Seeing Red

Jesse has an infatuation with firefighters. And, for that matter, fire trucks, fire engines, and firehouses.

Not unusual, you say? Little boys love firefighters, policemen, army men, you add? True. So, let me elaborate a bit.

He’s had 2 fire-themed birthday parties, dressed as a firefighter for 3 consecutive Halloweens, owns 4 fire fighter costumes, 1 fire fighter umbrella and raincoat set, 4 model fire house sets, 22 fire engines and 31 firefighter figurines of various size. Each day, he methodically lays out his firefighter costume, invites me into his “fire house” and shows me his gear before suiting up. We have made no fewer than 6 impromptu stops at fire stations we’ve passed on our journeys, and have waylaid something like 10 firefighters from their very real duties in order that Jesse might sit on one of the engines, wear a helmet, or ask “where is your black and white fire dog?” (He’s been often disappointed to learn that Dalmatians are mostly relics of a by-gone firefighting age. If he sees a Dalmatian in his firefighter story book, he LITERALLY expects to see one at the fire house. That literal nature? Yep, that’s ASD.) There are even firefighter coloring books, firefighter pajamas, firefighter DVDs. For a period of time, all Jesse would watch on television was a 1987 firefighter training video we were able to stream through Netflix. He could recite it word for word. It started out as cute. Sometime after viewing 15, it got downright annoying. He had all of us, and PARTICULARLY his older, emotionally labile brother Noah with ASD himself, seeing red.

As you’ve probably guessed by now, a restricted or limited interest (one that plays out in real life more like an obsession) is one of the hallmarks of an Autism Spectrum Disorder (ASD). These are kids who know every Star Wars character ever introduced, or who can name every dinosaur that ever trod the earth. But I was surprised to discover recently that the MORE restricted the interest, the HIGHER the anxiety – that the latter often incites the former. http://ultimateautismguide.com/2011/06/autism-news-anxiety-restricted-interests/  And, with anxiety being the defining emotion of Asperger’s and other ASD’s, it goes to reason that these kids are destined to experience both – some, more intensely than others. I thought Noah was one for restricted interests, but my sweet Jesse has shown the capability to outpace him red engine for red engine.

This morning, I walked into Jesse’s room and found yet another pile of engines and figures to be re-shelved:

Just a small selection.

But this time, instead of seeing the mess, I HEARD what he was saying. So I sat down.

“Can I visit your fire station?”

He grinned, freckles and dimples squinched up. “Yes. Yes, you can.”

Then I asked Jesse why he liked firefighters so much.

“Because.”

“’Because’ is not really an answer, Jesse. Why do you like them more than anything else?”

“Because they put out fires and save people.”

They “save people.” I exhaled, and squeezed my arms around him. I will do what I can, with God’s help, to make him feel safe and ease his worried mind.

And in the meantime, I suppose there are worse things he could be interested in.

- Sarah

Always Enough

BluejayI watched two jays squabbling in the front yard today over seed that Grace and I had accidentally spilled from the box. The beautiful, black-capped jays with their cornflower-blue wings showed their ugly desperation for more by screeching and flapping at each other in an effort to grab everything they could. Does a bird have a cut-off switch? It’s said dogs can eat until they vomit. I don’t know whether birds can do the same. How much seed does one bird need? There were tiny scatterings of seed beyond the bigger, central pile. But the birds went straight for the biggest payoff, missing what was hidden in the grass.

I can relate.

Money is tight. As Matt is in sales, we live on his salary, but we advance on his bonuses. Bonuses that aren’t around right now. My dear husband is burning the midnight oil on project after project, but to no (seeming) avail. Each night we pray, “Lord let a deal close.” Each morning, He answers, “Not yet.”

And then I spend a fair amount of time screeching at Him like a Jay.

We’ve already burned through our medical flexible spending program, and it’s only May. With two kids on the autism spectrum, Grace’s eye care, and my own medical needs, we spent $5,000 in less time than it takes a Kardashian to start a reality show. This study from the Brookings Institute, indicating a robust and direct relationship between income and well-being, didn’t lift my spirits, either. Apparently, money CAN buy happiness.

