Counting the Moments

Jeremiah 29.11I’ve spent today looking through envelopes and envelopes of pictures. Back in March when we were visiting Cami’s great-grandparents, I noticed two personalized engraved photo albums on the shelf at their house, one album each for their oldest great-grandchildren: Cami (first great-granddaughter) and her cousin (first great-grandson), who were born three months apart. The keepsake albums were empty, so I brought them home with me to fill them with pictures.

I noticed two things when looking through my envelopes of pictures:

1. Cami screamed a lot.

(I used to take her picture when she was pitching an I’m-not-getting-my-way fit. She’d pull herself together right quick, and it redirected her attention away from whatever it was she was having a fit about. Maybe that’s why there are many pictures of Cami screaming.)

2. Cami laughed a lot. So did I.

Seriously, when I think back to the times documented in those pictures, I remember how much this child made me giggle. Yes, I remember the times when I called Michael at work and said, “Come home now. I am losing my mind.” But I remember in more vivid detail the days when we sat on the carpet and played, when we walked all over our neighborhood seeing what we could see, when Cami would discover something new that I’d never noticed before and we celebrated together. When I show Cami pictures of her younger years, there are many more hilarity-filled moments to recount than angst-filled ones. What a wonderful gift.

If you are currently in the midst of angst-filled moments, please know: they won’t all be that way. Jesus walks with you in every moment, and He has plans to prosper you—and your loved ones—and not to harm you. His plans are for your future and a hope. He promised (Jeremiah 29:11), so you can count on it.

Even if right now, your days are one hard thing after another, take a deep breath and lean into His care. Ask Him to give you some giggles in the midst of the angst. And when He does, take a picture. Make a note of those Jesus-filled moments so that one day, years from now, you’ll have a record of His glory in the midst of the chaos.

Counting on His new mercies every day,

Candi

Of Isolation and Personal Responsibility

E Elliott quoteI have been pondering of late this sense of isolation that seems to go with hidden disabilities.  I have to acknowledge that some of it is my responsibility.  In order to move toward change we have to acknowledge our piece and deal with it.  We also need to share with others ways they can help us.  But one without the other is not likely to be effective.

So my piece.  The reality is that sometimes engaging in the “normal” or “typical” things in others’ lives just screams at me how not typical our life is. (Note, I DO recognize that “atypical” would be the proper word there but somehow it doesn’t feel as emphatic.  Go figure.)  Sometimes I can manage this and be o.k. and I participate.  Sometimes it is so painful as to be almost unbearable.  In those moments, I tend to not engage.  Is that the fault of others?  Of course not.  They are living their lives, celebrating their moments.  I want to celebrate with them.  How do I do that through my own ongoing grief…?  Not sure of the answer to that one. And in those moments I feel like some of them are thinking that I just need to get over any grief and deal with it…. The challenge, of course, is that the grief is not an event in time to “get over.”  It is an ongoing death upon death that is hard to explain unless you are living that kind of life also.

It isn’t even something I can wrap words around.  I am sitting here weeping as I type.  It just is.  It just is what it is.

Perhaps the day will come when those moments will not be so raw.  If so, I have not grown that much yet.  I am often not able to be there.  I want to be but I don’t know how.

Honestly that distresses me.  But I don’t know how to change it.  I take life as it comes and try to process as I go. I am not typically one who holds on to past offenses (real or perceived). I typically process and talk through as I go.

There are moments, however, when the processing is so beyond painful that I can’t do it with others.  Perhaps if I did they would understand more of our journey.  In that way, I suppose I may keep them from understanding.  Perhaps that is part of why this journey feels lonely at times.  It isn’t that people aren’t trying to understand. Sometimes they really are.  But they don’t understand.  And some of that responsibility may lie at my feet.  Because the most painful moments are borne alone or with our family… not shared.  Not borne publically.

So I am ponderous today.  How do we make things better in this area? Is it possible for it to be better?  Or is this just part of the hidden disability journey?  I would welcome your thoughts.

Moving toward the goal of true maturity,

Yours,

Shannon

Contact: shannon@chosenfamilies.org

Silly Putty

Those who sow in tears shall reap in joy. Psalm 126:5 (NKJV)

 

Silly puttyMy children received Silly Putty in a goody bag and I’m sure you can imagine where this is heading.  :)

I have to say, my kids, ages 6 and 3, did great following the rules of where they were allowed to use it and kept it safely in the case for a couple of weeks without incident. Then we had a couple of minor incidents and I should have taken the hint and moved it along.

I didn’t.

