The Coldest Dish

Capitalization on Emotional Frustration.

Noah’s in the revenge business. He prides himself on Machiavellian tactics and instincts. He’s hired his services out to his sister, seeking payment out of her piggy bank. He’s left booby-traps and nasty notes around the house. Is this a by-product of brotherhood? Are boys more natural score-settlers? An older boy in student care at Noah’s school is giving him grief, and night and day, Noah talks about “getting even.” I wonder if he feels this burden more intensely because he’s somehow marginalized by his peers. We mothers never fully know what transpires after we drop our children off at school, and I am quietly terrorized by the thought that this little boy is ridiculing Noah for being “different.” Because Noah is. And I see it more clearly every day (this, a part of parenting a high functioning autistic that I intensely dislike – the part where things get worse before they get better).

Noah could have passed this trait onto his little brother Jesse, or perhaps it’s just the natural dynamic of male siblings. But in either case, it’s such a prominent theme in our home that Jesse recently suggested a “revenge meal” by telling me he wanted to eat both Hot Pockets for lunch, rationalizing that by eating both, when Noah went to ask if he could have one for dinner, “dere won’t be any lef, because I eat dem all.”

When Noah feels as if the world has him under its heel, it does little good to remind him that vengeance is the Lord’s alone (Romans 12:19). He still seethes and grits his teeth and makes a fist. Noah loves the Lord, alright. He just doesn’t trust Him to even the deck. I am certain his thirst for revenge is what keeps Noah in karate – a sport in which we thought his interest would fade (for Noah, if you play a few notes, you’ve mastered the piano; throw a few footballs, you’re Peyton Manning. You get the idea). The self-defense/combat mechanisms of the sport entertain his ninja death squad fantasies. Noah doesn’t like feeling like he’s been “had.” But then, neither do I. More than once, I’ve let others laugh at my expense, only to go home and quietly seethe about what I should have said at the time. I wish I could say that I’d chosen to turn the other cheek at the moment of offense, but I’m not that magnanimous. Keeping my mouth shut is only the result of a too-slow wit. “Argh! Why didn’t I think of that at the time!?” Noah feels this, too. I can tell this when he comes to me, and says, “The next time Johnnie says XX, I’m going to give him a piece of my mind!” Yes, we’re both very brave after the fact.

Really, both Noah and I need to thank the Lord we don’t say what we “ought to” at the time. Rolling over could be the Lord’s way of gently pushing our cheek in the other direction. Maybe He knows we’d be in a heap of trouble if we started running our mouths. Maybe He knows the heart of the offender, and he can see through to the hurt behind the insult. Maybe He’s just teaching us what’s required to be “at peace with everyone” (Romans 12:18). And though I’d like to say I’ve had one good Rocky versus Drago moment in my life, it’s probably for the better that I haven’t. I find that most of my “gut” reactions do better when they don’t get very far.

I’m sure that’s just how the Lord intended it.

Sarah

There and Back Again

We bought Cami a new backpack today.

Why does a homeschooler need a backpack?

Because we started back to Bible study this week.

We’ve tried to attend the weekly women’s Bible study since we joined our church seven years ago. Some years, Cami connected with the child-care workers and found a niche where she was if not understood, at least accepted. Other years, as Cami entered elementary school and the number of homeschool students attending Bible study with their moms increased, one weekday morning used up all of her coping energy for the entire week. The discomfort progressed to where we spent Saturdays, Sundays, and Mondays preparing for—and Wednesdays, Thursdays, and Fridays recovering from—Tuesday morning Bible study.

So we did what I’ve always done when Cami encounters too much input: we stayed home. While it may feel like a defeatist attitude sometimes, the reality is that home is safe. Home is consistent. Home is known. Meltdowns at home don’t last as long as meltdowns in public.

Or maybe it’s just that at home, she can take as long as she needs to decompress and she won’t feel rushed or abandoned. We can retreat to our separate corners, and no one is watching with judgment or misunderstanding.

Yet every semester when the list of Bible study classes is published, I’ve prayed, “Now, Lord? Is it time to go back yet?” I used to think women’s Bible study was a “should”: we’re a Christian family, so we should go to vacation Bible school every summer; we should participate in the church’s homeschool co-op group. We should attend women’s Bible study every semester.

I think God has finally straightened out my heart on this issue. He isn’t a God of “shoulds.” He is a God Who marks out specific paths for each of us (Hebrews 12:1), a God Who has already recorded every one of our days in His Book (Psalm 139:16). He is a God Who created Cami exactly like He wants her to be—and me, also (Psalm 139:13-18). He made me to need community, and that’s been a hard thing to come by. But He hasn’t abandoned me or left me community-less. This Chosen Families blog is absolute evidence that He knows what I need, and He faithfully provides what I need (2 Peter 1:3; Jude 24-25).

This semester, when I looked over the Bible study class list, I felt the Holy Spirit nudge me as He whispered, “There, Candi. That one.” So I registered. And we went. Cami packed her old backpack—the one I bought her the night before she started public school kindergarten, the apple-green kid-sized one with the side pockets and rip on the inside, the one too small to hold her art kit and her sketch pad and all the books she’s reading—and we set our alarms to wake up extra early.

