Sometimes I’m Slow

Three years ago when my oldest son married and moved out of our home I was embarrassed to realize how little he could do for himself. He couldn’t cook … anything. He couldn’t wash his own clothes. And, we won’t even get into money management. I don’t blame him for those deficits—I hold myself responsible because those are things I should have taught him to do before he left the nest.

At that point I decided that all of our children should learn some basic self-sufficiency. So, they were going to begin getting up to an alarm clock, preparing their own school lunches, washing their own laundry, and we would increase the amount of their allowances to give them enough spending money to pay for their own snacks on the way home from school if they wanted them.

I should also tell you that I am not a morning person, so I don’t do well with getting up and preparing breakfast for the family before school. If there is going to be a family breakfast, it will be prepared by my husband who rises with the roosters (most mornings). But, most mornings it is more of a fend for yourself kind of thing. That is where this story really begins.

Stephen (our almost 16 year old son with AS) sets his alarm and gets up at 5:30 every school morning. The rest of the house is quiet. He does this so that he can take a leisurely shower (and steal all the hot water, even though he would never admit that.) After he showers and dresses he goes to the kitchen to prepare for breakfast. First he decides what to have for breakfast. I think he usually has frozen waffles. But, this morning we were out of frozen waffles and he had to use leftover homemade waffles. He begrudgingly prepared and ate them. But, as a result of the deviation from the routine it was 6:55 and he was just finishing his breakfast. Lunch had not been prepared and he had not yet brushed his teeth. (He can’t figure out what happens to all of the time—almost 1 ½ hours to shower, dress and eat!) He and his father usually leave for school between 7:00 and 7:15.

Normally, I would have stepped in to help save the day. But, after a discussion we had yesterday about how mom always helps him when he is short on time, I decided he had no reason to change his behavior. So, today when he commented that I could help him, I said, “no, I’m not going to.” To which he jokingly replied, “Why, because you don’t love me?” And I answered, “Because I DO love you!”

Sometimes I’m slow to learn, but I do eventually get it! It took 18 years with my first son. But, now, I think I get it.

~ Louise

There is a Time for Everything

I have always loved this passage from Ecclesiastes 3:

1 There is an appointed time for everything. And there is a time for every event under heaven-

2 A time to give birth and a time to die; A time to plant and a time to uproot what is planted.

3 A time to kill and a time to heal; A time to tear down and a time to build up.

4 A time to weep and a time to laugh; A time to mourn and a time to dance.

5 A time to throw stones and a time to gather stones; A time to embrace and a time to shun embracing.

6 A time to search and a time to give up as lost; A time to keep and a time to throw away.

7 A time to tear apart and a time to sew together; A time to be silent and a time to speak.

8 A time to love and a time to hate; A time for war and a time for peace.

As we are in this particular season of our lives I feel like I should add another “time” for my son. It would be something like this, “A time to do your school work and a time to study; A time to learn and a time to reinforce what you have learned.” What he wishes it said was, “A time to rest and watch movies; A time to be carefree and a time to enjoy your free time.” But, as we struggle to keep up with current homework and turn in past due assignments that time is not now…there is no “free time.”

It is a difficult transition from childhood to the responsibility of young adulthood and not one that has been made easily by our Aspie. He enjoys playing and doesn’t enjoy the confines of school work and studying. After spending seven hours of his day in school, he doesn’t want to come home and spend three more hours sitting with textbooks open in front of him. I can’t say I blame him. I often think, if he can just get through high school (and now add to that college—whatever that is going to look like), then he can find a job that will be perfectly suited to his disposition.

So, I go back to this passage and trust God. There IS a time for everything. Right now is the time for school. As painful as it may be for both of us at times, we will make it through. When it is time for college, we will trust Him to guide us in the right path. When it is time for Stephen to find a job, we will trust God to provide for him then, in the appointed time.

~Louise

 

Sticks & Stones

When I was a mother of a young child working at a preschool I was stunned to see in person how cruel three year old children could be to one another. Two little girls were playing together and not allowing a third girl to join in. They ran away singing “nah, nah, nah, boo, boo, you can’t catch us” as the unwelcome follower cried running along behind. It was heartbreaking to witness. I was so impacted that my children were forever forbidden from singing that little chant under any circumstances…ever (perhaps an overreaction, but it really left an impression on me.)

As my children have grown up I have tried to teach them to be sensitive about their use of words. Words have meanings and we sometimes use them carelessly and in doing so offend people needlessly. Such was the case recently when an author and radio personality used the word “retard” to refer to someone she disagreed with politically. Many times I hear people (of all ages) use that word in a negative or joking manner to refer to someone or their behavior. It is up to us as parents and advocates for those with hidden disabilities (who are many times referred to as “retards” by uninformed people regardless of their intellectual capacity or diagnosis) to take a stand and let our society know that it isn’t okay to callously use this word as an insult or joke.

As we educate and inform our friends and families about hidden disabilities, let’s go a little further and correct the misconception that using a word like “retard” in a joking or insulting manner is acceptable. It is no more acceptable in that regard than any of the words we have barred from general use referring to one’s racial heritage, religious affiliation or physical disabilities. Let us make good use of our words and honor God as we do.