But not necessarily contentment.

“I am not saying this because I am in need, for I have learned to be content whatever the circumstances. I know what it is to be in need, and I know what it is to have plenty. I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want.” Philippians 4:11-12

Daily, the Lord reminds me I haven’t missed a meal. I have a roof over my head, cars that run, beautiful, healthy children, a devoted husband, and a few nice things (relics of a past, more…..er…..plentiful lifestyle). He has used our present circumstances to forge a new frugality, and we are stretching dollars like they are made of tire rubber. No food goes to waste, no excessive purchases are made. We have prayed for nearly two years that the Lord might heal our finances. His answer to us has included the practice of looking carefully for ways to get by on less.

I HATE less. I like MORE. But I cannot deny that my heart swells with pride when I shave $50 off my grocery bill, or sell outgrown clothes at a consignment store. It is in the saving of money and our systematic downsizing that we are reminded we CAN survive, and thrive, on less. And in so doing, we are content.

There is ALWAYS enough for us, scattered somewhere in the grass.

- Sarah

Contact: Sarah@chosenfamilies.org

Image courtesy of Ron Bird/FreeDigitalPhotos.net

 

Spinning Out of Control

I have a friend on Facebook who plays games quite often. He & his wife share the account, so I find it funny when he plays games and I see several notifications that “she” is “spinning out of control…” again. Have you ever felt like that? It’s what I call the “stop this ride; I want to get off” sense of panic. Ever get the feeling that life is just too overwhelming and you simply can’t keep up with it?

A week or two ago, this was how I felt when I had so many questions and concerns about my daughter, myself, and my family in general. It was too much for me and it was all beyond my control. The very next day, a relative of mine had that same sense of anxiety in his voice; questions about a big move, a job that wasn’t what he expected, and what the future held. When looking at him, I saw myself more clearly. I had greater understanding for him and understood how he must have felt.

That’s why my thoughts of late have been about “control” or our “lack thereof.” Do any of us really know what tomorrow will bring? Of course not; but we know the One Who knows.

“Behold, I am the Lord, the God of all flesh: is there anything too hard for me?” (Jeremiah 32:27)

It may be too hard for us, but never for Him.

I mean, honestly, if God can create the heavens, the earth, and all that is in them, why do we think WE must be in control of things? Can we compete with God? Are we simply impatient, like the Israelites after they left Egypt?

We can easily find fault in the Israelites for whining and complaining so often, after God continually provided for them miracle by miracle. We have their story recorded in the Bible. Yet, consider how you would feel if you left behind the only life you knew to follow a path totally unknown to you.

Isn’t that the sort of thing that our kids with hidden disabilities face so often? They are anxious because they have “no control” over what may happen next. Their fears drive them to compulsions (those with OCD, like Flory) just so they THINK they have control over SOMETHING; only to find IT has control over them. It’s a vicious cycle.

To truly help them, besides medications and therapies, don’t we need to live the truth in front of them? Are we prepared to face the unknown with faith in the One Who is unseen? As parents and loved ones of these precious family members, I think we owe it to them (as well as to ourselves) to “let go” and realize that we must live by faith and trust; that we must cling to the Word God has given us and the times we know He has shown His personal love.

“Take therefore no thought for the morrow; for the morrow shall take thought for the things of itself. Sufficient unto the day is the evil thereof.” (Matthew 6:34)

I also like to remember the old saying, “Don’t borrow trouble.”

“Are not two sparrows sold for a farthing? and one of them shall not fall on the ground without your Father. But the very hairs of your head are all numbered. Fear not therefore, ye are of more value than many sparrows.” (Matthew 10: 29-31)

To sum up my thoughts (and to avoid using the bazillion wonderful verses I also found), I’ll leave you with this verse: “Thou wilt keep him in perfect peace, whose mind is stayed on thee; because he trusteth in thee.” (Isaiah 26:3 – taped to my computer, lest I forget.)