On Tuesday morning, I couldn’t help it: I snuck a peek through the window to see how Cami was doing. It broke my heart to see her sitting by herself, with no one around her, with her back to the rest of the room, reading her library book. I guess I thought she’d make friends quickly. Or hoped, anyway. As I joined the line of women down the hall waiting to purchase their books, I said to the friend I was standing with, “What am I thinking? Maybe I shouldn’t even buy a book. Maybe this won’t work at all.”

It was my friend’s voice, but God’s heart that encouraged me. “Give her some time. Every transition takes some adjustment time. Maybe that’s all she needs is time to adjust. Maybe that’s what you need, too.”

I bought the book for the class. I believe God called me back to weekly women’s Bible study not for the study part as much as for the community part. I choose to be obedient. It might be awkward at times, and it’s already uncomfortable. I can participate in women’s Bible study this semester—finish my weekly homework, share openly and authentically in my small group, and keep Cami’s schoolwork on track while helping her heart feel free to make friends—only with Jesus’ power and anointing. Cami’s having a new backpack can only help, right?

Here we go.

Resting in God’s faithful provision,

Candi

Laid Low

I lost this past weekend, consuming the hours in bed under the covers while my family went on without me.

The past few days, I’ve been in a flare of my nasty, autoinflammatory friend, Behcet’s Disease. She is a constant companion, ever surprising, and generally unresponsive to the most aggressive of treatments. While I’m loathe to use the “h” word, I can tell you I do, in fact, hate her.

Following a seemingly benign trip to the dentist, my mouth exploded into a crop of ulcers and bleeding gums that literally started to shed their skin. I couldn’t eat or drink. I was bedbound with a fever. What corked me most was that I lost two days with my family: I lost an opportunity to watch Noah’s football game, attend a fall carnival, go to church – anything a mother might look forward to at the end of a long week because the five of us could temporarily replace the “have to do’s” with the “want to do’s.” I was laid low.

While all my children were gentle and deferential during this time, Noah’s extra kindnesses truly surprised me. They probably always will, considering the deficit from which he originally started.

Early on in the diagnostic process, Noah failed the “theory of mind” test that is often a clue into an underlying autism spectrum disorder. This test indicates an autistic’s inability to consider viewpoints other than their own, a type of “mind blindness” that sparks investigation into the social impairments that are a hallmark of children on the autism spectrum.

While we haven’t totally overcome Noah’s deficits in this area, his tenderness toward me this weekend was almost worth the pain I had to endure to witness it. Almost.

Noah brought me a bagel with peanut butter on it, a glass of juice, and this note, written on a napkin in blue marker:

“I hope you fell [sic] well. I love you. Noah.”

I cringed when I saw the food, knowing that a bagel and a glass of juice may as well have been a bowl of razor blades and a vial of boric acid for as good as they were going to feel going down. But I pulled him to my side and hugged his pajama-clad body, telling him how much I appreciated his kindness, and for thinking of how I felt during this time.

Ecclesiates 4:9-10: “Two are better than one, because they have a good return for their labor: If either of them falls down, one can help the other up. But pity anyone who falls and has no one to help them up.”

Noah recognized I was laid low, and he reached out a hand to pull me up.

Small but mighty victory.

- Sarah

Cut up, Personality

Kids with Asperger’s Syndrome (AS) are often identified by their stilted social interactions and inability to assimilate. They “belong” to this disability by notably setting themselves outside the circle of human interactions. But because autism is a “spectrum” of disorders, some AS kids actually prove, in certain situations, to be quite the opposite. These children are clowning, attention-seeking natural performers. My Noah is of the latter type.

Just recently, at a recital during Grandparent’s Day at our school, my eight year old extended a(n un-choreographed) set of jazz hands, and faked a vibrato so loud I thought he was channeling Judy Garland. The audience tittered with laughter, and of course, that was all the encouragement he needed to up his shtick. Noah can be stilted in one-on-one interactions, naturally. This is most true in groups of people with whom he doesn’t regularly associate. But get him in front of an audience, and everyone becomes a friend.

Our home is his vastest studio. Our piano is for his masterpieces (including “Flowers and Blooming” and “Nightime in China,” two of his current compositions). Our largest serving spoon is his microphone. His costumes are his daily wear. His bedroom – a blank slate for his displays.

(Noah, wearing his “protective gloves” and high-waisted pj’s at bedtime. This is his “old man with germophobia” routine.)

(A wall in Noah’s bedroom displaying a Mario Brothers 2 theme – it is flanked on the other side by an Angry Birds poster. Both are essential to displaying his interests (read: obsessions), and he applied them each with piece after piece (after tiny piece!) of vertically-arranged (and assuredly essential!) Scotch tape.  God help me when I take them down.  See also my previous post on the essence of his displays and how they represent Noah’s personality.)

Noah, as a natural mimic with an exceptional memory, often spouts bits of dialogue and comedy he’s taken from television and movies. He’s learned, through observation and practice, when to insert them at the right time. (This is, by the way, not a natural Aspie trait, as they have difficulty with socially-appropriate and/or well-timed dialogue.)

