Surprising Spring

but whoever drinks of the water that I will give him will never be thirsty again. The water that I will give him will become in him a spring of water welling up to eternal life. John 4:14 ESV

I love to journal and it is one of the tools that help me stay emotionally healthy since my first bout of depression sixteen years ago.  However, I have recently (and accidentally) added a new, non-written, mode of processing my day and spending time with the Lord while………..washing dishes!

Up until we moved in October I had a large dishwasher so I loaded all of the dishes up and kept up my fast pace of life, missing an opportunity for reflection and prayer. Our new home only has room for a small built in dishwasher, so instead of running it multiple times a day, I hand wash the larger dishes. I need to be gently hand washed and made clean from my day.

I have found my dishwashing time therapeutic, as most nights I am able to have 10-15 minutes of limited interruption and I love it! Every night is different (and truth be told, some nights the dirty dishes sit in the sink until morning!) but I am learning to find ways to connect with the Lord in the midst of my day, instead of trying to add one more thing. Who needs one more thing to do?! Plus, I find shorter, more frequent times with the Lord keep me focused on Him and aware of His Presence. I crave His life giving Presence.

While we all need to be connected to the Lord, those of us on the hidden disability journey often require extra strength and grace on a daily basis. We need to combat the fear, disappointment, and frustration that attempt to invade our lives and make us dry. I am thirsty for Living Water.

Let’s be creative in finding time to process our thoughts and feelings (vent if needed) and stay connected with the Lord. If you are inclined, please share what you have found helpful, no matter how simple, to prime the pump and encourage others.

Your fellow traveler,

~Lynn

 

Shifting, Jesus-Style (In Which God Moves Us Across the Street)

One of the most pronounced characteristics of my daughter’s hidden disability is how much she struggles processing transitions.

Which is inconvenient because that’s the one thing in life that will never change:
things will always change.

I can’t tell you how many birthday parties and playdates we avoided because I couldn’t predict how Cami would express her struggles with transitions. Sometimes the meltdown happened at the event location when we were leaving, and sometimes the meltdown happened later in the van on the way home. Every time, the meltdown happened: Cami laying on the floor or rigid in the chair, screaming, arms flailing, fists banging, legs kicking—no intelligible words, with actual tears and snot all over her face. It was intense, y’all.

Through the years, we tried different strategies to help Cami with transitions:

  • talking through the schedule ahead of time,
  • role-playing how to leave a location gracefully,
  • multiple warnings that time-to-leave was coming up,
  • a code word to use if either of us was feeling overwhelmed by a situation,
  • planning what my friend Betsy calls exit strategies.

There were stretches of time when the most effective strategy we employed was to simply stay home. We didn’t rearrange furniture in her bedroom. I let her wear the same shirt day after day (I washed it when she slept). I didn’t plan anything for the week of Daylight Savings Time, knowing it would take the entire week for us to adjust to the time-keeping shift. As she’s grown older, Cami’s transitioning ability has increased in its effectiveness, although we still need at least a week to adjust to Springing Forward.

A few years ago, when Michael and I started the conversation about buying a house, Cami’s struggle with transitions was foremost in my husband’s mind. We talked about it as a family for at least two years before we looked at our first real estate listing. We stayed on our knees through the entire process, giving God our request list but knowing He would work out everything for our good. I didn’t realize, however, how good He would work everything out where Cami was concerned.

We read about and saw pictures of places all over Northern Virginia. We drove around and looked at the outside of countless houses, checking out the neighborhoods, calculating Michael’s commute time, gauging how long it would take us to get to church. Yet we only viewed the inside of a handful of houses, all in one weekend. None of the houses fit us at all. As I walked the dog one evening, I found myself literally crying out to God, tears running down my face as I realized I didn’t want to leave our street. We began our house-hunt wanting to buy a single-family home with a little land attached, with room to garden and a covered porch to enjoy. We ended our house-hunt asking God to give us a home to buy on our current street of townhouses. We love our neighborhood, and we’d spent six years cultivating relationships on our street. There was only one drawback to the new house hunt: the only unit for sale on our street was far beyond our price range.