Blessings,

Grace

How Hard It’s Not

Today I sat down to write this entry, intending to enlighten, amuse and exhort the ChosenFamilies.org readers. In regaling you with stories about Noah, I reveal to you a window through which you might view the reality of life with a hidden disability. That life is often awkward. It’s challenging, and can be complicated, but it’s funny. There are many happy endings as we learn from Noah and his Creator. Our burden is comparably light. Even as Jesse’s own diagnoses have emerged to intensify our circumstances, I can’t plead impossibility of burden. I particularly cannot plead it today, when I opened my laptop this morning, and found this:

http://usnews.nbcnews.com/_news/2013/02/27/17112877-cops-two-boys-grandmother-found-dead-after-she-takes-them-from-day-care?lite

Another lurid headline pulled me in. Then I scrolled to the bottom, and there it was:

“Jeremy and Brenda Perry, parents of the two young boys, told NBC Connecticut that Denison had a gun and she had a mental illness.”

A mental illness. A reference to a “wide range of mental health conditions — disorders that affect mood, thinking and behavior,” according to Mayoclinic.com. A pattern of being that painted the whole canvas of Debra Denison’s life, and from which there was no escape. My mind went to a dark place as I imagined how she could possibly have thought that killing her grandsons and then herself was the right choice – if that was, indeed what happened. My heart aches for the Perry family, as I wonder what the prologue to this story would have revealed: why Debra was permitted to pick the boys up from daycare? Whether she was medicated for her illness? Whether she was being monitored by a psychiatrist or other mental health professional? Why she had access to a gun?

I wonder most of all why the healthcare system in America is failing those with disabilities. “But your family is doing fine!” you say. Why hasn’t the system failed Noah, or Jesse or me? Because we’ve probably spent $50,000 on medication, therapies and doctors (this is a conservative estimate). Because we’ve worked tirelessly at early diagnoses to alter history’s course at the earliest possible junction. Because we are our own best advocates and we never rest at getting “better.” We are our own champions. God has blessed us in giving us to each other. Yet there are those that must manage mental illness on their own. This is nothing short of impossible, as the way of thinking needed to get better is the very thinking absent from the start.

There is no “funny” in this post. Which is too bad, because Matt never ceases to be amused at the way I laugh when I’m writing (no one thinks I’m funnier than I am, unfortunately). I wish I could be more light-hearted today, but I am hearing the voices of those who are un-medicated, undetected, untreated, unhappy.

“He died for us so that, whether we are awake or asleep, we may live together with him. Therefore encourage one another and build each other up, just as in fact you are doing.” 1 Thessalonians 5:10-11.

I am lifting them up today, and I am lifting up those who care for them. I am praying for them, and asking the Lord to let us better see and help them whose lives are harder than ours.

- Sarah

Anxiety Wears Sneakers

My son (age 16, Aspergers and Learning Disabilities) and daughter and I were walking around the mall last week when I noticed a “Now Hiring” sign in a game store. “You could work there,” I told my son. He replied, “Mom, do you want me out of the house or something? You keep mentioning places I could work.” Oops. I didn’t realize how often I mention jobs or careers to my son.

I think it is the sneaky sneakers of anxiety. They sneak up on me, into my heart and mind and, eventually, out of my mouth. Unless I am actively identifying my anxiety and presenting these concerns to the Lord (with thanksgiving), I become anxious, particularly about my son’s future. I wonder what kind of job he will be able to do, how he will be successful, how he will handle stress and chaos, who he will find to marry, and many other future issues that I have no control over.

On the surface, I am doing my best to educate him, socialize him, and help him overcome his learning disabilities. On the surface, I am not worried about tomorrow but there is an undercurrent that I think all parents have that threatens to suck us into the riptide of worry and anxiety. Then, suddenly, I find that I have “borrowed trouble” from tomorrow. I have allowed the sneaky sneakers to catch up to me.