“Noah – there are shavings all over your bedroom floor! Did you take the guinea pig out again?!” “I tried mom, but it was too risky.”

After a day at school – “Look you’re probably going to be pretty proud of me about this, but I got my own Bible today. And it’s not just any Bible. It’s a HOLY Bible.”

“I am the King of all Crusades!”

Communion at church? Followed by an infamous, “Mmmm! Refreshments!”

Noah is learnedly hilarious. There is a large personality lurking behind that awkward exterior of his. And when it’s out, I’m taken aback by the effort he’s exercised to incorporate himself appropriately into the everyday social milieu. He’s done everything he can to bring himself in, to be a part of the lives of those around him, not circling the periphery like so many with Asperger’s do. And this reminds me to thank him for being a cut-up, and for his magnificent personality.

- Sarah

Celebrating Birthdays the SPD Way

It’s that time of year, when we wind down the discussion that fills our every June:

“What are we going to do for Cami’s birthday this year?”

On her first birthday, my husband went a little overboard: one hundred balloons in our one-bedroom apartment. We invited the 15 babies from our Mommy & Me class, filled the patio with baby-depth pools, and had a grand time.

Cami's 1st Birthday

Yes, it was chaotic. No, we didn’t open all the presents. We splashed in the water, ate yummy cake, then washed icing off of everyone and everything. It was a great day.

When Cami turned three years old, her Nana came to visit, and we invited our church life group to celebrate with us. We packed a lot of activity into that weekend: Friday at the zoo with Nana; Saturday lunch at Fuddruckers with our life group (Cami was the only little one); Saturday afternoon drive to Monterey Bay and the beach, where we stayed overnight and visited the Monterey Aquarium on Sunday. I think we paced ourselves well. I do remember wishing Cami had friends her own age to celebrate with.

Cami's Third Birthday Action-Packed Weekend

By the time Cami turned six years old, we’d moved three different times and attended four different churches. She’d been to church preschool, public kindergarten, and now was homeschooled. For her sixth birthday, I think her daddy and I wanted her to celebrate with her friends, not our friends. We invited 15 of Cami’s playmates from church and the neighborhood to the local park district’s indoor pool. I made specially shaped food, and we opened presents one by one as everyone watched. By the end of the afternoon, Cami was in meltdown mode, and so was I. It was all too much.

Cami's Birthday Pool Party, 2006

Trying to learn from what didn’t work so well, we used a different tactic for her seventh birthday. She chose one friend to spend the day with, to play and hang out together. This celebration strategy worked well because Cami didn’t grow overwhelmed with sensory input and social expectations. Not only did she cope well, she had a wonderful time.

Celebrating Cami's 7th Birthday

For Cami’s eighth birthday, we stretched the partying out over a long weekend, with several short, simple celebrations. She spent one day with her best friend creating new entrees at Chili’s and climbing the huge pillars outside the movie theater. We spent an afternoon with some friends enjoying the animals at a local petting zoo. The most memorable part of Cami’s eighth birthday was a “Cousin Party” with her Tennessee family. We didn’t know it then, but her cousin Fidg would move to Heaven less than a month later. These birthday party pictures are now some of the most treasured of birthday memories.

Cami's 8th Birthday

For Cami’s ninth birthday, we totally forgot all the lessons we had learned about Cami and birthday parties. We forgot that when many children are gathered in one place, Cami doesn’t know where to put her focus. We forgot that when we did attend birthday parties, she needed the rest of the day to recover from coping with the crowd dynamics. We forgot how chaotic crowd control can be when there are many small people and bubbles involved. We forgot how small our basement was when we herded the children inside because of the rain.

We forgot to take pictures.

(She wanted to have a party and invite all her friends. So we did.)

When Cami turned 10 years old, it was a big deal. She cried because she didn’t want to grow up; to her, turning 10 meant being one year closer to being a grown-up, which is not a desirable thing for my girl. (But that’s another post altogether.) When Cami turned 10, my parents came to visit. It was the first time her Grammy and PawPaw were able to celebrate her birthday with her.

We went all out. {When will we ever learn?} We set up our grill in the front yard and fed hot dogs to the neighborhood. Seriously, our entire cul-de-sac was filled with friends, neighbors, sprinklers, water balloons, regular balloons, and lots of love for our girl. A good time was had by all…

Cami's 10th Birthday Extravaganza

Except it went too long, I think. Cami ended her party inside the house, hiding from everyone and everything. Overall, it’s a good memory for her. But I remember the meltdown afterward.

When it was time for Cami to turn 11, honestly, I didn’t want to throw a party. Of any kind. By this time, we’d said “no, thank you” to so many birthday party invites, people seldom invite us anymore. And that’s okay. If Cami doesn’t enjoy attending birthday parties, why do we (her parents) keep thinking she’ll enjoy having her own birthday party? Yet what are we supposed to do when she asks for a birthday party? Say “no”? I think we keep thinking/believing/hoping she’ll be able to have a birthday party and enjoy it. {Does that mean we’re thinking/believing/hoping she’ll grow out of her sensory processing difficulties? And if we’re thinking/believing/hoping that, aren’t we overlooking the beauty God put in the way He designed Cami?}

{I’ll tell you a secret: I’m not a big fan of crowds—parties—myself.