Then I found a big, big mess. Somehow it was separated into six large pieces and found our favorite big cozy blanket as comfy as we do.  This queen sized fleece blanket joined our family last fall and the four of us enjoy cuddling under it while watching movies. It is also the blanket of choice when someone is sick.

I was less than thrilled to see the mess and determined to remove it at all costs. After attempts to remove the putty with larger pieces of putty failed miserably, I hit the Internet. I was sure there have been many Silly Putty victims before me and I was right. I will spare you the details, but let you know that it was a multi-step process and required a lot of time and patience. But it worked!

It occurred to me that emotional healing and/or spiritual growth (sometimes it is both) are multi-step processes that require time and patience. I cannot clean my own mess or remove the deep wounds of my heart in my own strength. Instead I must partner with the work God is doing, no matter how painful or complicated the process. He is always good and loves us more than we can imagine.

There is hope if you are in a painful season right now. It is a season. It will not last forever.

I have found healing from depression (three separate times) through a multifaceted approach (including medicine). I am living proof that, by God’s grace, you can come through dark times stronger and healthier.

Lord, we lift up all who are in a dark place right now. Please give them hope and assurance of your Presence with them. May Your Holy Spirit bring comfort and wholeness as only You can, through medicine or however You choose to work in each situation. Thank you for Your faithfulness and the promise to never leave or forsake us. We trust Your Word and not our feelings. Meet us in the Name of Jesus we pray. Amen.

~Lynn

Contact: lynn@chosenfamilies.org

Always Enough

BluejayI watched two jays squabbling in the front yard today over seed that Grace and I had accidentally spilled from the box. The beautiful, black-capped jays with their cornflower-blue wings showed their ugly desperation for more by screeching and flapping at each other in an effort to grab everything they could. Does a bird have a cut-off switch? It’s said dogs can eat until they vomit. I don’t know whether birds can do the same. How much seed does one bird need? There were tiny scatterings of seed beyond the bigger, central pile. But the birds went straight for the biggest payoff, missing what was hidden in the grass.

I can relate.

Money is tight. As Matt is in sales, we live on his salary, but we advance on his bonuses. Bonuses that aren’t around right now. My dear husband is burning the midnight oil on project after project, but to no (seeming) avail. Each night we pray, “Lord let a deal close.” Each morning, He answers, “Not yet.”

And then I spend a fair amount of time screeching at Him like a Jay.

We’ve already burned through our medical flexible spending program, and it’s only May. With two kids on the autism spectrum, Grace’s eye care, and my own medical needs, we spent $5,000 in less time than it takes a Kardashian to start a reality show. This study from the Brookings Institute, indicating a robust and direct relationship between income and well-being, didn’t lift my spirits, either. Apparently, money CAN buy happiness.

But not necessarily contentment.

“I am not saying this because I am in need, for I have learned to be content whatever the circumstances. I know what it is to be in need, and I know what it is to have plenty. I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want.” Philippians 4:11-12

Daily, the Lord reminds me I haven’t missed a meal. I have a roof over my head, cars that run, beautiful, healthy children, a devoted husband, and a few nice things (relics of a past, more…..er…..plentiful lifestyle). He has used our present circumstances to forge a new frugality, and we are stretching dollars like they are made of tire rubber. No food goes to waste, no excessive purchases are made. We have prayed for nearly two years that the Lord might heal our finances. His answer to us has included the practice of looking carefully for ways to get by on less.

I HATE less. I like MORE. But I cannot deny that my heart swells with pride when I shave $50 off my grocery bill, or sell outgrown clothes at a consignment store. It is in the saving of money and our systematic downsizing that we are reminded we CAN survive, and thrive, on less. And in so doing, we are content.

There is ALWAYS enough for us, scattered somewhere in the grass.

- Sarah

Contact: Sarah@chosenfamilies.org

Image courtesy of Ron Bird/FreeDigitalPhotos.net

 

Not Home Yet

Therefore HopeI have been sad sometimes lately – because of world events like earthquakes in China, terrorist bombs in Boston, and explosions in Texas. I have also been sad because of the pain of friends who have lost jobs or who are fighting serious illness. I have been disappointed that my life isn’t what I dreamed it would be. My Prince Charming fell through a roof and, instead of riding a white horse with me at his back, he lies in bed fighting severe pain all day. My son struggles with learning disabilities and social issues (Aspergers) that I can’t instantly fix. I don’t know what he will do for a living in the future and I’m not always sure I am doing all I can to help him succeed in life. All these things make me sad.

The Lord has reminded me in the midst of this that this world is not our home. The brokenness of this world, the unrequited love, the longings unfulfilled, and the promise of better things are whispers of a life to come where the world is whole, Prince Charming has come, we are safe and loved and fulfilled.

