Learning Glitches ≠ Stifled Creativity

One of the greatest gifts God has given us as a family is the privilege to educate Cami at home. When we first had her evaluated, Cami’s learning disability list was long: dyslexia, dysgraphia, dyspraxia, sensory integration disorder (specifically auditory processing disorder), and “other learning disorders.” It was overwhelming.

We brought Cami home from public school in an act of desperation. She spent her school days either hiding in the hallway or crawling under tables. She hated kindergarten. Who hates kindergarten?

My girl.

Seven years later, I am amazed at the difference in my child. She loves to learn. Her boundless curiosity drives our homeschooling (for the most part). If I can get her to want to learn something, then I just step out of the way and she learns it.

The biggest delight I have in homeschooling Cami is the creativity that rises up in her and leaves me speechless. Last week, with her permission, I shared here on the blog part of the book series she’s writing. Today, I’d like to share the poetry she’s been writing this month.

And a drawing from her latest sketch book:

In her little poetry book, Cami wrote, “Just because I’m twelve years old does not mean that I can’t write good poetry.

If you turn the page, you’ll find that it’s true….”

Self Portrait

I’d prefer to duel an orc than go on shopping trips,
And I just plain drink my tea instead of taking little sips;
I don’t collect pressed flowers, just cool rocks,
Not to mention sticks, books, and socks;
Who cares about dresses? Who cares about pink?
I guess I’m more of a tomboy than other people may think.
And I ain’t cute!

 

The Great Lion

I see the stars twinkling high above me,
Through the branches I see the constellations—
The Leopard, the Hammer, the Ship.
You placed each star in the sky, You know each by name.
To You, mountains bow;
To You, every ocean roars;
At Your coming, the trees dance and clap their hands:
Festive Holly, with his spikey crown,
Mighty Oak, an old man,
And Beautiful Beech, the fairest of all.
At Your mighty roar, Your enemies tremble in fear,
At Your call, ordinary people become kings and queens,
At Your Word, the darkness leaves,
At Your Name, my fear disappears.
Forget your wars, cast aside your differences!
Narnia, Britain, America,
All nations of all worlds, be joyful!
The Great Lion is come!

 

When I Grow Up

It seems that some people think
that I’ll grow up to be a painter,
but I don’t want to spend all my days painting.
Frankly, I think that’ll get boring.
When I grow up…
I want to be an explorer,
I want to be a knight,
I want to be an archaeologist,
I want to shine a light,
I want to be a secret spy,
I want to be a wizard,
I want to be a pet-shop owner
who only deals with lizards,
I want my friend to be a talking tabby cat,
’cause when you’re a writer,
you really can do all that.

 

King Roscoe the Third

Our dog is a bit odd,
You may find he’s fairly weird,
He meows, he never barks,
He also has a beard!
He drinks his water very loudly,
He can chew anything,
But would you call electing him president
“Going a bit extreme”?
He rolls around on the floor,
I built him his own house,
One eye is crooked,
He’s a movie star,
He’d never hurt a mouse.
So, as you may see he is a bit odd,
But then again, so am I;
Roscoe’s a gift from God.

I can’t wait to read her first screen play!

Grateful for God’s provision and healing in my girl,

Cassandra

Daily Delights in Homeschooling

Stress may be the defining word in the life of a parent of a child with Aspergers or any other hidden disability. It was certainly one of the defining words in my life when Daniel was attending a regular school, before we started homeschooling. Of course, stress still rears its ugly head upon occasion these days, especially when educational decisions have to be made or when we encounter an unfamiliar social situation.

There are so many times, however, when I breathe a sigh of relief and say a prayer of thankfulness that we are homeschooling. One of these daily delights struck me this morning when I was leaving for work. When Daniel was attending the school where I worked, my mornings were hectic and chaotic. It was SO difficult getting him (and his sister) up and going so I could get to work on time.

Some children with Aspergers have sleep issues – trouble going to sleep, staying asleep, staying on a regular sleep schedule, and then, consequently, trouble getting up in the morning. Daniel definitely fit in several of those categories. In fact, he was so difficult to get moving for school each morning that I put him in his school uniform the night before and let him sleep in it so all I had to do was put on his Velcro tennis shoes (fine motor issues with tying shoes) and stick a pop tart or breakfast bar in his hand and go.

