Meeting the Educational Needs of Aspies

At the school where I work, we are seeing an increasing number of kids with special needs – kids with Aspergers in particular. The rate of autism diagnosis is increasing exponentially.

According to statistics on the Autism Society website:

  • 1 percent of the population of children in the U.S. ages 3-17 have an autism spectrum disorder
  • 1 to 1.5 million Americans live with an autism spectrum disorder
  • Fastest-growing developmental disability; 1,148% growth rate

At that rate, we are going to continue to see kids entering our school and trying to cope in a “normal” private school environment. My son, now 16, was able to survive at the school through 5th grade but it got more and more difficult as he advanced. The issues were mostly social but he also had some academic issues. Like many kids with Aspergers, he had other learning challenges like memory issues and a disability in written communication. These challenges can be hard for a teacher to deal with in a classroom of 14, 18 or 25 kids, even if that teacher is a loving, gifted educator.

One reason we decided to homeschool was that most of the private schools in the area didn’t have resources to deal with Daniel’s needs and the one that did was extraordinarily expensive. Since Daniel was overwhelmed in a small classroom, we knew that the large class size in public school wouldn’t be a good fit for him. Our third option, homeschooling, meant that we would have to sacrifice some special services but we would be able to cater his learning to his learning styles and abilities.

I think any of the options would have pros and cons and each parent has to decide which is best at the time for his child. But I wonder how our culture will cope with the increasing educational and therapeutic needs of these kids. Can we have enough loving special educators or training for parents or services? What demands will this place on parents – both those who homeschool and those who don’t?

The statistics also said that 56% of kids on the autism spectrum will drop out of high school. I wonder if my son would be one of those kids – frustrated and depressed – if we had stayed in “regular” school.

Whether your community has lots of options for children with special needs or very few options, much prayer is a requirement for deciding what is best for your child. And, much prayer and thought will be a requirement for our society as we seek to address the needs of our children and our teachers. We want our kids to be loved, happy, and able to function at their maximum ability level – to the glory of God.

~ Brooke

Good Enough?

There are so many ways I could be parenting and educating my son. Today it feels like everyone has an opinion as to how I should be doing it (or at least how I shouldn’t be doing it). The doubts that others express about whether he is being educated enough or in the right way are the same doubts that I have from time to time.

One of the biggest concerns that runs through my mind sometimes is whether I am making Daniel’s life too easy and too pleasant by homeschooling him. Part of me laughs at this statement since there is so much that is NOT easy in the life of a person with Aspergers, ADHD, and a disability in written communication. But I know from my adult life experience that life is not easy and not fair. I know that he needs to learn this.

As a teacher, I often encourage parents to let their kids struggle and make mistakes and fail while they are under the safe, watchful eyes of parents and teachers who love them. The other alternative is to rescue them until they leave home where they can do an “epic fail” in a life changing area like relationships or money or drugs.

So, am I doing this? Am I letting Daniel struggle and fail while I am here to cushion the blow and help him learn to cope with failure (like when he had to drop the English and Biology classes this fall)? Is it okay to let him have some years where things go pretty well for him?

Jesus said in John 16:33, “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Peace doesn’t come from the absence of trouble but from faith in the Lord, trust in the knowledge that His promises are true, and hope that one day everything will be alright. The Bible promises in Revelation 21:4 that, “He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.”

So, what does that tell me about Daniel and his supposedly easy life? It tells me that he will have trouble in life and that, soon enough, he will realize this truth if he doesn’t already. He will learn more about unfairness and struggle and taking up your cross. He will learn more about pain and tears and sorrow.

But right now he is learning the things that will allow him to have hope in those struggles – that he is loved and special and fearfully & wonderfully made. He is learning who Jesus is and what His Word says. He is learning about creation in Biology, about the depravity of human nature in the writings of Edgar Allen Poe, about our creative nature reflecting the creator in Art, and lots more. Just because he is learning it in a way that is relaxed and tailored to his learning style doesn’t mean he isn’t learning and growing.

And for me as the mom, I am enjoying some peace and some hope as I see Him not being depressed and over-stressed by things in “regular” school that he can’t do or can’t keep up with. I find myself thankful for him more often than worried about him. I find myself able to breathe and trust and love and enjoy.

So, I’ve answered my question for now. I am doing what’s right for Daniel and for me and, as far as I can understand, following the Lord’s plan for now. I know that his life will change and things will get tough. I will trust the Lord that HE will prepare Daniel for whatever comes in his life and that HE will walk him through it. And I trust that the Lord will show me how to guide and teach and love Daniel the best way possible. That’s good enough for me!