But that’s another post as well.}

For her eleventh birthday, Cami wanted to “have an adventure”. My husband started planning activities and booking accommodations. For the first time, we took a family trip to celebrate Cami’s day. What a glorious time we had! We stopped at antique malls (in Virginia, antiquing is an excellent way to homeschool—lots of hands-on history) on the way to Fairy Stone State Park. We hunted for fairy stones, which mostly entailed being in the woods and searching the ground for specially-shaped rocks. Not everyone’s cup of tea, I realize, but we had the best time. Treasure hunting! Cami had birthday cake and ice cream twice: once on the Blue Ridge Parkway at the Mabry Mill Restaurant (pancake), and once by the hotel pool (WalMart miniature cake and Ben & Jerry’s single-serving container). And yes, we found many fairy stones.

A Family Adventure to Celebrate 11!

{As the mommy, I vote for this birthday celebration strategy every year! But it isn’t my special day.}

So. Here we are again, the last week of June, and we haven’t yet answered The June Question. We’ve been through a wide variety of celebration types, including:

  • staying in a cabin in the mountains
  • exploring a cave
  • throwing a Harry Potter-themed party for all her friends {mommy-cringe}
  • visiting Scotland (Hogwarts is in Scotland)
  • finding a place to stargaze without any light pollution
  • walking in the woods at the national park nearby to see what rocks (or fossils?) we can discover

The trip to the mountains is not feasible because of lack of finances. We talked about going to Luray Caverns, but again, it’s cost-prohibitive. We nixed the Harry Potter party because so many of our church friends are uncomfortable with Harry Potter and magical creatures. Besides, Cami actually wanted to have a scavenger hunt because she “likes to hide things.” She didn’t actually want a party at all. {Whewy!}

The heat wave we’ve been experiencing decided our last two ideas for us: Whatever we do, it needs to be inside—not necessarily in our house, but inside somewhere. Somewhere not crowded. Or loud. Or fragrant.

In all of this planning and unplanning, Michael and I finally put words to our family’s birthday celebration philosophy and priorities. We asked ourselves: what’s a birthday supposed to be about? Our answer: feeling special. A birthday should not be just like any other day.

So The June Question morphed from “What are we going to do for Cami’s birthday this year?” into “How can we make Cami feel special? How can we make her day extraordinary?”

We started where we were. In the two weeks leading up to her special day, Cami watched all the Harry Potter movies in order. She’d read all the books, and she finally watched the last movie the night before her birthday. So, we thought, let’s take her to Hogwarts. Using our imaginations, of course. We didn’t tell her the plan. We thought we’d surprise her.

Cami’s twelfth birthday started with Krispy Kreme doughnuts (which we seldom eat) and the largest birthday balloons I’ve ever seen.

Cami's 12!

She opened cards and small presents from her dad and me, and then it was time to get ready for her birthday adventure. She came downstairs in a mismatched outfit, “something I imagine a muggle might wear, Mom.” (No, we hadn’t told her the plan yet.) Michael took us to an antique book store that felt a lot like stepping into Hogwarts’ Room of Requirement, or the Library, or Olivander’s Wand Shop in Diagon Alley. We explored the books for awhile then headed a few blocks up to the pastry shop where they had the table set for our quiet wish-making, candle-extinguishing, and cupcake-consuming. Cami’s birthday candle stood in a pumpkin-spice cupcake because her daddy thought the flavor sounded very Harry-Potterish.

Cupcaking with the Family, 2012

Across the street was a little shop that sells all things Ireland where we found a book about clans and tartans. Cami also found an Irish flag she wished she’d known about; “I could’ve used it for the Quidditch World Cup,” she said.

The next planned activity was to see Brave in the theater. Set in Scotland, with Scottish accents and clan wars, we thought it would round out our adventure quite nicely.

But Cami didn’t want to go. “Honestly, Mom, I don’t really like movie theaters because the movie is always so loud,” she confessed. So we spent the rest of our day and evening visiting more used bookstores, one with neat shelves and cool music, the other with two cats and books stacked literally everywhere.

Cami in Her Muggle Outfit, A Proper Attire for Turning 12

Maybe when she turns 13, we can actually take Cami to the real Scotland. What better way for a Campbell to feel how special she is? Regardless of the activities, we will spend the day knowing how blessed we are, recounting the miracles God works among us, and celebrating the beautiful life He is birthing in Campbell Michaela Dickerson.

If you see us this time next year, you can remind us of our birthday lessons learned:

  1. A birthday is about celebrating the life God gives us.
  2. When we make the day different than every other day, we’ve celebrated well . We don’t have to throw a party or go see a movie.
  3. We are okay—we are fabulous—the way God designed us, hidden disabilities and all.

However, please don’t remind either one of us that turning 13 means Cami’s a teenager. As far as I’m concerned, that’s one day that can take its time in coming.

Ready for 12-year-old adventuring,
Cassandra

PROUD

When your child has had times when he doesn’t function in society, when he has had moments like running off the stage when playing Joseph in a Christmas play, biting a kid who was annoying him, or melting down as a toddler in the church nursery, you are allowed to feel proud when something seems to be working and they DO function, not only in society, but in a new or chaotic environment. I had some of those PROUD moments lately.

