Love is a Battlefield

Into every family, a little sibling rivalry must fall. The days are hurly-burly, with much screaming, throwing, door slamming, hissing and wailing to accompany them. The children cannot be left to play on their own, nor even with each other. The acre backyard will not be big enough to control their skirmishing. Mealtimes, bath times, and bedtimes – when the children are necessarily gathered – become a thing to be dreaded.

Right? Well, imagine my distress when I discovered I was wrong.

On a trip to the beach with our dear friends and their own 3 children, I looked over Noah’s tear soaked face to plead to my friend Rhonda, “Why are your children so QUIET?!?” She offered a few answers: I’m a strict disciplinarian (check); I told them public places require inside voices (ditto); and on and on. I was heart-broken. I couldn’t keep my children under control. What was WRONG with me?

And then Noah had his first sleep-over. We decided to take Grace and Jesse out to dinner. It was the quietest meal with children we had ever had. At home, the two played sweetly on the floor with each other. They went down for bed with nary a complaint. What was different?  Noah, of course.

His nagging, his repetitive sounds, his theft of his sibling’s toys, the compulsive rubbing of his brother’s head, his inability to take turns; they were all missing. The patience of a four and two year old does not match that of their parents, and we realized that when he taxes US to our limits, his brother and sister are already past the point of insanity.

“Gracie, say hmmm. Gracie, say hmmm. Gracie, say hmmm.” “STOP IT, NOAH!!!”

This is our ride to school.

“Jesse, give me the train! Bad Jesse, Bad Jesse, Bad Jesse!” “NOOOOO NOAH!”

This is post-school playtime.

These are not gentle power struggles. These are shrill battles of will with physical aggression involved. I could go on, but I’m already eyeing the Ativan on the counter.

A sub-diagnosis of Noah’s is oppositional defiance disorder. Hard to believe, considering that Noah’s heart longs for approval and acceptance. His soul is tender and compassionate. This dichotomy is a part of who these children are: while they recognize that we are created for community, Aspergian kids cannot crack the entry code. Sometimes, fighting is the only way they know to make a connection.

Autism expert Dr. Jed Baker is quick to point out that 90% of teaching and parenting these kids is tolerance (just when I thought I’d already bit a big enough hole in my tongue….). “Make every effort to live in peace with everyone” (Hebrews 12:14). Peace is a rare visitor in our home, but the responsibility to model it lies with Matt and me. It starts with our own willingness to compromise, wait, understand, and apologize. A certain gentleman learned this lesson the hard way when I told him to go back and apologize for something he said to a stranger a few days ago. I won’t elaborate, but Matt, you know who you are.

Every one of our days involves an altercation. We guide Noah in the best direction we can, avoiding triggers (biological, sensory, or fear-based), creating a reward system for when he makes the correct choice, and most importantly, asserting the value of an apology – something that doesn’t come naturally to an Aspie.

Sometimes though. when we are very lucky, that apology does not have to be extracted but comes of its own accord. Like today, when Noah attacked his little brother for taking a LEGO off Noah’s shelf. After separating the two, I discovered this note at the entrance to Jesse’s nursery:

If you can’t speak Noah, it reads: “Jesse, I sorry. Here you go, good boy.”

- Sarah

Oh No You Didn’t

The wind’s seeping and moaning through the cracks in our poorly insulated bedroom windows today as I sit at my computer, gnawing a knuckle. I’m getting myself all worked up again. I’m prone to these little mini-paroxysms, you see. By nature, I’m a pacifist, a mercy-giver and a chicken, so when the time is right to be angry, I don’t say anything. When the time is past however, I’m a veritable colossus of articulate and righteous indignation. I’m really good at getting mad AFTER the fact.

I can’t think of a single instance when my rebuttal was timely delivered, save for that one time when my staunchly left-leaning atheist of a boss – the one who preached equality and social reform – called me a “fascist” for going to a Christian college, whereupon I managed to retort, “Oh wait. Aren’t YOU the one who’s supposed to be open-minded?”

You can high five me later.

But now, I’m angry thinking of all the self-righteous comments and looks my Noah’s received. To be fair, our burden is in some ways lighter than most. As a boy with high functioning autism, Noah may seem just a little “odd.” That he flaps, or chews his clothing or talks your ear off about Super Mario Brothers. His verbal ability and his self-sufficiency often belie his disability.

From another vantage, this actually makes our burden heavier than most. Because you’d never notice his difference from a distance, you might look down your nose when, in the middle of his flag football game, he halts a play to have a complete and total meltdown in the middle of the field. Or, you might snort a little out of disgust when you’re standing behind him in the checkout line and he remarks in full voice that the woman in front of him “sure is fat!” Remember that scene from “Terms of Endearment” when Emma doesn’t have enough to pay for her groceries? Yeah. It’s EXACTLY that painful.

You know what else bugs me? “There’s nothing wrong with him.” Why? Because you can’t see a missing limb? Because he’s not in a wheelchair? My choice responses? (1) “Nothing wrong with him? That’s because we pay a lot of therapists a lot of money to make sure he doesn’t gag at dinner because there’s a candle on the table”; (2) “Nothing wrong with him? Good. Then I’ll send him to your house the next time he has a meltdown. And while you’re at it, do you mind teaching him to use a belt?” Or, my favorite, (3) “Nothing wrong with him? Well, duh! He’s perfect the way God made him!”

I know Jesus experienced anger (Matthew 21:11-13). I know He was enraged that the temple was being used to buy and sell – making a holy place nothing more than a common street bazaar. But before I silently fist pump my own angry, internal tirades, I have to remember that Christ said, “It is written…my house will be called a house of prayer.” In other words, “you should have known better, guys. You had the book!”

When I get the supercilious looks and the incredulous comments, I need to take a breath and remind myself that they can’t SEE what Noah has, and they don’t KNOW its manifestations. They are ignorant – not just in the Maury-Povich-chair-flipping- “Oh no you didn’t!” sense of the word, but they literally “know no better.” They can’t “see” his Asperger’s like I can.

That means, much as I would like to verbally eviscerate them, I need to practice the mercy I like to preach, keep my trap shut and smile. After all, God loves them just as much as He loves Noah and me.

If you’re reading this and you’ve experienced that familiar prick of rage, here’s my knowing glance from across the cyber-distance, telling you that I’ve been there, too. We just have to forgive these poor blokes for their ignorance, because they just don’t know.

Not yet.

- Sarah