~ Brooke

Pulitzer Prize Insights for Parents and Educators

I tried a little experiment recently with Northern Virginia teachers gathered for the Arlington Diocesan Education Institute. Via PowerPoint, we first focused on 12-year-old film maker Tim Page, the star of a documentary winning national and international awards.  Kodak featured the film prodigy in advertisements, and he was interviewed about his work on network TV – all by age 13.

“What do you notice about this boy?” I asked teachers after they viewed an interview about his films.

“Advanced vocabulary,” and “very intelligent,” answered the teachers.

“If this were your son, what would you, as a parent, think of him?” I asked.

“That his focus is too narrow,” said one. “That he’s a genius!” exclaimed another.

The PowerPoint now filled the screen with my own reaction – an image of world-renowned movie director-producer Steven Spielberg. “I’d think I might just have a budding Spielberg in the house!” (and he could support his dear Mom and Dad in style, was left unspoken.)

All agreed that this boy seemed brilliant, creative and extraordinarily talented. Here comes the real point for the teachers:

“How would this child fit in your classroom?”

A roomful of heads shook “no.”

“Not well,” seemed the unanimous response. They saw young Tim’s soaring speech and expressive mannerisms, out of sync with peers, as sure sabotage of a normal classroom experience.

As it happens, the middle-aged Tim Page is a Pulitzer Prize winner from the neighborhood, where he was based at the  Washington Post when he won the big award.

But school nearly doomed him, as so often happens with Asperger types, or other neuro-atypicals who reason, communicate and respond differently than the neuro-typicals around them.

My hope for this workshop was to help teachers view such students from the perspective of parents, and better yet – through the minds of Aspergians themselves.

As detailed in his bestselling Parallel Play, the brilliant Tim Page found focus so impossible that he poked himself with pins to stay alert in class. Erratic grades won despair or disdain from teachers and parents, alike. A bully-magnet, he was grateful when kind teachers noticed and allowed him indoors recess to avoid abusive peers. Faked illness granted him welcome escape to the quiet and solitude of the nurse’s office.

The last grade Tim passed normally was seventh, moving into higher level classes subject-by-subject.  Temporarily admitted to an elite school that stressed not only academics but precise clothing, appearance and rules, Tim might as well have landed on Mars. Such social “language” is often so confusing to AS kids that efforts to conform are doomed. Cornered against a wall by a principal enraged by non-compliance, Tim responded with some choice words on a school wall.

Rejected. Scorned. Expelled. The future Pulitzer winner soon dropped high school entirely. Traumatic rejection, failure and isolation fed a suicidal focus, which was also fueled by a diet of bleak music and literature, drugs and alcohol.

How does a Pulitzer type rise from such ashes? He was saved, perhaps, by a Mother’s refusal to give up on a son whose genius-zone included classical music. She shipped him off to a music camp where he was embraced by those of similar passions, and where enormous potential in Asperger’s packaging was recognized and respected.

Camp led to music courses in New York City, which opened doors to Columbia University, where by graduation Tim had already become a highly regarded music critic and radio show host.

Illustrated here is a primary safety net for neuro-atypicals: reinforcement of strengths, a “best practice” topping educator guidelines in “school success for kids with Asperger’s Syndrome,” by Stephan M. Silverman, Ph.D., and Rich Weinfeld.  In this case, Tim’s parents celebrated his remarkable talent, and moved him onto a track where his abilities would be honed as an engine for vocational security and economic independence.

Imagine what might have happened if Tim had been routed into music or video challenges when younger? Fellow Aspergian John Robison reports exactly such school experience, when two junior high audiovisual technicians recognized his technical talent and drafted him for school equipment repairs. They “helped me on my way, and I owe them both a debt of gratitude,” John reports in his New York Times bestseller, Look Me in the Eye.

“For the first time in my life, I was able to do something that grown-ups thought was valuable. I may have been rude. I may not have known what to say or do in social situations. But if I could fix five tape recorders in an afternoon, I was ‘great.’”

Another high school flunking genius, John now reports he is “proud to be Aspergian,” which he views as “not a disease…(but) a way of being. My days of…crawling under a rock,” he adds, “are over.”

Those junior high technicians who long ago tapped John’s technical skill as a school asset likely had no clue that they were also injecting hope, identity and self-esteem into a floundering young life. Decades later, he cites that support staff as crucial to some of his most valuable and constructive education.

If the rest of us as parents, educators and community can likewise identify and “grow” aptitudes, defining young lives more by gifts than by deficits, who knows how many treasured kids can pry triumph out of trauma?  How many self-sufficient adults and
productive citizens – or even future Pulitzer winners and bestselling authors – are just waiting for a little wind under their wings – from us?

~ Bev