We decided to wait and see what God would do. Even though we’d previously been inside it, we toured our neighbors’ house, looking this time with buyers’ eyes. It had plenty of room inside and out, with a garden already established in the backyard. Although it didn’t have a covered porch, it did have a nice deck overlooking the woods. I asked God to make it possible for us to buy their place. We continued to pray and wait on God’s provision and timing.

Two weeks later, as I worked in our front yard, a different neighbor came across the street. “I heard you’re looking for a place to buy,” he said.

“We are,” I said.

“Would you and Mike be interested in buying our place? We found a house a few blocks away we want to purchase.”

You know those moments that charge the atmosphere with their holiness, when God’s presence is palpable in the air? the moments where you feel God shift your reality as He performs His will in your life? It was one of those moments. God rocked my world as I stood there on the front sidewalk of the house we had rented for six years. Within the week, my husband and our neighbor discussed a deal to buy the townhouse, which was smaller than the one we’d prayed for, but had an updated kitchen and bathrooms, fresh paint in every room, and new carpets. The men shook hands on the terms, then we called our real estate agents. Within three weeks, we closed on the home God hand-picked for us and moved across the street.

Cami still struggled with the transition involved in moving out of the house we had lived in for six of her ten years of life. Yet where God had rocked my world, He steadied my daughter’s world. He gave us a house with a floor plan that mirrored our familiar space: different enough for us to make it our own, yet similar enough that Cami’s adjustment was minimal. Instead of Cami’s bedroom facing the woods where she could sit at the open window like she used to, her bedroom now faces the parking lot and our neighborhood’s common areas, giving her ample opportunity to see when her friends are playing outside and to join them. Instead of one master bedroom and two tiny bedrooms, God gave us a house with two master bedrooms, with room enough for Cami to spread out all over her own room instead of spreading out all over everywhere else. Although it took a few weeks for us to unpack and settle into our new home, Cami spent that time in her familiar neighborhood with her familiar friends, building fairy houses and riding scooters and drawing on the sidewalks with chalk.

When we moved, we didn’t leave any of her friends or any of our neighbors behind. Instead, we planted our feet firmly on the street where God had already planted our hearts.

With no transition meltdowns, no time-to-leave warnings, and no exit strategies needed.

I like shifting with Jesus much better than trying to shift on my own.

Grateful for His gentle, steadying hand,

Candi

Spinning Out of Control

I have a friend on Facebook who plays games quite often. He & his wife share the account, so I find it funny when he plays games and I see several notifications that “she” is “spinning out of control…” again. Have you ever felt like that? It’s what I call the “stop this ride; I want to get off” sense of panic. Ever get the feeling that life is just too overwhelming and you simply can’t keep up with it?

A week or two ago, this was how I felt when I had so many questions and concerns about my daughter, myself, and my family in general. It was too much for me and it was all beyond my control. The very next day, a relative of mine had that same sense of anxiety in his voice; questions about a big move, a job that wasn’t what he expected, and what the future held. When looking at him, I saw myself more clearly. I had greater understanding for him and understood how he must have felt.

That’s why my thoughts of late have been about “control” or our “lack thereof.” Do any of us really know what tomorrow will bring? Of course not; but we know the One Who knows.

“Behold, I am the Lord, the God of all flesh: is there anything too hard for me?” (Jeremiah 32:27)

It may be too hard for us, but never for Him.

I mean, honestly, if God can create the heavens, the earth, and all that is in them, why do we think WE must be in control of things? Can we compete with God? Are we simply impatient, like the Israelites after they left Egypt?

We can easily find fault in the Israelites for whining and complaining so often, after God continually provided for them miracle by miracle. We have their story recorded in the Bible. Yet, consider how you would feel if you left behind the only life you knew to follow a path totally unknown to you.