The first one came about a month ago when a teacher at the school where I work had a student in her class diagnosed with Aspergers and she asked me to come speak to the class. I told my 15-year-old son Daniel that I had been asked to speak and he asked me if he could come too. He said he’d like to tell the class about having Aspergers. Wow! I was surprised and SO excited. This kid was nervous to speak to adults or even kids his own age a few years ago and now he wants to speak in a class full of kids and teachers? So, we found a book about Aspergers and I read it to the class. After that, Daniel spoke and answered questions.

My favorite illustration that he gave was one about superheroes. He asked the class of first graders if superheroes were regular, normal people. Of course, they said no. Daniel went on to say that kids with Aspergers aren’t regular, normal people either. They are special in a good way, just like superheroes. He said he was glad he has Aspergers because it makes him super good at some things and it makes him who he is. Right after that, the newly diagnosed first grader said, “I’m glad I have Aspergers too.” Wow. Talk about having a teary-eyed, smiling moment of pride!

Then, this last weekend, we attended a First Robotics Competition. Daniel was able to join the Robotics team of a local public high school, as was another friend who is also a homeschooler. (Sometimes, all homeschoolers have to do is ask and you can join in with public school activities). He had spent the fall attending meetings and helping build this robot for the regional competition. Through that process, at the advice of a friend, I had stepped back and let him integrate into the group on his own. The kids on the team were really friendly and accepting of his differences and his gifts.

The competition, though, was in a big, noisy room at a convention center, with music playing, an announcer yelling, and busy people. The team was in a “pit” and was busily at work in semi-organized chaos. My son, somehow, was able to tune out the noise (with some effort) and stay engaged with the team all day long! He kept going back to the team to ask if there was anything they needed him to do, he watched competitions, and even helped carry the robot on the playing field. And, at the end of the day, he attended a dance and happily joined in on the dance floor, doing his own thing and enjoying the music and friends. Wow. Double-wow.

I know I must have looked pretty silly watching that dance. I just sat there and smiled from ear to ear. My son, who had struggled so much with friendship, social skills, academics, and much more, was really happy and accepted and had, in his words, “a day that he will never forget”. I’m not sure what we’ve done over the years that made the difference for those days and those experiences but I know God has been at work in Daniel’s life through many interventions, types of schooling, and prayers. All I can say is that I am thankful!

~ Brooke

Groups, Horses, and Divine Appointments

I love it when God shows how personal He is.

A few years ago, some homechooling friends of ours invited us to a small literature-based homeschooling group. We agreed to try it out, to see if it was a good fit for us. Now, with my daughter, some days are better than others. That’s true for all of us, but for Cami, not-so-great days tend to be volatile. Many times, I can’t predict how a social event is going to pan out. Cami and I had agreed on a signal to each other and a graceful exit strategy in case either one of us started to feel uncomfortable.

We ended up exiting early, neither gracefully nor quietly, through no fault of the group’s. It was just a not-so-great Cami day, and the group dynamic wasn’t a comfortable fit for Cami’s personality. After she spent most of the meeting in the corner hiding behind the couch, the group moved upstairs to do art. Cami’s meltdown came when her art wasn’t perfect in her eyes (i.e., her picture didn’t look exactly like the instructor’s picture). Screaming and wailing commenced, and Cami ended up under the dining-room table.

Now, I need to back up and tell you that we had been given another invitation that week to join a Girl Scout troop. I’d been considering it, and had looked at the Try-It book, and had been assured that we could come for a few weeks without committing to anything, just to see how it would go. I’d been praying about it, asking God to give me wisdom. I mean, I have nothing against Girl Scouts. Or homeschool groups. But Cami is Cami, and not all group dynamics work to her edification. Sometimes it causes more angst than health. The question I try to use in my decision-making is “Does this activity bring life to our family?” It’s always nicer when I can know the answer to that question BEFORE a meltdown in a stranger’s house.

However, I am learning that meltdowns in strangers’ houses are just part of Cami’s childhood. The real issue is how I can help her gather herself and leave a meltdown situation without hurting or offending those around us. (She’s too big now for me to just scoop her up and run for the door!)

On this day, I crawled under the table and literally pulled Cami out by her arm. (Not graceful, not quiet, no signal.) We went into the bathroom (she was still wailing and flouncing) and calmed down enough to make our exit in a civilized manner. It was on the drive home that God showed us His personal side.

This meeting took place at a home out in the “horse” part of our county. The next-door neighbor’s pasture came right up to the driveway where our van was. Cami could see the horse through the open window of the barn about 40 yards away. So, of course, as we got into our van to leave, she was lamenting how we don’t have a backyard big enough to have a horse. Cami doesn’t make a statement just once, you know. She repeats her thought in varied sentence structures until I either adequately assuage her lament or I mentally check out and find a happy place in my head.

We drove off with this stream of lamentations going in the back seat. Sometimes, I try to counter her all-the-things-she-wishes-she-has-but-doesn’t diatribes by reminding her of all the things she does have. (“Count your many blessings; name them one by one. . .”) On this particular day, I was still trying to pull my insides together after the huge meltdown and the decidedly socially-unacceptable way we left the homeschool meeting. I didn’t have the energy to verbally counter Cami’s lamentations.

