I will be exalted among the nations, I will be exalted in the earth.”
11 The Lord of hosts is with us; The God of Jacob is our stronghold. Selah.
Psalm 46

God, I need to hear you in the deafening roar. Quiet me. Calm me. You are my refuge and strength. You are my present help in trouble.  You are my stronghold.  I need to hear your voice.

Listening,

Hannah

Contact: Hannah@chosenfamilies.org

Living with the Fear of Loss

God is all you have... what you needLike many believers across the world, I have grieved this week for Rick and Kay Warren.  The loss of their son, Matthew, is beyond sad.  I do not really know the Warrens except through their public ministry but still grieve for them.

In the midst of a wave of emotion I am struck with the reality that part of that grief is a familiar fear. Living with a child with bipolar disorder raises a specter of emotions most parents never even consider. What parent of a typical child has to consider the possibility of their child taking his own life? It is unimaginable, unspeakable. But when you live with bipolar disorder, major depression, or borderline personality disorder, it is a very real fear. It is even a reasonable fear. Sadly, it is a real possibility.

I know living with anxiety and fear is not God’s plan.  Frankly, most of the things we worry about never happen.  I know He wants me to trust Him with the future.  I also know that my husband and I won’t always be there with Jack so trusting God’s abundant care and love for him is critical.  We may be able to protect him while he is in our home but the day will come when he will no longer live with us.  And that day is approaching quickly.

I asked our family counselor years ago how to deal with this.  He reminded me of the scene in the movie, Apollo 13.  You remember this scene?   Here is what our counselor said should be our theme: “Not on my watch.”  We can take measures to protect him today.  We can take steps to prepare him for the day he will feel overwrought and hopeless when we are not there.  We can seek to connect him to a God who loved Jack with His very life.

I know three pastors’ families who have lost a child to their mental illness.  The Warrens are the latest family to grieve this unimaginable loss.  I am confident each of these families did all we have tried to do to protect their children.  It is this reality that raises the specter of fear.  A real fear.  A possible fear.

But ultimately, I have come to the place of accepting that I cannot control this any more than I can control our son’s journey in other ways.  There will likely come a day when he is overwhelmed with his life and considers ending it all.  It will happen no matter what we have done to prepare him.  Ultimately I cannot control these things.

How can we prepare him for that day?  We walk and talk with him about the love of the Father.  We teach him about the great leaders of old, their suffering, and how God used them.  We remind him that God created him for a purpose.

And what about our hearts?  How do we prepare our hearts?

We don’t.  I am sure these beloved pastors’ families who have lost children to their illnesses would tell us there is no preparation for that day.  The only preparation is to walk with God TODAY.  He is here with us.  He never leaves or forsakes us.  And if we ever face that awful day He will be there also.  He will be there with his nail-pierced hands to embrace us.  Just as I am sure He is embracing the hearts of the Warren family now.

This is all I know.  And for today, it is all I need.

Hannah

 

Getting Ready to Launch

When our son was diagnosed with early onset bipolar disorder many years ago we could not foresee this day.  We were living in fairly significant chaos and had so many questions.  But here we are over a decade later and he is in his senior year.  Wow.  Where did the time go?  I know this is a universal Mom question of seniors everywhere.

So in these days of Senior year, we are in the throes of final lessons before launch.  There are many typical things on that list:

  • Money management
  • Time management
  • The importance of spiritual connections – church, Bible studies, Christian friends
  • Healthy eating and exercise
  • The importance of rest
  • The importance of laughter (we love What about Bob?, Groundhog Day, I Love Lucy, Get Smart. and other movies that make us laugh)
  • The importance of taking responsibility for your choices and actions

But there are some other lessons that are not so typical:

  • Medication management
  • How to respond to the questions of others – using discernment and discretion about how much to share and with whom
  • The importance of asking for help if he is feeling off or unstable
  • The importance of staying connected when he might tend to disconnect under stress
  • The need for a backup plan if he needs help

We have worked hard for years to make Jack’s life as “normal” as possible.  But in some ways, his life simply isn’t normal — no matter how much we try to make it so.  He is old enough now to begin to appreciate that reality.  We have had many a conversation over these years about how he wishes he was just like the other kids; but there is a growing and deep understanding that he is not.  And in some ways, he likes that.

He understands there are blessings to his unusual journey – a deep faith in God that comes from adversity, an uncommon resilience for one so young, an empathy for those who suffer.

I am excited about these next steps in his life.  Honestly however, I am also a little bit in a panic over them!  I smile as I type that.  I know many Moms worry a little as they send their baby off to college.  There will be mistakes.  There will be stumblings.  That is typical for one who is growing up.  Those of us with special kids just have a few more reasons for concern and reminders to pray that all the lessons will come back.

I am reminded of this song we loved from Rack, Shack, and Benny (Veggie Tales) when he was young.  As parents this is our greatest prayer – that our children hold true to the things we have taught them.