Isn’t that the sort of thing that our kids with hidden disabilities face so often? They are anxious because they have “no control” over what may happen next. Their fears drive them to compulsions (those with OCD, like Flory) just so they THINK they have control over SOMETHING; only to find IT has control over them. It’s a vicious cycle.

To truly help them, besides medications and therapies, don’t we need to live the truth in front of them? Are we prepared to face the unknown with faith in the One Who is unseen? As parents and loved ones of these precious family members, I think we owe it to them (as well as to ourselves) to “let go” and realize that we must live by faith and trust; that we must cling to the Word God has given us and the times we know He has shown His personal love.

“Take therefore no thought for the morrow; for the morrow shall take thought for the things of itself. Sufficient unto the day is the evil thereof.” (Matthew 6:34)

I also like to remember the old saying, “Don’t borrow trouble.”

“Are not two sparrows sold for a farthing? and one of them shall not fall on the ground without your Father. But the very hairs of your head are all numbered. Fear not therefore, ye are of more value than many sparrows.” (Matthew 10: 29-31)

To sum up my thoughts (and to avoid using the bazillion wonderful verses I also found), I’ll leave you with this verse: “Thou wilt keep him in perfect peace, whose mind is stayed on thee; because he trusteth in thee.” (Isaiah 26:3 – taped to my computer, lest I forget.)

Blessings,

Grace

Heartwork

As parents of special needs kids, it is easy to get bogged down with therapy and numerous additional appointments. Tending our child’s heart may be swept aside. Not that this is our intention. But there is only so much emotional and physical energy each day.

I felt convicted to pray consistently for God to work in Jonathan’s heart. Not elaborate or laborious praying. Just simple dialogue. I began asking Him for ways to bring up His name naturally to Jonathan. To share one attribute of His character that I see reflected in his heart as well. Weeks went by. I felt peaceful about the way Jonathan began to ask questions and open up more freely with his own thoughts about God.

In the van after carpool one recent afternoon, Jonathan’s questions turned to heaven. What is it like? What if we get lost up there? How will we find God? I carefully explained that the wonderful thing about God is that He knows just where to look and find us. We don’t have to look for Him. He comes to us. Jonathan pondered that. I shared that God is building a special house, just for Jonathan. Sunlight paled for a moment compared to the bright smile that exploded on his face. Really? A home of my own? Do I have to share it? I smile, not missing the quiet thoughts tumbling around his mind. At six, he is the oldest of my four children. He often covers his ears with both hands and shouts we have too many children in our house. He expresses in those moments sentiments I dare not admit out loud, but think quite regularly myself.

Yes, Jonathan, a home all your own, and you only share it if you want.

So how do I get to heaven, he wants to know. I respond that when you die, if you love Jesus and have asked Him to live inside your heart, you go to heaven to be with Jesus forever. Oh. He immediately follows with, have I done that yet? Not yet. Can I do it now?

Absolutely! So he did. And my precious son is now my little brother in Christ.

My prayers continue as I ask God to grow my son’s love for Him and His truth. May all our children choose to walk in the truth and purity and righteousness of our Father. And may He grace us to do the same.

~ Rebekah

Be Still

I was in a peaceful cove of water, deep into a fjord, circled by mountains, hours inside a national preserve. Only a few dozen people wandered the schooner (9 of them my family), when the captain announced a 10 minute “all quiet” as he cut the motor. “No talking…just soak in the sight and sounds of nature….”

At that moment, I happened onto an obscure deck with a PERFECT panoramic view of mountains and waterfalls! Where’s my family?? (For me, a delight is multiplied when I can share it with someone.) SOOO for about 2 minutes (of the 10 “quiet” minutes) I ran through the boat searching for them. I don’t know where they were (it wasn’t THAT big of a boat) but I couldn’t find them … and my joy sagged as I made my way back to the hidden deck. I tried to absorb the view, but by then I was distracted by how LONELY I felt… which sharpened the loneliness I had been feeling for the whole trip. “Jesus, I’m alone again, and it hurts….” The sinful strongholds that accompany hidden disabilities sabotage close moments in my marriage until they are rare and fleeting. (Satan, the predator he is, likes to hijack normal feelings of loss and define my whole LIFE by them.)