So, when I got up this morning to a quiet house and didn’t have to wake anyone, feed anyone, or get anyone dressed, I was able to breathe a deep sigh of thankfulness and contentment. I was able to eat my cereal, get dressed, and read my devotions in peace.

Additionally, Daniel has a fever and cold right now and I was thankful that my dad lives with us and even that my husband is home (he is disabled) so Daniel could just stay home, rest, sleep late, and get better. I didn’t have to call his school, get a doctor’s excuse, or make up classwork or homework. I could just call off “school” for a few days while he gets well and catch up on it later.

There are many other daily delights that cause me to be thankful we are homeschooling. I love that Daniel doesn’t have to fight every day to fit into a world where he doesn’t understand the many unspoken rules that run the lives of those around him. He is still learning more about those social rules but in small doses that don’t overwhelm him and that give him time to absorb, contemplate, and then begin to integrate them. It is like immunizations – we don’t pack the full active virus into that needle in order to prevent the disease but we expose the body to a small amount of a limited virus in order to let the body mount up an immune system response.

I love that he has the choice to tailor his environment to his comfort level in terms of sensory input. He can spend a significant portion of his day in his comfy sweat pants and t-shirts, in his safe zone (his bunk bed that he has kind of made into a cave with a couch underneath and bed on top), with the lights at the “right” level and the sounds around him that he desires so he can have the strength to learn new things and put effort into a difficult assignment instead of into filtering out the environment.

When Daniel was in regular school, he was quiet, tired, withdrawn, and sometimes depressed. Now, he is often energetic, smiling, mischievous, and outgoing. Like any introvert (and even more so as an introvert with Aspergers), he needs lots and lots of time alone to recharge so that he can be a part of life. Homeschooling lets him do that.

It is a delight to be able to get most of his required schooling done in a shorter time period so he can focus on the things he loves to do. It is wonderful that he doesn’t have “homework” that we have to do after a long day at school. As a matter of fact, all his work is homework.

It isn’t a bad thing to allow our Aspie kids to spend lots of time doing the thing they love. Don’t we, as adults, after we finish our workday, choose to focus on the thing we love? Whether it is fishing, video games, quilting, exercise, reading, or any other hobby, we find things that bring us joy and we choose to do them. Just because someone with Aspergers may have a different focus area (vacuum cleaners, dinosaurs or Pokemon to name a few examples), doesn’t mean it doesn’t bring them joy to spend time on it. I like that my son gets to be who he is and to learn about what he wants to learn about. Right now, his focus is comedy. He loves to watch Christian comedy videos like Tim Hawkins and shows like the Muppets. The mother of one of his friends even referred to him as Fozzy Bear last week (after listening to a long run of corny jokes). ☺

It is terrific that no one is judging him when he needs to jump up and down, run through the house, take a bath break (he loves long soothing baths with the fan on in the bathroom), or take a nap.

All that said, there are times I need to challenge him to go beyond what is comfortable and to try new things and learn new skills. I just delight in the fact that homeschooling gives him the safe place from which to garner the strength to go out and try those new things and conquer new worlds. I delight in knowing he is getting to be who he IS sometimes instead of always being asked to be someone else and fit in someone else’s version of the world. I delight in being able to breathe sometimes and rest sometimes and not always live in the constant state of adrenaline known as stress. It is a gift from God to have this option.

Choosing to Homeschool

Every child with Aspergers is different.  They have different challenges, different gifts, different areas they excel in and different ones that they have trouble with.   As a result, there are many different educational solutions for our kids.  I think we have tried almost all of them so far.

We began my son, Daniel’s, educational path at the elementary school where I work.  It is a private, Christian school with an accelerated curriculum.  As all parents do, I believed that my son was a genius and this would be the perfect place for him.  In K3, K4, and Kindergarten, things went pretty well (except for biting and not being able to sit still or keep his hands to himself).  He was having trouble by the end of Kindergarten and we decided to repeat that year for maturity and academic reasons (a decision we never have regretted, by the way).  In first grade, he was diagnosed with ADHD and medication helped.  As the workload increased, he began to struggle with things like writing, spelling, and math facts.  Other social issues began to be more obvious too.  In third grade, he was diagnosed by the county school’s testing service with Aspergers.