I really don’t know the answers to these questions and I have no idea of what he may end up doing for a living. The possibilities sometimes seem more limited than they are for my neurotypical daughter. But they are not! We have a God who doesn’t know the meaning of the word impossible. We have a God who promises us that, if we present our requests to Him, with thanksgiving, he will keep those sneaky sneakers away and guard our hearts and give us peace instead of anxiety. What an amazing, loving God we serve!

Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. – Philippians 4:6-7

~Brooke

Building a Mystery

A move does interesting things to an autistic. For individuals who are categorized by, among other things, their need for routinization, a change like this can be catastrophic in its proportions. For neurotypicals, the Homes and Rahe stress scale lists a change in residence or living conditions as major contributing factors to the accumulation of overall life stress (and ultimate potential for physical illness. On a related note, Noah’s sister – not coincidentally – has croup). So, one can only imagine what it does to the psyche of children with Asperger’s, for whom a change in routine or predictability can wreak emotional chaos.

Noah is desperate for a sense of contribution to the process of our move. The exercise of control over his circumstances is one way he attempts to limit his own explosions, ticking, and emotional outbursts. On Saturday, during one of our many trips to the new house, Noah positively lost his mind when he dropped a toy on the floor and cracked its exterior. He spent nearly 10 minutes in the bathroom, crying and screaming and wiping his eyes.

When he’d calmed down, he dug into a box of sundries in the living room and began pulling out items he wanted to “decorate” with. I explained that decorating was the last thing we were going to do – that the boxes needed to be emptied and the shelves needed to be cleaned; that we had so much left to move. He didn’t listen. Time after time, he returned to the box, pulling out vases and sculptures, plates and lanterns. He told me to come to the tables he’d decorated, and take a look.

“I need you to say something nice and complementary about what I’ve done,” he admonished.

“Something nice and complementary,” I said. Noah didn’t laugh.

The table was set in a perfectly symmetrical pattern. The same number of coasters, and the same coasters on each side. The large letter in the middle evenly dividing both sets. On the other side of the room, he balanced a wooden plate holder on each of two candlesticks. Between them both were two ceramic birds. Behind them, two matching statues. Then, this morning, he told me of the prior night’s dream. “The king told us to build a castle, and we stacked floors on top of each other, and they were teetering. And there was a soldier on each side, and a light behind each soldier…” He even dreams in symmetry. That mind of his, it’s always building mysteries.

All things same and balanced. The antidote to chaos.

This predilection toward symmetry isn’t unique to our son. In fact, it’s been reported that autistic children recognize symmetry better than do their non-autistic peers. But in our home, and for the present, this represents more than a simple neural function. Instead, I see it as a plea for order. As the boxes pile up in increasingly empty rooms, and we shuttle another load of furniture between homes, I am watching Noah and finding ways that he is stacking and sorting and separating to make sameness and order. I long to protect him from his own anxiety, but at the same time, help him to appropriately deal with it. This isn’t the only time in his life things will get messy.

“No, we declare God’s wisdom, a mystery that has been hidden and that God destined for our glory before time began” (1 Corinthians 2:7).

Noah’s mind is a mystery. The wisdom of God is mysterious. It is a function of my personality to be plagued by the frustration of ignorance, always asking why. But there are some things the finite, simple mind cannot possibly know. So for now, I must be content in the not knowing of things, and in the trusting that what I don’t understand is for good in the end.

-Sarah

Of Anticipation and Anxiety

I have realized something lately.  Anticipation and anxiety are two sides of the same coin.  I never quite realized that before.  I feel a little silly to say that but it is really a revelation of late.

We have journeyed with our son, who has hidden disabilities, for over a decade since diagnosis.  We have been through 14 IEPs, 4 Triennials, 3 Superintendents, 3 Special Education directors, several Administrators, several case managers, and countless
teachers.  Woo.  Makes me tired just thinking about it.

We are now at the college prep stage.  SATs done, Senior year, and applications sent. And we are waiting.

The college of his choice is supposed to notify him this week if he has been accepted. And nothing. Every day I go to the mail box for a letter and nothing.  It is painful.