We know college launch is just one step in the process of moving toward independence.  There will be many more steps in the coming years.  We are grateful for God’s presence with us each step along the way and rest in the assurance He will be with Jack in the days to come — just like He has over these early years.  That is something to stand up and believe in!

Hopefully,

Hannah

 

Major Mother Fail

There are times I write to share some idea.  Times I write to share lessons learned.  Today I write to share a major mother fail.

I wish it were not so but it is.

My son’s perspective on life is mostly dark.  While he has a Bipolar NOS diagnosis because he is a rapid cycler and can experience both mania and depression simultaneously, his overall perspective on life tends toward darkness.

To be painfully honest, I find it difficult at times to separate from his darkness.

Yesterday we were coming home from a movie.  You would think this a fun experience that would put him in a good mood, if moods had anything to do with circumstances.  But often with bipolar disorder, moods have nothing to do with circumstances.  If I understood it, I could retire to Hawaii.  But I don’t.  I just accept it.

I asked him to get directions to head back home and he did — only his gps told us it was 1.4 miles away.  I knew this was inaccurate — we were easily 20 miles from home.  So I asked him to put the address in again and see what it said.

This was the beginning of the meltdown.

Yes, I know.  Over that?  You are kidding?

I wish I were.  Only, this story isn’t about his failure.  It is about mine.

He began to meltdown and I could see it spinning out of control.  His voice was raised (in our car, mind you) and his words becoming more aggressive.  He turned to cursing me very quickly and I initially responded with a calm, reasoning voice.

He continued to curse and blame and then I snapped.  I said something I never thought would cross my lips: “I am not the one with a bipolar and Asperger diagnosis.  I am not the one who is insane.”

The instant those words left my mouth I felt conviction.  How could I utter such hateful words???

His response was predictable.  He melted down more.  He cursed more.  He threatened more.

I sat in silence.

Then this:  “I am sorry, Jack.  I was wrong to say that to you.  There is no excuse for my responding that way to you.  I was wrong.”

He continued for a few more minutes as I drove in silence.  Then he became quiet, sullen.

After a few minutes he commented that he did not know why he melted down over such a silly thing.  And he hated it.  And he didn’t know how to stop it.

I sat thinking of my own failure.  I don’t have bipolar disorder yet I sinned in this moment.  I had to seek forgiveness from him and God.  I needed grace also.

Fortunately, there is an abundant supply.

And today is a new day with new mercies.

I am so grateful for that.

Hannah

 

Sticks, stones and words…

I was grateful for Joan’s post, Admitting Abuse, last week.  She touched on an issue that our family has struggled to address.  Addressing this issue with a child is different than with a spouse.  But I am so aware that how we address this issue in our son’s life will affect how he is as a husband and father one day.

No pressure.

I always try to look at the blessed side of an early diagnosis.  It is sad for your child to have his identity wrapped up in an early diagnosis.  But I have noted two specific blessings.  The first is that he has grown up with meds as part of his life so I don’t fear his deciding one day in his late teens or twenties that he doesn’t need them. There is no question in his mind that he benefits from them.

The other blessing is we addressed some of the early challenges of living with bipolar disorder when he was 1/2 my size.

This particular blessing plays into the follow up to Joan’s post last week.

We confronted the issue of abuse in our home very early.  Jack is the older sibling and in the early days of his journey he could get very out of control at times.  Sibling rivalry is as old as the sun but the level of the exchange can be unusually heated when you throw in unmanaged bipolar disorder.  So those early days when we were trying to establish medical stability were very difficult.  On more than one occasion I had to physically remove this child from his younger brother when he had thrown him to the ground and was assaulting him.

I will never forget a particularly painful conversation after one of these altercations.  When calm had been restored I sat down with my then eight year old son.  I made absolutely clear that if he ever hurt his brother he would no longer live in our home.  Period.  No questions.  No discussion.  This was a hard, fast boundary that was immovable.

It mattered.

What I learned in that moment and the months to follow was the importance of that one very painful exchange.  (What mother wants to ever say this to her beloved child?  How will it affect his security?  How will it affect his understanding of our unconditional love for him?)

The good news is this: It registered.  He heard me.  He understood that I was serious.  And it never happened again.

Oh there were the verbal altercations but there was never another physical altercation like the one that precipitated that discussion.

I am grateful we addressed that early.

But we are still on this road.  We still have to address the abuse issue.  It is just verbal now.

I so agree with Joan that it is hard to know where the lines of sin and disability and choice intersect. Only God understands where those exact lines are drawn.  All we can do as parents is to work to address the issues before us whether we understand all the nuances or not.

So today, we address the verbal issues… the harsh tone, the harsh words, the abrupt interruptions. These we are still working on.