I know Jesus cares, but…

It took about 5 minutes of the 10 “quiet” minutes before my soul was still enough to sense God wanting to be with me. Alone. Just me. He wasn’t trying to make me lonely. Or point out my alone ness. He was inviting me into a beautiful moment with HIM. (He, too, finds joy multiplied when shared – that part of me is like HIM.)

So I accepted His offer…

I felt the misty morning fog soak my face … new bird songs sent bubbles of joy through my spirit … I lifted my eyes to the tops of those magnificent mountains … then followed their green slopes all the way down until they disappeared into the cold, unfathomably deep, dark water. I looked up again, this time watching each waterfall, almost in slow motion, cascading down in wavy white ribbons from some unseen rivers of unknown sources inside the mountain. The sum of splashing sounds washed over my sore soul, soothing … smoothing the wrinkles of worry and want.

The voice of the Lord is upon the waters (Ps 29).

Like a slow dawn, I realized the Lord’s voice was speaking to me in those waters. “God, You made this thousands of years ago…kept it hidden … it’s almost unreachable … I’m honored to see it.…”

I knew you would come, today,

and I knew you would LOVE it!

Those intimate words, whispered to my soul, wrapped me in love, evaporating my loneliness as the magnitude seeped into my spirit. Creator God handcrafted a magnificent multifaceted scene which He knew I would LOVE. He waited outside of time, for me, in time, to come see what He made! Then He joined me on that deck, as I soaked in all its beauty, by myself, with Him. My soul’s Lover.

The voice of the Lord is upon the waters…

The Lord sat as King at the flood; Yes, the Lord sits as King forever.

The Lord will give strength to His people; the Lord will bless His people with peace.

Ps. 29:3, 11

Still, Travis Cottrell

Hide me now under Your wing, cover me within Your mighty Hand.

Find rest, my soul, in Christ alone. Know His power in quietness and trust.

When oceans rise and thunders roar, I will soar with You above the storm

Father You are King over the flood, I will be still and know You are God.

Be still and know I am God … Ps 46

 

Getting more still,

Joan

 

Rope Burn

“When you get to your wit’s end, you will find God there.” So proclaimed the sign outside a little country church near my house. I am pretty certain these witty, theological colloquialisms come from a book somewhere, but they are eerily prescient. Because lately, I’ve had a bad case of rope burn. Rope burn is what happens when your young, thoroughbred ex-racehorse decides that the hoof pick is a snake, and she rears up like a scene out of the “Black Stallion” while you’re clutching the lead rope like a monkey. Rope burn is what happens when you’re lashing your belongings to the back of a pick-up truck and someone on the other side of the truck – as desperate as you to speed the transition into a different house – pulls on the rope the same time you do. Rope burn is what happens when you clutch your circumstances tight, and despite your best efforts, they shift and hitch and jerk themselves right out of your control, taking the skin on your palms – and your wits – with them.

I have rope burn, all right. The Lord snatched from me what passed for circumstantial control so that I could find Him standing right in front of me, holding the rope. That’s how a tug of war is won, you see. One party loosens their grip; the other takes up the slack. And boy, that rope hurts on its way out of your hands. But “No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love Him” (1 Corinthians 2:9), and I’m at my wit’s end.

So I suppose I’ll loosen my grip.

- Sarah

His Deeds

Oh (Joan) give thanks to the Lord,

call upon His name;

make known His deeds among the peoples (of Chosen Families)….

I Chronicles 16:8

Tonight as I sit by the absolute last embers in the fireplace, watching my college girl scooch as close as possible to those fading embers to stay warm (in true “cinder”rella fashion), I’m reflecting (in a dazed sort of way) on all the things that happened this year – so many things I did not know were coming….

if it were not for God’s deeds on behalf of our family, we would be toast.