I find myself swinging between quiet, peaceful trust in God’s faithfulness and anxiety-filled begging of Him to be merciful and make this a HAPPY moment instead of just another dreaded learning experience. We have had our share of those in this journey and I have so wished for this to be a happy moment for him.

And I find this new realization in the midst of it all… that anticipation and anxiety are two sides of the same coin.

When your life is filled with happy, typical moments and you are waiting for something, you tend to do so with  ANTICIPATION.  This was my very typical growing up experience.  I rarely ever experienced anxiety or worse – dread.  I had no reason to anticipate it.  Life was generally good.

But having walked this journey with hidden disabilities and the painful daily experiences that often accompany, I am now acquainted with grief, and his all too familiar friend – ANXIETY.  This is new territory for me. I have learned new things about myself and God in the midst of this walk.

So today, I am waiting for the letter.  And reviewing Phil 4:6-7 repeatedly in my mind: “Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God, which surpasses all comprehension, will guard your hearts and your minds in Christ Jesus.”

God has been so faithful to us at every step along the way in this journey. He has not protected us from the grief along the way but He has walked with us in it.  He has given us grace through it.  I KNOW He will walk with us in this moment as well.  If our son is accepted, He will prepare His heart for transition.  And if he is not, He will provide grace and direction for next steps to take.

Two days after I wrote this, the letter came — a deferral of decision.  He is crushed. No amount of reassurance that this is not a rejection will work today.  So we will continue to walk it out and pray.  God’s good plan will be clear in time.

Waiting,

Shannon

Rope Burn

“When you get to your wit’s end, you will find God there.” So proclaimed the sign outside a little country church near my house. I am pretty certain these witty, theological colloquialisms come from a book somewhere, but they are eerily prescient. Because lately, I’ve had a bad case of rope burn. Rope burn is what happens when your young, thoroughbred ex-racehorse decides that the hoof pick is a snake, and she rears up like a scene out of the “Black Stallion” while you’re clutching the lead rope like a monkey. Rope burn is what happens when you’re lashing your belongings to the back of a pick-up truck and someone on the other side of the truck – as desperate as you to speed the transition into a different house – pulls on the rope the same time you do. Rope burn is what happens when you clutch your circumstances tight, and despite your best efforts, they shift and hitch and jerk themselves right out of your control, taking the skin on your palms – and your wits – with them.

I have rope burn, all right. The Lord snatched from me what passed for circumstantial control so that I could find Him standing right in front of me, holding the rope. That’s how a tug of war is won, you see. One party loosens their grip; the other takes up the slack. And boy, that rope hurts on its way out of your hands. But “No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love Him” (1 Corinthians 2:9), and I’m at my wit’s end.

So I suppose I’ll loosen my grip.

- Sarah

Foolin’

As the New Year dawns on a cold morning, I am lying in bed, willing myself not to hear the yelling and scuffling down the hall. Matt is still sleeping, mouth agape. He told me once that he could fall asleep on a set of bleachers during a basketball game, having perfected the skill during high school and a run of sporting events he shared with his two brothers. He can also turn off his hearing at will. It must stem from the same neurological pathway in his brain – the one that lets him not hear kids outside his door though they’re hollering at each other in full voice.

I, on the other hand, have mother ears. The kind that let you hear your crying child at the end of the hall, through two closed doors, over the hum of a box fan, in the middle of the night. So over the growing din of that morning, I heard a little hiss of something over the carpet, attended by a tiny crackle of paper.

The kids were sending us notes again, I thought. And then I threw a pillow over my face and pretended it was still only four in the morning and I had 3 hours more to sleep.

When Matt and I finally uprooted ourselves from the bed approximately 20 minutes later, I found, as I had suspected there would be, a note at the bottom of our bedroom door.

“DEAR MOM AND DAD – I HAVE RAN [SIC] AWAY FROM HOME. SIGN [SIC] NOAH”

Aw c’mon, Lord! This ALREADY? I’m only seven hours into the New Year!

I bolted past Grace and Jesse in the hallway, screaming, “Where is your brother?? Where IS NOAH!?”