We came to a place in the road where I saw a sign that I thought led to the road that would lead to the main road.

You got it: not the right road. But definitely a divine appointment.

As soon as I turned down the road, I knew we hadn’t been that way before. The two-lane country road was lined on one side by thick woods. The other side was marked every so often by small dirt roads in between fenced-in pastures. It was a beautiful day, warm for a Virginia winter, not a cloud in the sky. I didn’t mind so much that we’d taken a wrong turn.

Cami had grown quiet in the back seat. I had asked her earlier to think of positive things to say, instead of recounting all the things that she wanted but we didn’t have. She had just finished saying how much she wished she had her own horse when we passed a pasture with three horses sunning themselves out in the middle of the field. “Look at that, Cami!” I was so grateful for the distraction.

The field was enclosed with those wooden fences that will detract a horse or a cow, but not my terrier. Where the fence turned the corner, a double-rutted gravel lane wound back up into the land where a barn was barely visible through the trees. We drove past it, and I thought, “Now, if Michael (my husband) was driving, he’d turn down that private road and let Cami get out to stand at the fence.”

I kept driving.

But at the next private road, I did a three-point turn and went back to the gravel lane.

“What are you doing?” Alarm in Cami’s voice told me this endeavor might backfire. I kept going. “Mommy, where are we going?” The pitch of her voice rose with every question. “Are we lost?”

“Cami, do you trust me?” I often ask my child that question.

“Ye-e-ess. . .” her words said, but the tone of her voice said “Maybe not.”

“Just wait,” I said. Inside my heart, I realized that something extremely spiritual was about to happen.

I turned onto the private drive and went about 30 yards down, past a bush that blocked our view of the sunning horses. I turned the van around so we were facing toward the main road. (Another rule of thumb for life with Cami: Know where your exits are and how quickly it will take to get to them.) When I turned off the van’s engine, I could hear Cami breathing in the silence.

“What now?” she asked quietly.

“Look over there.” I pointed at the horses out in the field. She breathed in with a sharp “Ohhhh,” and praise for Jesus overtook  my heart.

“Mommy, can I get out?” For the first time that day, I heard the usual hope and wonder in my daughter’s voice. She sped her words along , afraid I would deny her request, even as I was saying yes. “I’ll stay by the van. I promise I’ll obey what you say.”

I opened my door and walked around to open hers. As much as she wanted to see the horses, to hear them and touch them, suddenly, she was reticent. “Come on, Honeybear. It’s all right.” I held out my hand to her. She got out of the van, and we approached the fence together.

Now, I just have to say: I don’t know much about horses. I’ve never been a big fan of them (not that I dislike them either). I’m a dog person. I read doggie body language very well. My friend Betsy is the horse person. When we visited her a few summers ago, she took Cami to the barn where she keeps her horse, and Cami was able to ride Cobalt. That visit was my only lesson in horse body language. I know that they breathe on each other and on people to say hello. I know they can be skittish animals who think you’re a threat to them.

I know how to offer my hand to a dog I’m just meeting: palm down, let the dog approach you, use a soft voice, and only pet them after they’ve sniffed you and all the body cues are friendly.

I have no idea how to meet a horse.

When I first stopped the van, the horses looked over. As we got out, the beautiful sorrel got up and approached the fence. I thought, “I could learn to be a horse lover.” She just breathed on us, over and over. I said softly, “Hello there. My, you’re beautiful.” I held my hand out, palm down, and this beautiful creature breathed on it. I reached up and stroked her nose. “Hello.”

Beside me, Cami had taken a step back. “It’s all right, Cami Girl. See? She’s telling you hello.” The horse breathed again.

“I don’t want to touch her.”

“Okay, you don’t have to. But you can talk to her if you want.”

As Cami started making little crooning noises, telling the sorrel horse hello and how she wished she had an apple to give her, the dark chestnut got up out of the pasture and headed over to us. These were beautiful animals, and God was using them to soothe my daughter’s heart in a way that I couldn’t.

However, for this horse-etiquette-ignorant mom, with her 7-year-old at a strange pasture’s fence meeting horses without their owner present, two horses at the fence at one time was a bit overwhelming. This time, I took a step back, too.

“Can I feed them some grass?” Cami had plucked a piece from the place we were standing.

This point in the story is where Michael’s influence was drowned out by Cassandra’s “How wise is this really?” voice.

“You know, Honey, I’m not sure how wise that is. I thought we could just stand at the fence and look at them. I didn’t expect the horses to come over to us.”

The gray-and-white dappled horse had spent all this time rolling on her back in the middle of the pasture. (Was she wanting attention? Trying to show she didn’t need people to notice her, she’d be just fine with the grass, thank you very much?) Now, the dappled horse decided to grace us with her presence at the fence.

The sorrel had moved on to nibble at the bush. The chestnut was still breathing and snuffling at us. And here came Miss Horse-Thang.