Daniel says, “Elementary school was pretty good because I understood simple things like 2 + 2. As the grades progressed, it got harder and harder.  Math became like a foreign language.  One bad thing about schooling like that was the homework. I never liked homework.  I remember not wanting to do this so I found ways to hide it in my mom’s office.  She found some of it.  The teacher told her I wasn’t turning in homework and they made me do some of it.”

In school, it was obvious that handwriting and spelling really got in the way of his communicating the information that was in his head.  We did lots of accommodations like extra time and sending him to me to write for him.  I imagine it was very difficult for the teachers to take the extra time to teach him.  They had a terrific attitude about it and really loved him but I know he was time-consuming.

Daniel says, “Strangely enough, Aspergers makes some things easier.  For instance, I’ve never studied for a test.  I only studied once or twice for things that were really tough.  It is easier in that aspect but it becomes harder as you get older.  It became a little difficult with the time limits they put on tests.  I usually knew the answers but didn’t have time to put them all down.”

When we started looking at middle schools in the middle of 5th grade, I was already a very discouraged, tired, strung out mom.  I worked all day at the school then came home and worked all evening with Daniel on homework.  My NT (neuro-typical)  daughter would sit and quietly do her homework and watch the antics going on across the room.  (Antics were what were required to keep Daniel on task and doing homework.)  When I saw the level of self-organization that most of the middle schools required, as well as the level of written work and math that would be required, my husband and I started to pray (even more than we always did) about what to do next.

It was about that time that he was hitting a brick wall academically.  Our elementary school is academically challenging and worked a grade ahead on most subjects. The workload and work level began to really depress and overwhelm Daniel.  His teachers were more than willing to work with him but we realized we were at a crisis point and needed to do something.

Fortunately, at that time, I met a friend who has a son with ASD who was homeschooling. A light bulb went off in my head. The shiny light even overshadowed my previous statement, made a few years earlier, of “I could never homeschool.”  By the way, never say never to God!  :)

We began homeschooling at Christmas in the middle of 5th grade and it has been just what we needed to do. It took a year or so for him to “de-tox” and learn to be himself and enjoy learning again.

Kids with ASD often need to learn at their own speed and that’s what homeschooling allows Daniel to do. He learns at his own pace and about the subject matter that interests him. The best thing, however, is that he is smiling, relaxed, happy, and creative again without the stress of “regular” school.

I am thankful for this option being available and for the freedom it has given our family and, most of all, my son.  I am glad he can be have time to not only be who God made him to be but also learn more about himself and the world without the external pressures of “regular” schooling.

We’ve tried many types of homeschooling  to find out more about the way he learns best. There are so many different options and possibilities in the homeschooling world. We are still learning and exploring!

~ Brooke

Groups, Horses, and Divine Appointments

I love it when God shows how personal He is.

A few years ago, some homechooling friends of ours invited us to a small literature-based homeschooling group. We agreed to try it out, to see if it was a good fit for us. Now, with my daughter, some days are better than others. That’s true for all of us, but for Cami, not-so-great days tend to be volatile. Many times, I can’t predict how a social event is going to pan out. Cami and I had agreed on a signal to each other and a graceful exit strategy in case either one of us started to feel uncomfortable.

We ended up exiting early, neither gracefully nor quietly, through no fault of the group’s. It was just a not-so-great Cami day, and the group dynamic wasn’t a comfortable fit for Cami’s personality. After she spent most of the meeting in the corner hiding behind the couch, the group moved upstairs to do art. Cami’s meltdown came when her art wasn’t perfect in her eyes (i.e., her picture didn’t look exactly like the instructor’s picture). Screaming and wailing commenced, and Cami ended up under the dining-room table.