I yelled downstairs into the basement, pulling on a coat over my pajamas at the same time. “NOAH!”

That was when he jumped out from behind the couch screaming, “SURPRISE!”

Now, the time between my reading of his note to Noah revealing himself was probably a minute or less in length. But a minute of suspended heart rhythm, a minute of terror seizing the gut, a minute of “what do I do next?” is a minute too long. It was a minute that probably took six months off my life on the back end. So I’d like to apologize in advance to Delores Hornstein at the Shady Oaks retirement community, because as it turns out, I’m not going to make that shuffleboard tournament after all.

I’m panting now, doubled over in the kitchen. Noah trots over with a gap-toothed grin. He has no concept of why I am worried.

“NOAH! Why did you write that note? I don’t understand….”

“’Cuz I was foolin’ ya.”

Foolin’ me into thinking he’d left me forever. I’m remembering now when Grace was a tottering infant and Noah compulsively rubbed her head because (1) it was squishy, and (2) it made her scream, and he “liked it.”

That mind blindness of his is a real *****!

“Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid.” (John 14:27)

Do not let your hearts be afraid when you think your son has disappeared, but instead, remind, remind, remind him of what other people could be feeling as a result of his actions. Instruct, instruct, instruct him on principles of safety and awareness. Even when he’s foolin’.

- Sarah

Fear and Trembling

I can’t remember the last time I was afraid. Nervous? Yes. Anxious? Regularly. But nervous and anxious are not the same as that white-hot void in your stomach that materializes when your future is on the cusp of changing for the worse; when your very life hangs in the balance. It’s been some time since I’ve felt that.

When I was 22, I spent a few months between college and law school working a mindless retail job at the mall. One night, during Christmas of that year, I was working a double shift until close. It was well after 11 pm when I got into my dad’s borrowed car in a vacant parking lot to go home.

“And there were shepherds living out in the fields nearby, keeping watch over their flocks at night. An angel of the Lord appeared to them, and the glory of the Lord shone around them, and they were terrified.” Luke 2: 8-9

That night, I was over-tired, under-slept, and footsore. In an attempt to save time on my commute, I took a short cut that led me through a wooded area, near the state park. Fast forward to the current day. I’ve recently been issued a citation in the amount of $160 for doing 67 mph in a posted 45 mph zone, so I needn’t tell you that my foot is more lead than flesh, and that on the night in question I wasn’t adhering to posted speed limits. (A proclivity for fast things extends into other areas of my life, as in my riding for example, wherein my trainer has been known to scream, “Slow down! You’re going to kill yourself!!”) On that winter’s night, I may have been doing upwards of 80 mph. The music was up and the windows were down as I struggled to stay awake. I came barreling down the unlit, rural road, and hit my brights.

That’s when I saw it.

Directly in my path – not more than 25 feet in front of me – was a solid line of trees. Not saplings, or skinny birches, mind you. But a stand of meaty, ancient pines with large grey trunks and roots the circumference of duct work. I know, because I got close enough to practically kiss them.

The curve in the road that I had entirely missed had been marked off with a single reflector, and that single reflector hadn’t done me any good at 80 mph. My first thought was, “I will never hear the end of it if I total my dad’s car!” And then, for the first time in my life, I had this thought:

“I might actually die.”

THAT was my first encounter with true fear.

I’d like to think it was my cat-like reflexes that motivated the following thought pattern. If I slammed on the brakes, I would either (1) skid out and hit the trees passenger side first, (2) not gain enough brake leverage to stop in time to avoid a head-on collision with the trees, or (3) some combination of (1) and (2). So, I slammed on the brakes while banking hard to the left in the opposite direction. I had no idea what was to the left of the car, but I was turning there at about 60 mph.

What was to the left was a sedan carrying a couple who had no idea I was about to do a bumper-car spin-out into their driver side quarter panel. And then the clock hands started to slow, and I saw in perfect clarity what I see even now writing this – the glasses and the brown hair of the car’s driver, and the face of his passenger as she began to turn in my direction, no doubt prompted by the headlights shining into her ear. I saw the red tail light of their passing car and then the Ford logo as it pulled away, and I ground to a halt directly behind it.  My head hit the head rest, my bags fell to the floor, the car rocked on its suspension.