“Therefore exhort one another, and build each other up,…” I Thess. 5:11

~Louise

 

Testing & Accommodations

Fall PSAT testing is over and as usual Stephen ran out of time on every section. It doesn’t bother him much because he knows it is really just for practice at this point. He has taken the test every year since 8th grade so that he would feel more comfortable with the test taking process. Every year he has run out of time. Next year in 11th grade his scores will be important.

At the recommendation of a friend we have started looking into what sort of accommodations are offered for students with disabilities when taking college entrance tests. The College Board administers the PSAT, SAT, and AP tests, among others, so their website is where I started. Many times these tests are administered at school and other than being asked to send in money for the tests, parents are relatively uninvolved in the process.

Our plan is to make sure that all of our records are up to date, make sure we have all of the documentation required and submit everything early enough that we have time to resubmit if there is any problem.  We will be working through our school guidance counselor because the school has a very thorough record of the ongoing accommodations that have been made for Stephen since his diagnosis.

If your child is on the Autism Spectrum or has other disabilities, and he or she needs extra time in testing situations at school, especially standardized testing, perhaps you would like to consider applying for extra time to be given on the PSAT or SAT test. If this is something that you are interested in looking into, there is information on the College Board website about Autism Spectrum Disorders , as well as other disabilities and the process of applying for accommodations.

~Louise

 

When All You Want Are Answers

We have been very open with Stephen, our 15 year old, about Asperger Syndrome. The reason for that is because at the beginning of our journey — his journey to discovering why he was struggling so much — his questions usually came down to “what is wrong with me?” When you are different from the people around you and other people treat you differently, you notice it. When you are left out of games, the last one picked on teams, and never anyone’s choice for a partner it doesn’t take long to start to wonder what is wrong with you. So when we received a diagnosis that could begin to explain why Stephen was different and what caused him to act and feel certain ways, we were excited to have answers for him. And he was relieved to have answers, something that explained that his brain was wired differently and as we have taught him God created him that way for a reason.

We came across this story and in it the author expressed that same sense of relief over finding out that there is a reason for certain behaviors which could be explained by an Asperger diagnosis. Then, after learning about the reason for the behaviors this man trained himself to modify some of his behaviors to make them more compatible with his family and he did it to save his marriage.

This story gives an interesting perspective of an adult with Aspergers and I appreciate the author and his wife sharing their story on national television to help raise awareness of Autism/Asperger’s Syndrome.

~Louise

 

The Reed’s Place Restaurant

A lot of times I just say “no” when my daughter (neurotypical, 11 y/o) asks if she can cook dinner. If I don’t say no, I come up with a reason why it isn’t a good day for it and put her off until some indefinite date in the future. Honestly, the main reason I’m hesitant for her to prepare dinner is because it is a deviation from our routine. And, any deviation from our routine is a potential derailment from the train tracks that keep our life running somewhat smoothly most of the time.

But, last week she went to the grocery store with me and while we were there she asked if she could fix dinner. I couldn’t come up with a good reason for her not to. She rattled off the proposed menu and we tweaked it a little. She was so excited to cook for us and wanted to “make it a nice dinner for us” and I felt like it was wrong for me to deny her that opportunity to serve her family. All through the store she was giddy with excitement about the upcoming meal.

After we arrived home she began working on getting the dining area ready. She wanted to pretend it was her restaurant and we were the guests. She put up a sign for us not to enter the kitchen and another sign for us to remain in the waiting area until time to be seated. Each of us was given a ticket for the meal. She also found a program on the internet to create a menu and printed menus for us so that as we sat down we could place our order. She wanted to have an apron so she brought me a pillow case and we created an apron for her using a belt. Her creative juices were flowing and I was thrilled to see her so into it.

As soon as it was time for the family to arrive Stephen (AS, 15 y/o) immediately disregarded the sign on the door and walked into the kitchen. She protested. He justified it by saying that he had to put something up. He left and entered the kitchen a second time for another reason. She protested again. He finally went to the area where we were asked to wait and waited with his father (I was excused because I had to help remove items from the hot oven).

We were seated and our “server” gave us our menus and asked to take our drink order. Stephen asked for a drink from the menu (but he already had a cup in the refrigerator and wanted her to give him that cup). When she didn’t quite understand what he was asking for instead of trying to explain it to her he got up, went into the kitchen, and got it himself. She protested.

In the world of make-believe Stephen struggles to play along with his sister. When she was younger and insisted that her dolls were real babies, he couldn’t allow her to have that fantasy. When she wants to operate The Reed’s Place restaurant in our kitchen, he has to be the one person that doesn’t fully cooperate.

As my daughter grows older and her personality continues to blossom I want to allow her to express her creativity. I also want to teach my son that he should appreciate her for who she is just as we appreciate him for who he is. That means accepting the fact that she loves to sing and dance and pretend that she is serving us in a restaurant. So, table for four, please…

~Louise

 

Ugh! One Quarter Almost Down

(My son is mainstreamed in the 10th Grade at an Academic Magnet School. He has Asperger Syndrome.)