Now, I need to back up and tell you that we had been given another invitation that week to join a Girl Scout troop. I’d been considering it, and had looked at the Try-It book, and had been assured that we could come for a few weeks without committing to anything, just to see how it would go. I’d been praying about it, asking God to give me wisdom. I mean, I have nothing against Girl Scouts. Or homeschool groups. But Cami is Cami, and not all group dynamics work to her edification. Sometimes it causes more angst than health. The question I try to use in my decision-making is “Does this activity bring life to our family?” It’s always nicer when I can know the answer to that question BEFORE a meltdown in a stranger’s house.

However, I am learning that meltdowns in strangers’ houses are just part of Cami’s childhood. The real issue is how I can help her gather herself and leave a meltdown situation without hurting or offending those around us. (She’s too big now for me to just scoop her up and run for the door!)

On this day, I crawled under the table and literally pulled Cami out by her arm. (Not graceful, not quiet, no signal.) We went into the bathroom (she was still wailing and flouncing) and calmed down enough to make our exit in a civilized manner. It was on the drive home that God showed us His personal side.

This meeting took place at a home out in the “horse” part of our county. The next-door neighbor’s pasture came right up to the driveway where our van was. Cami could see the horse through the open window of the barn about 40 yards away. So, of course, as we got into our van to leave, she was lamenting how we don’t have a backyard big enough to have a horse. Cami doesn’t make a statement just once, you know. She repeats her thought in varied sentence structures until I either adequately assuage her lament or I mentally check out and find a happy place in my head.

We drove off with this stream of lamentations going in the back seat. Sometimes, I try to counter her all-the-things-she-wishes-she-has-but-doesn’t diatribes by reminding her of all the things she does have. (“Count your many blessings; name them one by one. . .”) On this particular day, I was still trying to pull my insides together after the huge meltdown and the decidedly socially-unacceptable way we left the homeschool meeting. I didn’t have the energy to verbally counter Cami’s lamentations.

We came to a place in the road where I saw a sign that I thought led to the road that would lead to the main road.

You got it: not the right road. But definitely a divine appointment.

As soon as I turned down the road, I knew we hadn’t been that way before. The two-lane country road was lined on one side by thick woods. The other side was marked every so often by small dirt roads in between fenced-in pastures. It was a beautiful day, warm for a Virginia winter, not a cloud in the sky. I didn’t mind so much that we’d taken a wrong turn.

Cami had grown quiet in the back seat. I had asked her earlier to think of positive things to say, instead of recounting all the things that she wanted but we didn’t have. She had just finished saying how much she wished she had her own horse when we passed a pasture with three horses sunning themselves out in the middle of the field. “Look at that, Cami!” I was so grateful for the distraction.

The field was enclosed with those wooden fences that will detract a horse or a cow, but not my terrier. Where the fence turned the corner, a double-rutted gravel lane wound back up into the land where a barn was barely visible through the trees. We drove past it, and I thought, “Now, if Michael (my husband) was driving, he’d turn down that private road and let Cami get out to stand at the fence.”

I kept driving.

But at the next private road, I did a three-point turn and went back to the gravel lane.

“What are you doing?” Alarm in Cami’s voice told me this endeavor might backfire. I kept going. “Mommy, where are we going?” The pitch of her voice rose with every question. “Are we lost?”

“Cami, do you trust me?” I often ask my child that question.

“Ye-e-ess. . .” her words said, but the tone of her voice said “Maybe not.”

“Just wait,” I said. Inside my heart, I realized that something extremely spiritual was about to happen.

I turned onto the private drive and went about 30 yards down, past a bush that blocked our view of the sunning horses. I turned the van around so we were facing toward the main road. (Another rule of thumb for life with Cami: Know where your exits are and how quickly it will take to get to them.) When I turned off the van’s engine, I could hear Cami breathing in the silence.

“What now?” she asked quietly.

“Look over there.” I pointed at the horses out in the field. She breathed in with a sharp “Ohhhh,” and praise for Jesus overtook  my heart.

“Mommy, can I get out?” For the first time that day, I heard the usual hope and wonder in my daughter’s voice. She sped her words along , afraid I would deny her request, even as I was saying yes. “I’ll stay by the van. I promise I’ll obey what you say.”