Every time we cry, we should remember that someday there will be no more tears. Every time we are disappointed by a spouse, we should remember that we are the bride of Christ. Every time we feel unloved by our parents, we should remember we are held in the arms of our Heavenly Father who IS love. Every time we don’t know the answers, we should remember we belong to one who does.

We long, in the essence of who we are, for beauty, for peace, for joy. Are we longing for a painting, for quiet, for a festive event or are we longing for the author of these things and for a state of being where we are developed fully into the essence of who we are created to be? I think the latter is true.

When we hurt, we are pointed to a time and place with no more hurt.  And when we are joyful, we are pointed to a time and place when joy will be complete.

The beautiful things in life point me to heaven as well. The blue sky and spring breeze draws my gaze and my heart upward. My same family (with all its challenges) also causes me to be thankful – I wouldn’t want to walk through this life without any of them. A glimpse of heaven and good things and blessings create a longing for my future home as much as the challenges do.

I am thankful that the Lord draws me from sadness to longing to HOPE and hope is what takes me through each day. I am so glad that the Lord has a place prepared for me where there will be no more pain or sorrow or grief.

Hope deferred makes the heart sick, but a longing fulfilled is a tree of life.  Proverbs 13:12

And I heard a loud voice from the throne saying, “Look! God’s dwelling place is now among the people, and he will dwell with them. They will be his people, and God himself will be with them and be their God. 4 ‘He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.” Revelation 21:3,4

Looking with hope,

Brooke

Contact: Brooke@chosenfamilies.org

A Little Reminder

I continue to be amazed at the way the Lord uses music to comfort and inspire me. “The Same Love” by Paul Baloche has been doing both.

In light of the struggle and pain that comes with living in a fallen world, it is great to be reminded of God’s love and power. He is calling us to surrender our burdens and fears to Him. He calls us beloved and longs to heal our brokenness.

I encourage you to find 5 minutes to prayerfully listen to this song and hear Him calling and declaring that you are His.

~Lynn

 

 ”The Same Love”

You choose the humble and raised them high

You choose the weak and made them strong

You heal our brokenness inside and give us life

CHORUS

The same love that set the captives free

The same love that opened eyes to see

Is calling us all by name, You are calling us all by name

The same God that spread the heavens wide

The same God that was crucified

Is calling us all by name, You are calling us all by name

You take the faithless one aside

And speak the words “You are mine”

You call the cynic and the proud, “Come to Me now”

CHORUS

The same love that set the captives free

The same love that opened eyes to see

Is calling us all by name, You are calling us all by name

The same God that spread the heavens wide

The same God that was crucified

Is calling us all by name, You are calling us all by name

BRIDGE

You’re calling, You’re calling

You’re calling us to the cross

A Christmas Blessing

The phone rang, “Hello! I want to buy you tickets to a concert for Christmas!” It was the dear voice of my college roommate, flying high, fresh from a Keith and Kristyn Getty Christmas concert in her city. I LOVE their music, ever since their hymn “In Christ Alone” became our family’s theme song years ago. Their tour was coming to my city…would I accept tickets? Oh yes!!

At the last minute (as in, 2 hrs before the concert) we invited a friend of mine, and her husband, to join us. Double date. But God had His reason for this friend coming. He wanted to tell me something, and He was going to use her to do it….

So there we were, witnessing amazing talent, beautiful music, powerful lyrics. There was just one problem: my soul was completely flat. I mean, n-o-t-h-i-n-g  resonated with me…and I have say, when music doesn’t reach me, my wood is wet. All that planning (and expense) of my dear roommate, and my soul was completely out of tune with the Christmas spirit of the evening. I sat there wondering, what’s wrong with me? The year has been depleting, but what year hasn’t? My contacts need adjusting, so the stage was blurry. But this was music, for heaven’s sake. I should be able to CLOSE my eyes, and still connect. So much truth, so beautifully set….

Literally, only one phrase beamed through the fog to my soul, for a fleeting moment: “…the hope that will not deceive…”

An Irish Christmas Blessing

Now may the fragrance of His peace

Soar through your heart like the dove released

Hide in His wings oh, weary distant soul

He’ll guide your spirit home

 

And may His love poured from on high

Flow to the depths of your deepest sigh

Oh come and drink from the only living stream

And on His shoulder lean

 

And may the hope that will not deceive

Through every pain bring eternal ease

There is no night that can steal the promises

His coming brings to us

 

So may His joy rush over you

Delight in the path He has called you to

May all your steps walk in Heaven’s endless light

Beyond this Christmas night

 

 

Keith Getty and Kristyn Getty

gettymusic.com

 

The concert ended, and we were threading through the crowd to the exit doors, when my friend says, “you know, one phrase tonight brought you to mind…” and I’m thinking, is she going to say  – and sure enough, she says, “the hope that will not deceive.” My soul stood still. The Getty’s sang at least 3,000 words, probably more, and she says those 6.