It was amazing the difference in attitude of this last horse. She came over prancing and whinnying, and the other two horses moved away down pasture. The dappled horse approached the fence and stood there shaking her head back and forth, kind of cockeyed, then did a Mr. Ed impression, with the teeth bared and making that motorboat sound that I can never make with my lips. Along with these head movements and sounds, she was stamping her foot a little, and I started to feel really uncomfortable.

“Okay, Cami, let’s see if we can find our way back to the main road, okay?”

“Okay, Mommy.” We told the horses goodbye, waved, and scooted back to the safety of our van. Cami was so excited as we left, jabbering about how pretty the horses were, and recounting in detail all three of her up-close-and-personal encounters with horses in her young life. Much easier to listen to than all the things she wants but doesn’t have.

We did find our way home.  We finally drove up in our parking lot just after dusk. We had already talked about how God had sent the horses to cheer up Cami’s heart, and how He loves us so much and knows exactly what we need, giving it to us when we need it.

This particular day, He went above and beyond in His meeting my daughter’s needs. When we pulled into our parking lot, the only parking space I could find was near the end of the street (not usually where we park). I was still riding the high from seeing “Jesus in Action” through the horses, so it was easy to check my grumbling spirit. As I pulled into the parking place, the van headlights showed a rabbit on the common lawn. After the rabbit love Jesus showered on her before, I just knew here He was again, doing exceedingly abundantly beyond all we could ask or imagine.

“Cami, look.” She opened the door quietly and snuck close to the rabbit. I sat in the van for the next twenty minutes and watched as Jesus hugged my daughter again that day, up close and personal.

Thankful for His touch,
Cassandra

Pretending to be Normal

One way to upgrade understanding of my Aspergian son, both as a young adult and retroactively for his early and teen years, is through the eyes of eloquent Aspies now sharing their stories in print. For the Asperger Syndrome community, such stories help wire their radar for minefields to avoid, while offering hope of better days ahead.

Pretending to be Normal by Liane Holliday Willey is one such tutorial in Asperger World language and relationships. As an adult, Liane found her niche as a professor, freelance writer, wife and mother, and offers intriguing strategies for calibrating her Aspie ways for survival and success in Neuro-typical zones.

Now happily straddling Neuro-typical and Aspie worlds, she would decline any “cure” of Asperger Syndrome, as she values its gifts more than she regrets its difficulties. But she also cannot believe she is at such a better place, after feeling as if a psychologically battered, crippled failure by the end of college.

Young Aspies can borrow and customize Liane’s strategies for smoother journeys. For example, she arrived at these “job” rules, which would also be useful for school and other social situations:

• “Mask myself” as possible, resisting patterns unnerving to others. “I knew, for instance, that I could not talk to myself during a job interview.”
• “I would have to dress a certain way in order not to evoke long stares.”
• “I would have to follow (organization and social rules) as best I could” – even when they seemed illogical.
• Reduce stress by:
o Avoiding confusion and noise of rush-hour traffic by leaving early for work
o Seeking solitude when useful to relieve stress – such as empty classrooms before student invasions
o Jobs, when possible (as a college prof) allowing “people-free” breaks (between classes)

Reflection on teen and college years is painful and embarrassing for Liane, but her courageous candor is a gift to the rest of us who love “our” Aspies (ourselves, in some cases), and seek to help Aspergians understand themselves.

As a teenager, Liane was fortunate in a small, accommodating town to find friendships through sports (despite her awkwardness), drama and speech clubs. Superior language common to Aspies landed her in the top 5% in speech competitions. Fashion and hygiene challenged, she found herself hauled into school bathrooms where girlfriends coached her in hair and makeup techniques and protested her “gross” hairy legs. Her popular friend Craig walked her to classes, saved her a seat for lunch and occasionally set her up on dates. Only in retrospect years later did Liane realize how Craig had been her guardian, and how her small town friends insulated her from the agony of the ostracized and enabled heart and mind-cushioning relationships too rare for Aspie teens.

The college crowd was less accepting of a habitually sloppy coed in baggy, masculine clothes who awkwardly sought connection. She found her smiles unreturned, her phone silent, and her efforts to connect resisted. While social skills seemed like a foreign language to her, she defied defeat by developing her own coping strategies.

Liane found that seeking out other isolated students not only boosted her own morale but theirs, as well. She began speaking to sad looking loners, to pause for short conversations, to gently befriend. “I felt good about myself when I received a smile in return for one I had sent. I was happy all day if I could get a lonely peer to talk to me in the cafeteria line. I was thrilled if my starting a conversation led them to continue it. I knew I had made a simple human connection, and that was all I needed.”

Liane discovered relationship wisdom for people generally, not just Aspergians: “To have friends – be friendly!” advised the sage Solomon.

Her “wilderness” college experience was, concluded Liane, probably an essential jolt towards adult roles and relationships. Her small-town cocoon of acceptance and support would not be replicated in the greater world beyond. College was “boot camp” for battles ahead, a boot camp where she learned to tackle stubborn obstacles and infiltrate alien territory in ways that could work for her.

Better days were ahead for Liane, as well as hard-won lessons and wisdom for others who share her journey. Stay tuned. More of Liane’s inspiring and instructive input will soon appear – right here.