For instance, this time last year I did NOT know my husband (in a matter of weeks) would be in a full blown worst-in-twenty-years manic episode.  There are some things I just do NOT need to know ahead of time. God decided that would be one of them.

BUT, I also did not know God would use that episode to help us change doctors and medications — something we had been needing for YEARS. God accomplished those Medical and Marital Deeds through the manic episode.

I did not know, simultaneously, I would have to move an aging relative into assisted living. I’m too sentimental to be good at those kind of decisions…much less during a long manic episode.  But unknown to me, God would do many Moving and Logistical Deeds on my behalf, helping me dismantle and condense 84 years of life and belongings into a single room, in a city 16 hours from where I lived.

Don’t get me wrong – I still felt like God had double booked trials last winter (unnecessarily). But, as can be expected from Omniscience, He knew what was coming the REST of the year, and why that task had to be done THEN. (I thanked Him later). Not only that, but the “double booking” forced my blistered soul to live with elderly saints for 2 weeks, giving me fresh courage to endure the long manic siege.

On a different note, I did not know if my son, with learning disabilities, and ADD (and aversion to all medications) would graduate college last May. It would not have been the end of the world it he had not. But he DID! If you are reading this, you know God did 16 YEARS worth of Educational Deeds to make that happen.

Nor did I have the slightest clue this son would choose a bride this year. You would think, with the bipolar and then some disabilities around here, he would just go take a long walk off a short pier. But no. Because God is merciful, He answered our son’s prayers, and ours, leading him to a Jesus-loving life mate. Even though she lived half way around the world, one of God’s deeds was to make their paths cross!

I wish we had been the only ones with a manic episode this year, but we were not. One  dear in-law suffered as well, disrupting their young family for months, as the long search for the right med blend depleted their resources.  They were just getting some relief when they came for Thanksgiving….

SO…the sweetest moment of Thanksgiving for me was after dinner, when we were taking turns, naming God’s deeds on behalf of our family. It has been a HARD year because of hidden disabilities. But lo and behold, here we were, alive and well (all things considered)…I wept as I listed His deeds….

Thank you, dear Chosen Families readers, for letting me “make known His deeds” to you each week…for understanding what I mean, even when I am not skilled enough to explain….

Dearly Dependent on His Deeds,

Joan

 

 

Showers of Blessing

Last month, we spent a week in a beach house with Michael’s mom, his siblings, and their families. Our anticipation about the trip escalated through August and September; we were both excited to go and nervous about going. Neither Cami nor I make transitions quickly nor gracefully. Add having other people watching us struggle to make transitions, and it can get stormy.

My sis-in-law found a house that had a third-floor suite, all one big room, but with doors to close—a place to pull away, calm our emotions, and regroup. Boy, did we need that space. The first night we were there, God put on a show with thunder and lightning and rain. While the family was gathered on the main floor, I found Cami sitting at the opened sliding glass door in our room, singing praises to Jesus as she watched the storm, as close as she could get to the powerful display without being in it.

I spent my week being an advocate for Cami, making sure she wasn’t left out or put on the spot, making sure she had space to do her Cami thing. It was exhausting. At home, in our normal environment with our usual routine, she hasn’t had an emotional meltdown in months. The week at the beach, she had three major meltdowns. I knew there would be rough spots, places to navigate skillfully being around different people with different personalities than the people we see in our lives at home. I didn’t expect things to be as intense emotionally as they were.

God knew, though. That night He showed off with the powerful storm? The next morning, I was catching a minute alone with Him, asking Him to give us strength to stay present in each moment, to celebrate Who He is and who we are because of Him, when I looked up and saw this promise:

He stayed so close to us that week. When I asked Cami what the most pleasant experience was from that week, she said, “I can tell you the most unpleasant experience, but not the most pleasant because there are too many to choose from.”

Her most unpleasant experience during that week? She fell on some rocks and scraped both legs. (More on that incident in another post.)

Her pleasant experiences?