God was telling me what was wrong with my soul. I need me some hope. He saw me, sitting there with thousands in the darkened arena – He who IS light, seeing in the dark – and He planned the whole evening, so He could connect some dots for me.

He is right. My soul is in the middle of processing deep pain from hopes dashed, deflated through deception this year.  Hope deferred makes the heart sickProverbs 13:12. So He reassured me…. You can hope in Me, sweetie. I will not deceive you with my words. Let your spirit rise…you will not be disappointed in Me.”

I will be told more lies. I will hope some of them are true. And discover they are not. Having perception disorders in our home makes it hard to know what to believe. But God offered me this hope –

Behold, I lay in Zion a choice stone, a precious corner stone,

and he [she] who believes in Him will NOT be disappointed.

I Peter 2:6

Love,

Joan

The Grass is NOT Always Greener

A few days ago, I was deeply moved by a video clip shared on Facebook by a dear friend of mine. It was about childhood cancer, the number one killer of our nation’s children. I thought of my son, the same age her son was when he died of cancer. The thought of losing either of my children so moved me to tears, that I instantly grieved for those parents in the video clip who either were going through this battle with a child or who had lost a child to cancer.

About 3 or so years ago, I had reconnected online with this friend, who graduated with me from high school. Back then, we were different and not exactly close. However, time and experiences had shaped us and changed us both. We had kids around the same ages, having had them later in life. I instantly loved her and her family.

When I read her posts and saw all of the wonderful family pictures she faithfully took, capturing great memories, I was envious. She had two beautiful boys, still had her girlish figure, and her family did fun activities together (sailing, going to the beach, and just having fun together).

I also had two beautiful children, but my figure had drastically changed from just 3 years earlier and, since I had developed M. S., my limited mobility interfered with many family activities. Though envious, I truly enjoyed the person she’d become and always loved reading her posts. I jokingly told her once that I wanted to live vicariously through her. This comment later came back to haunt me.

About one year or so after we reconnected, I was stunned to learn that her oldest son had been in a simple childhood accident that revealed he had a tumor in his liver. It ruptured that day. Her nightmare began on his first day of summer vacation. He’d graduated from 5th grade and was ready for a summer of fun before entering middle school. He died from cancer almost a year from the day of his accident. I was privileged to be able to go to his graveside service and to hug my friend in person, later, at the church.

“Lo, children are an heritage from the LORD; and the fruit of the womb is his reward.” -Psalm 127:3

We are blessed to have the children we’ve been given and to have the privilege to raise them according to God’s Word. Would we want to trade the hidden disabilities of our children for a disease like cancer? I would never wish such a hardship on anyone, but I know God is able to carry any of us through whatever challenges come our way.

“Boast not thyself of tomorrow; for thou knowest not what a day may bring forth.” -Proverbs 27:1

Sometimes another parent seems to “have it all together” and we are envious. But we never know what struggles another parent faces or may face in the future. We may face things we never imagined could happen. That parent who “has it all together” may have her whole world come “crashing down around her” in an instant.

“Come unto me, all ye that labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart, and ye shall find rest unto your souls. For my yoke is easy, and my burden is light.” -Matthew 11:28-30

I cannot control what circumstances come into my life. I have learned that the hard way. However, God doesn’t intend for me to handle things all by myself. How can I? Some burdens in life are too much for us to carry. Corrie Ten Boom told a story of her father using an example of a heavy satchel that was too much for her to carry. She later used that simple lesson to tell the Lord when “things” were too hard for her to “carry” during her time spent in a Nazi prison camp. We may not be in a Nazi prison camp, but the same truth applies to all of us. When life’s burdens are too hard for us to carry, we are encouraged to “cast” all of them upon Jesus because He cares for us.

Let’s face it, the grass is NOT always greener on the other side. God knows what lies ahead and is already there. He can “carry” those things that are too hard for us to bear.

-Grace

Rockwell and Reality

I don’t know about you but I often get caught up in the “wish it was” moments of the Holidays.  I so long for that Norman Rockwell picture of the holidays.   All of the family together as one big happy family.  Sharing gifts.  Sharing a beautiful meal.  Sharing laughter and memories.