~ Eliza

Aspie Empathy Myth?

You know the claim that Asperger Syndrome (AS) personalities have no empathy? Well, I don’t buy it.

Years ago, a little boy harassed by neighbor kids was told by local buddies to “get lost.” Almost immediately, my son, Henry, spoke up to defend that kid’s right to stick around.

Henry won.

What no one knew at the time was that both the victim and his defender, long after, would be diagnosed as “Aspies.” Henry repeatedly rose to the defense not only of the much more marginalized kid, but of other targets of rejection, often at risk of rejection, himself. In some ways, he seems to have a more sensitive spirit than many “neurotypical” peers when it comes to defending the oppressed.

Yet I can see why, even with Henry, the “empathy challenged” label can be tempting. When a close relative fought against a deadly disease, the relative was deeply wounded that Henry, by then a teenager, never said a word. No “I’m so sorry for you.” No “how are you doing?” No “can I do something for you?” It’s easy to feel at times with Aspies that they could care less if you conk over on the spot. When frustrated at such external impressions, even I at times think he’d only be upset if I up and died during the Super Bowl, as that would be such an inconvenient intrusion.

What our sick relative didn’t know was that when Henry got wind of the illness, he blurted out suddenly, “Don’t tell me about it! I don’t want to know!” As the person on the planet who reads him best, I knew this was not “don’t bother me, I don’t care!” It was, “don’t freak me out! I’m anxious about it already, and don’t know what to do!”

As for caring generally, he also has shown bursts of sensitivity that reveal endearing capacity for attachment and responsiveness. Long before I noted peers doing so, he carefully downloaded favorite music of a couple of buddies to burn on discs he custom-designed for them. This required attentiveness to their listening habits, mental recall, a sense that such a gift would bring them joy, and the time and energy to produce the final product.

I’ve concluded that for AS personalities, the issue is much more a matter of brain than heart. Their minds just don’t “get” signs of others’ grief, fear, anxiety or even joy and affection. How can their hearts respond to what is not seen or understood?

As for our relationship, I realize a mom can be a real pain to any adultish child, perhaps especially when pushing for competencies sabotaged by Asperger neurology. That perception triggered my own perhaps odd reaction last Mother’s Day when Henry gave me a card (yea! connecting move!). “Thank you! How very nice!” I responded to gushy Hallmark language citing my fabulous traits! But then I noted that there are likely some days – those prodding-Mom moments – when he doesn’t think I’m so wonderful.

“Not many,” he said quietly. Not many days he doesn’t treasure his Mom, despite the difficult journey. This came as a very welcome surprise, given emotions locked so tightly within AS personalties. His response was, perhaps, assisted by the Aspie preference for authenticity and verbalized thoughts. Whatever, it was welcome gift to this Mom’s heart, and now helps me better intuit warmth and gratitude so rarely expressed.

For me, that Mother’s Day moment was deeply moving – confirmation that more than Henry shows, love of his family for him does penetrate his awareness.

That reality offers enormous potential as our journey continues for reinforcing strength and diluting inadequacies not just for Henry, but for all the interconnected personalities in this family.

The Little Things

My son’s many distinctions lie in the little things. There are the little things he does – flapping his arms, clicking when he speaks, stiffening with excitement; and there are the little things he doesn’t do – fastening a belt, recognizing a pattern, making eye contact. These can be imperceptible to the uninitiated eye (and therefore give rise to the well-intentioned but misguided, “there’s nothing wrong with him” proclamation that many parents of young, high functioning autistics must endure. More on that, later). These little things distinguish him as “cute” or “unique” (which he is), but they are also the things that in part, helped constitute his diagnosis of Asperger’s Syndrome. Though small, they are often the things that matter most.

Every day of Noah’s dressing for school is a struggle, including a screaming match about why he needs to wear a belt or a shirt with buttons. “They’re too hard!” my 7 year old son will yell. And patiently, my husband kneels on the floor to help him with each hole. When he meets someone, there is usually a round of flapping, and a loud, “nice to meet you!” So I quietly remind him that he must shake hands, lower his voice, and look his new friend in the eye.

In HBO’s biography “Temple Grandin,” a patient mother (Julia Ormond) is sitting on the stairs with flashcards and a blank-faced Temple. “Dog” she says, showing her daughter the card. Temple looks away. Her mother takes her by the face and again shows her the card. “Temple, Do-og.” Temple, a child with Asperger’s who didn’t speak until she was four, later went on to get her Ph.D. and now lectures around the word on Autism. Many times, she has thanked her mother for her persistence and dedication in doing all the little things that helped Temple succeed in a neuro-typical world.

I would rather do a very challenging thing once, than do a less-challenging thing multiple times a day. I’m better at rallying when one large, temporary obstacle is in my path than when the file of life has worn my husband and me to our sorest spots and we are faced with repetition of the same practiced instruction. So I meditate on the parable of the bags of gold in Matthew: “’Well done, good and faithful servant! You have been faithful with a few things; I will put you in charge of many things. Come and share your master’s happiness!’” (Matthew 5:21)

I prepare Noah for adulthood through my persistence in the little things. In so doing, I please the Lord as well.

Sarah