I am told from other dear friends parenting teenagers that they deal with these challenges as well. It is just kicked up a notch when you throw bipolar disorder into the mix.

So here are a few thoughts for those of us parenting children with bipolar disorder and struggling to address the abuse issue in word or deed.

  1. Never allow physical abusiveness.  Ever.  You do not have to tolerate it and the child has to learn other means of expressing extreme emotions.  I have known parents who had to call the police when their teenage sons became physically aggressive.  That is something I have never had to do but have born in mind at moments when it looked like it might become necessary. (Keep in mind my son is no longer 1/2 my size.)
  2. Do not try to address these issues in the middle of a crisis moment.  Be safe. Walk away if necessary.  You don’t have to address every issue at the moment.  But, you MUST address them in the quiet moments that eventually follow. When the remorse comes (and in our experience, it always does) use that moment to continue to teach appropriate responses in those moments of seemingly overwhelming emotion.
  3. Have a backup plan.  Know when to seek help.  We are blessed to be a couple addressing these concerns.  At times I will go to my husband and let him know I need a walk or some other break.  We have learned when one of us asks, it counts as tag – you are in and I am out.  Know when you need to do so. If you are a single parent addressing these concerns, have a couple of people you can call who will come immediately when you do.
  4. Know this is a long road.  I would love to say that we have figured this one out.  But we are still in the process of learning and teaching.  We continue to have to lean heavily into God in the moments of verbal crisis that still occur.
  5. Keep the end in mind.  The end that constantly drives me is the awareness that I want my eventual daughter-in-law and potential grandchildren (assuming they are in our future) to bless us for having addressed this.  When I am tempted to just give it a pass and avoid the conflict, I remember this young woman.  I pray for her.  And I pray for us as we continue to work this challenging area with our son.

I don’t have all the answers.  I wish I did. But I continue to pray for wisdom for us and grace and growth for our son.  God is at work in him and us.  “The LORD will perfect that which concerneth me: thy mercy, O LORD, endureth for ever: forsake not the works of thine own hands.”  (Psalm 138:8)

His handiwork,

Hannah

Winter in our Hearts

I realized today it has been several months since I posted to Chosen Families.  I am sorry to be out of touch.   I last posted the end of October.  And reflecting on that, it isn’t surprising.

The season between November and March is our most difficult time of year.  It is that way every year.  Jack’s doctor tells me this is typical.

As the days grow shorter, the moods tend to grow darker.  While Jack is doing better managing as he matures, there is still a different “feel” to our home than other seasons.  I have always heard it said that the Mom sets the tone in a home.  I don’t really find that to be true in our home, despite my best efforts.  Our son, with his bipolar diagnosis, tends to set the tone in our home.

Oh don’t get me wrong, we have all learned to adjust and manage during these darker seasons.  But we are responding to HIM.  We are powerless to control the tone in our home.  We simply are required to trust the Lord and ride the wave until the season passes.

If you live this life with bipolar, you know what I mean.  If you do not, I am not sure I can explain it to you.  It is like winter in our hearts.  It is cold and dark.  It is sad that this season covers Thanksgiving, Christmas, New Year, and Valentine’s Day.  We still celebrate those holidays, I just wonder what it would be like to do so in a typical home.

But we have been doing this for awhile now.   And God has been faithful.  There are treasures hidden in the darkness, as Joan reminds me.

And today, this reminder:

6 Blessed be the LORD, Because He has heard the voice of my supplication.
7 The LORD is my strength and my shield; My heart trusts in Him, and I am helped; Therefore my heart exults, And with my song I shall thank Him.
8 The LORD is their strength, And He is a saving defense to His anointed.
9 Save Your people and bless Your inheritance; Be their shepherd also, and carry them forever.  Psalm 28: 6-9

God is so faithful to carry us through Winter’s dark season.  He brings peace and joy in the stark barrenness.  And the good news after Winter?  Spring always comes.  As faithful as the sunrise.  I am so grateful to Him for that.

With trusting heart,

~Hannah

Sweet moments with my son

I had a sweet moment with my son this morning. This boy who is more of a man than a boy now.

We were both up early.  Me for my normal morning routine.  Him for his first breakfast before going back to bed on a lazy Saturday morning.  He was getting his meds and a conversation began.  I am not sure exactly how it happened but we began to talk about those early days before meds.

Those were chaotic days.  Lots of huge emotions.  Raging, panic, paranoia, giddy laughter – you name it, we experienced it at the extremes of your imagination.

This morning that seems so very far away.  I am looking at my boy-man, bigger than me, leaning over to hug me.

I told him about how we came to his current med mix. It was a journey, as it often is, of trying one med, seeing some benefit but still not stable.  Then trying another med.  Frankly, I am a believer that it is as much art as science.  I know this part is what makes many think this is not actually medical/scientific but much more spiritual/behavioral.