Our home isn’t that Norman Rockwell picture.  We are broken by hidden disability and it affects that picture.  It is sad in some ways.  And it isn’t just sad for our little family.  It affects the extended family also.  It isn’t their “Norman Rockwell Thanksgiving/Christmas” either.

It is important to acknowledge this.  It is that elephant in the room that needs to be acknowledged.  It is important to acknowledge because without acknowledging it there will be hurt feelings, unrealized expectations, crushed dreams.  But by acknowledging it we open ourselves to new perspective.

Just because it isn’t Norman Rockwell doesn’t mean it can’t be beautiful.  It just has to beautiful in the way that works for YOUR family.

I was pondering this early this morning and praying for God to show me His heart about it.

And I was reminded of the reality that this is why Jesus came.   He came to redeem all of these broken places.  The broken places in our health.  The broken places in our hearts.  The broken places in our families.

Jesus came to redeem our brokenness.  He came to give us abundant life today.  But abundant life doesn’t mean it will look like Norman Rockwell.  Norman doesn’t live at my house.

He came into this darkness to bring His light.  And He reminded me of this lovely song I have been singing all morning.  Listen.

Isn’t He, by John Wimber

Isn’t he beautiful?
Beautiful, isn’t he?
Prince of peace,
son of God.

Isn’t he?
Isn’t he wonderful?
Wonderful, isn’t he?
Counselor,
almighty God.
Isn’t he?

Yes, you are beautiful!
Beautiful, yes, you are!
Prince of Peace,
son of God.
Yes, you are!

Yes, you are wonderful!
Wonderful, yes, you are!
Counselor,
almighty God.
Yes, you are!

____

I pray as you enter this holiday season you will embrace the beauty of God’s presence and see the beauty in your life.

Warmly,

Shannon

On Finding Meaning

Sometimes I have a hard time finding meaning in my life with hidden disabilities.

Because of my husband’s health issues (brain injury resulting in memory loss, executive function problems and epilepsy), our world has gotten significantly smaller.  We no longer have friends over or host parties…and it’s not JUST because of Ben.  Initially I said no to these things that were so important to us because I wanted to preserve and protect my husband.  Now I say no because I’m tired, worn out, and struggling with depression.  I miss our friends.  I struggle to find meaning in a world that is just work, work, work, dealing with my husband’s disability and trying to raise three children as God-fearing, God-loving adults in spite of my sin and lack of faith.

Because of our diminishing finances, our world has also gotten larger, in ways that I am not really comfortable with.  My children no longer attend the small, Christian school that they’ve gone to for the past 5 years.  They are in the local public elementary and middle schools; when I show up to events and conferences (when my work allows), noone knows me or my husband and all we’ve gone through…I feel anonymous and somehow frightened.  It felt different when we met at our church school and everyone  knew that we were dealing with health issues, even if people didn’t fully understand what we dealt with on a daily basis.  Now I struggle to find meaning in a world where our children are numbers and our homelife is unknown to most.

My work takes me far from home.  I struggle to find meaning in my life, day after day, working to pay bills and health insurance (almost more important than bills at this point).  My job pulls me away from home for 10 – 11 hours each day (it’s a long commute and I am there for 9 hours).   It is an environment where I need to pull myself together and separate myself entirely from any heartbreaking emotions I may experience.  It is a good job…but it is not remotely fulfilling.  There is nothing about my job that relates to my life, my education, my interests.  I need to pretend to be someone else in order to not become too depressed.  There is nothing in my 8 – 5 job that provides meaning to my life.

This post is entitled “On Finding Meaning.”  Many of us women grew up thinking we would find our meaning in our families.  Some of us, who did not grow up in the Christian community, felt that we would find meaning in our life’s work.  Right now, I am struggling to find meaning.  My family life is challenging and overwhelming.  My professional life is unsatisfying.  My friendships are…well, for any one of you dealing with a family member with hidden disabilities, friendships ebb and wane depending on our own emotional resources and the understanding and complexity of those around us.

So I write this post longing for comments.  How do you find meaning in so much heartache?  How do you find God when everything in your life is filled with pain and unfilled longings and the terrible effects of the fall?  I know that there is so much heartache in other countries and many women (and men) whose lives are not consumed by hidden disabilities write beautiful blogs of trips to these regions and ways to help.  But how do we find meaning in the narrow lives God has given us?  How do we find meaning in the boundaries God has provided for us in living with these hidden disabilities?

Please comment, if you can.  I am definitely longing for input to help me to keep going in my life which sometimes feels meaningless and without hope.  I generally try to end with an encouraging scripture, but today I am asking YOU, the reader, to provide me with the hope that will not fail.

Thank you!

~ Nancy