  • seeing the Milky Way in the night sky (Let me just say: A.maz.ing.)
  • seeing multiple shooting stars on multiple nights
  • building unusual sand castles with her cousin

  • watching dolphins playing in the surf right off shore
  • looking down off a pier that’s only accessible by boat and seeing a momma horseshoe crab with her baby on her back moving through the sea grass
  • visiting a sea turtle nest, looking for signs of hatching
  • watching incredible lightning displays
  • chasing crabs and catching them

  • meeting a puppy named Monty in one of the shops in town
  • all the shells

  • eating some incredible chocolate chocolate chip cookies her dad made from scratch
  • making a birthday cake for her cousin from scratch with her dad

Were there rough moments? Oh, yeah.

But the brilliant, glorious moments? There were so many more of those.

Thanking Jesus for His showers of blessing,

Cassandra

A Father’s Touch

I will praise God’s name in song and glorify him with thanksgiving. Psalm 69:30

I don’t know about you, but I am still growing to continually trust my children to our Heavenly Father’s care.  While I think this may be true for every Christ following parent to some degree, I think it may be even harder for those of us parenting a child with a hidden disability (SPD).

It can be so easy to worry about them when they are not in our care. Will teachers notice the subtle hints my daughter gives when she is struggling internally or will she ask for help if she needs it?  The list is virtually endless.

The fact is, although I cannot be with her all of the time, God is.  The more amazing fact is that He loves her even more than I do! It doesn’t seem possible, but it is!

I was reminded of His deep love and care for her a couple of weeks ago while she was upset and did not want to go to school.  Adjusting to full day Kindergarten is a challenge for any child, but especially for someone with a hidden disability.  I did my best to console her and suggested that perhaps God has something special for her at school that day and she wouldn’t want to miss out would she? We prayed together and she was off.

I thought about her all day wondering if she was having a good day despite the rough start.  I was eager to pick her up to see how she was doing. At dismissal I was greeted by a girl with a huge smile as she proudly shared about her opportunity to be the teacher’s helper.

“I bet you are glad you went to school today, since God DID have something special for you,” I reminded.

We both learned a valuable lesson. I thanked God for His loving touch in both of our lives.

In awe of His loving ways,

~Lynn

 

 

A Timely Tweet

In the morning I lay my requests before you and wait in expectation. Psalm 5:3

God continues to surprise me how He speaks and reveals Himself ever so personally and often at just the right time.

I was recently processing a disappointment that I thought I had adequately dealt with and moved on.  However, I soon realized there was more work to do and I needed the Lord’s help with it – AGAIN!  So this morning, I searched my heart and confessed all I was feeling regarding this issue. I confessed my pain and brought Him my questions.

Then I returned to Psalms, where I had been reading, with no real answers or resolution. There were a couple of verses that jumped out to me and applied to other concerns in my life. I prayed through them and gave thanks for the insights I gained and the blessing of His Presence.

I woke up the rest of the family and went through our normal morning routine.  My son and I returned home after dropping my daughter off at school and I sat down at the computer to quickly check email and Twitter.

There it was.

My answer came through a tweet by pastor Rick Warren that the Holy Spirit powerfully impressed was for me in more ways than one.  It read: “Trust God’s timing. ‘Not yet’ isn’t ‘No.’ A delay isn’t a denial. Wait patiently.”

The Holy Spirit comforted me in a deep way through this truth and reminded me I really can trust His timing. I was filled with joy and peace about the situation and how the God of the universe would speak to me, even through Twitter. :)

I have learned that often times the Lord speaks to us not only for our benefit, but for the benefit of others as well. I am to receive His personal word for me and look for opportunities to share it so He can bless someone else. It’s just how the Kingdom of God works.

So friends, you really can trust God’s timing with whatever you are facing.  Although waiting is hard, it has the potential to move from ‘hardly bearable’ to ‘transformational’ when we focus on the Lord and allow Him to work in us.

Trying to wait patiently,

~Lynn