Their thoughts don’t actually matter much to me right now.  The reality is that we were in such crisis and God extended His grace to our family through medication.

And today, I look at this bigger than life boy-man and think he is growing up well.  He is learning to manage his life challenge.  We still hit bumps in the road – some louder and more disruptive than others (what Mom of a teenager would not say the same?)

But today, I am grateful for how far we have come.  I look with anticipation to see how God will continue to carry us in our  journey together.  He is so faithful.

Grateful for many things,

~ Hannah

Sometimes Bob eats at our house

Table manners are not a strong suit for my son. He tends to be a picky eater. But on occasion, when he enjoys his food the noises he makes can make me a little crazy. It reminds me of the movie, What About Bob, starring Bill Murray as Bob.

Sometimes I sit through lunch and can see this scene from the movie in my mind. It helps to find humor instead of worrying so much about teaching proper table manners.

I will keep trying to teach good table manners. But sometimes I just have to let it go and be glad he enjoys his meal.

Smiling,

~ Hannah

Change and Anxiety

For children with bipolar disorder or anxiety issues change can be tough. And the first week of a new school year is filled with exactly that: C.H.A.N.G.E. and lots of it.

There is a new schedule, new teachers, new courses, new homework, new activities, new lunch periods, and every other conceivable “new” that goes with a new school year.

This is stressful for many kids but particularly challenging for a kid with bipolar disorder who tends to experience all emotions at a heightened level.

The good news is this. It gets better. The anxiety of a new school year used to eat us alive for the first week or ten days of a new year. Now, it is a little heightened but more manageable.

The boy is growing up.

I don’t know about you, but that gives me great hope. Great hope for a good year. Great hope for college or career preparation. Great hope for life beyond our home.

The Lord is faithful to provide in seasons of change. And isn’t that so much what life is about? Change is part of our human existence. Not that all change is good. But all change is not bad either. It is like the rest of life. Some is good. Some is bad. But God is always present no matter which it is.

That is a good word.

Do not fear, for I am with you; Do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you, Surely I will uphold you with My righteous right hand. Isaiah 41: 10

It is important to remind our children (and ourselves) when they face change that God is always the same – yesterday, today and forever. HE does not change even if everything else around us does. Jesus Christ is the same yesterday and today and forever. Hebrews 13: 8

Good news.

Grateful for the unchangeable God,

~ Hannah

Speechless

Sometimes there are just no words.  I am left speechless.  I could end this commentary right there and many of you would understand.  Still, a bit more information might be helpful.

There are times when my son’s disabilities create really difficult challenges and circumstances for him.  Sometimes I can change things.  Sometimes I can improve things.  Sometimes I just have to allow him to suffer through the situation, praying wildly that God will intervene in his heart to protect him.

We hit another one of these experiences this week.  Our son went to camp – should be a fun experience right?  Yes, one would think.

But our son struggles socially so these camp “opportunities” while critical to his growth of skills can be cruelly painful.  Such has been this week.

He called last evening, very distressed and wanting me to come get him.  The short version of the story is that he has been bullied all week.  I know enough about my son’s social ineptitude to know that he may have provoked certain circumstances.  Even still, the bullying he has dealt with this week is so unacceptable.

The attitude among many is “this is just kid stuff … he has to learn to deal with it.”  Clearly there is some truth to that.

But the reality is, this kid has so much on his plate to “deal with” that his capacity to deal with yet another thing can be a little maxed out at times.

The struggle: when to intervene … when to let him struggle and work it through.

As he has gotten older we have let go a little of the protection we have provided, seeking to have him struggle through and manage things on his own.  We believe this is the right thing to do to prepare him for life beyond our home.

With this in mind, I told him I was confident he could manage the situation, coached him through steps to take, talked with the camp counselor, and got off the phone sorely distressed.

Here I am 15 hours later and still distressed.  I have prayed.  I continue to pray.

My heart is grieved.

I wrote a friend this morning about my distress.  She sent me a lovely prayer for my son.

Lord, please immediately raise up the leadership at the camp to intervene on Jack’s behalf.  Move in the hearts of the campers to show love and support to Jack.  Convict those who did wrong and move them to apologize to Jack, sincerely. Don’t let this go uncorrected Lord. Make this something beautiful Lord, as You are ABLE to do.  Take those sticks, and the taunting and bullying and [make them] disappear; in their place put Your loving, comforting arms around Jack. Above all, impress deeply upon Jack’s spirit that You love him, unceasingly, no matter what the world throws at him. Thank you for Hannah’s amazing bravery right now.  Keep holding her up till her precious one comes home. It is difficult to accept the pain in our children’s lives, Lord.  It hurts us so. It seems so unfair.  Yet we TRUST in YOU, You are writing their stories and we trust and cling to You, because you are only good, and loving, and kind, You are our Father.  Amen

Amen.

~ Hannah