This is the last week of the current quarter for my son’s school. That means that all of the sudden grades are popping up on the grading web site because teachers have to get them in before the end of the grading period. It also means there are lots of things due, reports, tests, notes, labs, you name it, it is due—or past due, meaning zeros are appearing. Last week we spent doing the “what homework do you have?” “I have thus and such in this class and I think I have this and that and something was due last week that I need to talk to my teacher about” dance that we do. (Those were not his exact words, but you get the idea of the vagueness of his answers.)

This year we are experiencing his first AP class, which he has about decided was a huge mistake because it is a lot of reading and taking notes on the reading. We anticipated that it would be heavy on the reading, but did not know that he would have to take notes on his reading and be graded on his note taking—which because of his Asperger’s is extremely difficult. (The conversation goes like this; I say, ‘read and write down what you think is important.’ Stephen says ‘then I’d be writing everything because I think everything is important!’)

But back to the dance we do. So every day I ask him if he talked to his teacher(s). No, he says, there wasn’t time, or she wasn’t there, or I don’t know what to say to her. There it is. I think he hit the nail on the head with the last statement, or at least he is close to it. When Stephen wants to talk to me about something he asks if I will come to his room to talk. We spend a long time chit chatting. Finally I can usually get him around to the point of what he wanted to talk to me about. It is difficult for him to talk to me and I am his mother…how much harder is it for him to approach his teachers when he doesn’t know what their reaction is going to be?

So here we are in the last week of the quarter. Stephen has a boat-load of work to do. I am heading out of town for two days for a family funeral. What’s the bright side? Friday is the first day of Fall Break and this quarter will be over one way or the other! One down, three more to go!

Thanks for letting me vent!

Louise

 

Ready to Date…

I was caught a little off guard when my son wanted to talk. I shouldn’t have been because it was that usual time of night when I am having thoughts of snuggling up in my bed, but my children have other things in mind. It is a sweet time when they tend to be very open and want to communicate with me, and I have to admit I wish it could happen a few hours earlier in the day…

Nonetheless he wanted to talk, so talk we did. For quite a while we talked. Until finally, he got up the nerve to say what it was he wanted to talk about—the issue was dating. He wanted to know how it was going to work when he starts dating. He had questions about money and very practical things. But he has left me thinking long and hard about how I am going to handle the emotional aspects of dating when the time comes.

Our son is fifteen and a half years old. He has Asperger’s Syndrome. As much as a neurotypical male is at a disadvantage in understanding the female psyche, our son is even more so. As he is wondering how he will earn enough money to take a girl to a movie or dinner, I am wondering how we are going to help our son guard his heart and understand that every interaction he has with a young lady must be God-honoring and respectful.

As I think of the things that are real strengths in my son, I also see where they could be the source of a lot of heartache and angst in this foray into the realm of relationships. He is loyal. He is loving. He can be sensitive and sweet. He does not understand manipulation—it isn’t his modus operandi and he doesn’t anticipate it in others.

So, now begins this mother’s prayer in even more earnest than ever before. My prayer is that God will prepare the heart of the young lady who will capture the heart of my son. First, give her a heart for God. Then, give her a kind and tender spirit that recognizes and understands that God has made my son uniquely who he is for a purpose.

~Louise

 

Hope for the Hurting

When my heart is heavy laden

And I scarce can cry a tear;

When my burdens go unspoken

And my future fills with fear;

I turn my face toward heaven

I lift my hands and pray

I ask the Lord to answer

And this I hear Him say,

“Peace be still. Trust in Me.

I am your Father. Your pain I see.

You need not worry. I’m in control.

My Word is faithful. My work is sure.

When I am finished and My Will is done

It will be perfect, I will have Won.

And you, my child, will have a place

Of perfect rest and perfect grace.”

~Louise

 

Moments of Contentment

Some days I have a post just begging to be written. Today isn’t one of those days. I asked Stephen (the 15 year old subject of most of my posts) what I should write about. The reason I asked him is because I know he reads what I write about him, about us. In fact, lately there are times that I have written about an issue we have faced and he later commented about my post. On a recent rainy Sunday morning he commented that he was not going to wear his raincoat to church because it was too soon and he was trying to be sensitive.  I appreciate that my posts are creating learning moments for both of us.

So, as I said, today I asked Stephen (who has Asperger’s) what I should write about. Without giving it too much deliberation he suggested that I write about how everyone is pretty happy. I don’t think he means that his little sister isn’t annoying him. Because she is—she sings almost constantly and finds millions of ways to push his buttons, as any good little sister would. It doesn’t mean homework isn’t challenging; because it is, and he has some every night, although it hasn’t been overwhelming recently. I think what it means is that he finds himself in a good place right now and when he is in a good place it is a lot easier for me to be in a good place.

“Not that I speak from want, for I have learned to be content in whatever circumstances I am.” Philippians 4:11

~Louise