I opened my door and walked around to open hers. As much as she wanted to see the horses, to hear them and touch them, suddenly, she was reticent. “Come on, Honeybear. It’s all right.” I held out my hand to her. She got out of the van, and we approached the fence together.

Now, I just have to say: I don’t know much about horses. I’ve never been a big fan of them (not that I dislike them either). I’m a dog person. I read doggie body language very well. My friend Betsy is the horse person. When we visited her a few summers ago, she took Cami to the barn where she keeps her horse, and Cami was able to ride Cobalt. That visit was my only lesson in horse body language. I know that they breathe on each other and on people to say hello. I know they can be skittish animals who think you’re a threat to them.

I know how to offer my hand to a dog I’m just meeting: palm down, let the dog approach you, use a soft voice, and only pet them after they’ve sniffed you and all the body cues are friendly.

I have no idea how to meet a horse.

When I first stopped the van, the horses looked over. As we got out, the beautiful sorrel got up and approached the fence. I thought, “I could learn to be a horse lover.” She just breathed on us, over and over. I said softly, “Hello there. My, you’re beautiful.” I held my hand out, palm down, and this beautiful creature breathed on it. I reached up and stroked her nose. “Hello.”

Beside me, Cami had taken a step back. “It’s all right, Cami Girl. See? She’s telling you hello.” The horse breathed again.

“I don’t want to touch her.”

“Okay, you don’t have to. But you can talk to her if you want.”

As Cami started making little crooning noises, telling the sorrel horse hello and how she wished she had an apple to give her, the dark chestnut got up out of the pasture and headed over to us. These were beautiful animals, and God was using them to soothe my daughter’s heart in a way that I couldn’t.

However, for this horse-etiquette-ignorant mom, with her 7-year-old at a strange pasture’s fence meeting horses without their owner present, two horses at the fence at one time was a bit overwhelming. This time, I took a step back, too.

“Can I feed them some grass?” Cami had plucked a piece from the place we were standing.

This point in the story is where Michael’s influence was drowned out by Cassandra’s “How wise is this really?” voice.

“You know, Honey, I’m not sure how wise that is. I thought we could just stand at the fence and look at them. I didn’t expect the horses to come over to us.”

The gray-and-white dappled horse had spent all this time rolling on her back in the middle of the pasture. (Was she wanting attention? Trying to show she didn’t need people to notice her, she’d be just fine with the grass, thank you very much?) Now, the dappled horse decided to grace us with her presence at the fence.

The sorrel had moved on to nibble at the bush. The chestnut was still breathing and snuffling at us. And here came Miss Horse-Thang.

It was amazing the difference in attitude of this last horse. She came over prancing and whinnying, and the other two horses moved away down pasture. The dappled horse approached the fence and stood there shaking her head back and forth, kind of cockeyed, then did a Mr. Ed impression, with the teeth bared and making that motorboat sound that I can never make with my lips. Along with these head movements and sounds, she was stamping her foot a little, and I started to feel really uncomfortable.

“Okay, Cami, let’s see if we can find our way back to the main road, okay?”

“Okay, Mommy.” We told the horses goodbye, waved, and scooted back to the safety of our van. Cami was so excited as we left, jabbering about how pretty the horses were, and recounting in detail all three of her up-close-and-personal encounters with horses in her young life. Much easier to listen to than all the things she wants but doesn’t have.

We did find our way home.  We finally drove up in our parking lot just after dusk. We had already talked about how God had sent the horses to cheer up Cami’s heart, and how He loves us so much and knows exactly what we need, giving it to us when we need it.

This particular day, He went above and beyond in His meeting my daughter’s needs. When we pulled into our parking lot, the only parking space I could find was near the end of the street (not usually where we park). I was still riding the high from seeing “Jesus in Action” through the horses, so it was easy to check my grumbling spirit. As I pulled into the parking place, the van headlights showed a rabbit on the common lawn. After the rabbit love Jesus showered on her before, I just knew here He was again, doing exceedingly abundantly beyond all we could ask or imagine.

“Cami, look.” She opened the door quietly and snuck close to the rabbit. I sat in the van for the next twenty minutes and watched as Jesus hugged my daughter again that day, up close and personal.

Thankful for His touch,
Cassandra