But I was alive.

I can think of no other explanation for surviving this kind of a close-call, than that the Lord had physically interjected his hand between the car, the trees, and the passing Ford. I am an awful driver, and an even worse magician. Close-calls like that aren’t just lucky, they’re divinely directed.

“But the angel said to them, ‘Do not be afraid. I bring you good news that will cause great joy for all the people.’” Luke 2:10

Do not be afraid.

Apparently the sister who booked herself a double shift during the Christmas shopping season, just to get a little extra scratch and nearly killed her tired, speeding self on the way home thought she could thumb her nose at fear. Then, fear showed her a finger of its own.

Fear – real, suffocating, pit-of-your stomach fear is about the worst feeling in the world. What I hate most about what happened in Newtown, CT at Sandy Hook Elementary is that those children and their teachers were afraid. Afraid in an “I might actually die” way. Afraid like a band of mutton-stinking shepherds when the pitch-black sky burst open and a voice from heaven like a sonic boom cried, “Do not be afraid!” kind of way.

(Footnote: I will save any discussion about the failure of the mental health system in America for a later time. For my part, I do not believe that the Sandy Hook tragedy was wholly due to laxness in American gun control.)

But now my fear, the real kind that makes you want to puke if you weren’t turning the wheel so fast, is what happens to those children who grow up to be Adam Lanza. His was a complex psychological picture and by every account, he was severely mentally ill. His handicaps were invisible. Among his many disabilities was an autism spectrum diagnosis – a diagnosis which the media has used as a lightning rod to establish debate between mental health pundits on whether or not the diagnosis gave Adam a penchant for anti social – and more specifically, violent – behaviors.

The white-hot fear I have now is for my children.

I find that fear is a more regular visitor now that I have children, and my heart walks around outside myself in the form of three blonde children who grew their tiny bodies just under my own ribcage.

I have a son with an autism spectrum diagnosis, with ADHD, with OCD, and with Oppositional Defiance disorder. I have another who may have epilepsy, who was recently described by our neurologist as “severely ADHD”, and who, in conjunction with the foregoing, seems to be expressing some severe behavioral problems that might point to something even more darkly complex. What happens to my boys when they grow up?

I am trembling just a little bit.

“’Today in the town of David a Savior has been born to you; he is the Messiah, the Lord. This will be a sign to you: You will find a baby wrapped in cloths and lying in a manger.’ Suddenly a great company of the heavenly host appeared with the angel, praising God and saying, ‘Glory to God in the highest heaven, and on earth peace to those on whom his favor rests.’” (Luke 2:11-14)

Fear has an effective way of forcing us to listen. When your heart temporarily stops, it’s a great way to get your ears to work. Like when a great company of angels begins a chorus loud enough to strip the wool off the sheep and you think, maybe the baby in the barn might be worth investigating after all.

I am listening to my children. I am watching them closely. I am calling our neurologist and booking appointments at a lightning pace. We are even more motivated now – Matt and I. We refuse to be a statistic or a news story. We remember the place of purity from which our children began their lives, and we remember the One who provided it.  He is the same One who will protect them as they grow, and reward the diligence of the parents who’ve been entrusted to shepherd them. Though we continue to endure close-calls, our family’s path is, and always has been divinely directed.

There is no greater job than to parent these children, and we are privileged to have it. Remembering that helps the fear to fade. I get to take care of these three. What a gift. No matter what their ICD-9 codes are.

“But Mary treasured up all these things and pondered them in her heart.” (Luke 2:19)

For now, when I’m feeling a tad more rational and I’ve turned off the coverage of the Sandy Hook funerals and the days at school are uneventful with no disciplinary notices smashed deep in the bottom of backpacks, I tuck the fear back into a quiet chamber of my heart, to ponder it for another day when I am feeling less brave. And even then, it will be okay.  Because the baby in the manger made sure it would be.

Sarah